Is anyone able to ride a bike or found a way to make it more comfortable? I live on the canal and my bike is invaluable for getting about when I’m moored further from the car but using it this week has left me in agony! I’ve only been on it for 5 mins morning and night and most the time out the saddle- this disease can be so dibilitating and not easy to explain that you can’t go out because you just need to lie with your legs open, smother your lady garden in cream and take the strongest painkillers you have to hand!!
At least we have this place to have a rant and share what helps! 🙏
I'd really like to cycle but I'm frightened even to try. My LS is under good control but I'm worried about even trying and I'd also love to hear any tips about how to manage to begin with. Thanks for posting this and sorry I have no advice only a need for it too! Best wishes.
I’m definately gonna try the olive oil- nothing else seems to work and I’ve spent to much money on buying stuff for it to burn and make matters worse! X
Hi Sally,
this is is a brilliant question you have asked. Although I do think riding a road bike caused my L S I was fine before I used the road bike it happened because of the saddle and riding in a forest, I had read it can come because of trauma. I sold the road bike I loved the bike but no way could I lean on my bits like that. I use a mountain bike for longer rides with a saddle that is cut away front to back, it was from the Internet an Italian brand name I think. I also bought a sit up and beg bike which has helped as your back is straighter and so aren’t leaning forward. I also have to watch seams and if I get sore I use the clob to help. The saddle might be an idea for you. If I go in bumpy rides I’m embarrassed to say I have to sit off centre very uncomfortable but I can’t sit on the saddle over bumps like stones etc it would damage me. It’s hard when you love cycling. My gp said to stop riding but that’s silly as it helps with depression and gets me out. Maybe look at your bike fit I aren’t sure what bike you ride xx
Also Sally I’ve noticed awful burning deep inside after riding sometimes x
I Have seen in bike shops you can get cushions for the bike seat that have a kind of open part in the middle, this relieves the pressure and doesn't cause as much trauma down below
There are bicycle seats made for men that have an open part in the middle of the seat (easier on a guy's testicles, I guess). I think it's the same thing Jessicat was suggesting. You may want to try one one of those type of seats. Best wishes.
Hi Sally- I love to do Sprint triathlons with my husband, however that had been on hold for a bit now. I also use my bike at my summer house ( with saddlebags to hold all my groceries), but couldn’t this year due to flare. I think if everything is calm down there ( no inflammation, no pain), I will try my bike again with my special tri pants with cushioning. I’ll let you know how it goes. I hope my biking life is not behind me....
Me too! Pain inside, itching and burning! Just awful isn’t it!
Thanks Dana- I’ll look into it! I’m thinking a different riding position might help too- different handlebars! Trouble is that I’ve noticed a white line across my buttock so think the whole area is affected!
It sucks doesn’t it! I’m sure being heavier doesn’t help with me- but hard trying to loose weight when exercise is so uncomfortable!
I could understand if I’d cycled miles but it’s a few minutes!!
So being really good girl this week- good diet, olive oil regime and no cycling for now!
Your summer house with bike and panniers for groceries paints such a lovely picture- let’s hope there is a solution!!
Best wishes x
I bought a Hobson easy seat 2. It's great! Nothing touches your parts since it's a split seat. I can ride my bike again!
Hi Sally, using evoo, definitely works for me. I still use my prescribed steroid ointment nightly as advised, but it's only a low dose 1% grade. The potent Dermovate is only used if I have a major flare up, which thankfully is very rare. Give it a try, you maybe pleasantly surprised. My gynae consultant actually discharged me back to my GP a couple of weeks ago because he said the vulva area was under super control. I personally attribute a great deal of that to the evoo.......didnt tell him that though....lol. Good luck !!!
goggle bike seat for bike seat after prostate removal. seats vary but only sit bones rest on the seat, no contact with perineum. order on web.... no available at bike shops.
Hi looks like I have developed it after riding bikes during pandemic that &dry skin I've ignored. I have 3 now changed to upright bikes but last mo got out an old mens bike tried it 1x got the tears &sores. ouch. Sold the bike. I have a gel seat cover but string ggv broke must buy another. I have bike pants w a pad but they dont fit so I nd to lose 40# so=ride bikes! right? oh my. issues! I'm gonna try OO &buy Emuaid creme I saw an ad gonna order it n try it. Will post review here. Going to buy another gel seat cover then may try seat for prostrate as suggested thx girls!! xx jamb
Thx for idea I will try OO. Using neosporin nd to see Dr get cortisone.... Miss riding bikes. New issue for me :( I'll have to get a new gel seat cover for bike and padded bike pants old ones too small now. I will try OO and update. Also gonna order Emuaid creme try that. xx jamb
I feel your pain! I read someone bought a Hobson easyseat, so i tried one. Im so happy i did! i can ride my bike again! I have no pain after a ride now.
love my hobson easyseat. no more tearing or intense pain after riding. im so happy to be able to ride again. others ive heard of are spongywonder or spiderflex, but havent tried those. I used to tear and bleed every bikeride. not any more. So grateful!
Are you still using the Hobson split bike seat.? The reviews say that they are wobbly and unstable. Also, it says you get sore wrist and shoulders from putting weight on handle bars. One review said the back of the seat hits the back of his thighs. Please let me know your thoughts. I suffer LS and really need to solve the bike seat problem. Many thanks for any feedback.