My husband just got his first infusion Monday.
Hi Dalia how is your husband? My consultant has said Rituxan may be my next move as the WG may be breaking though the treatment. How is he feeling since having Rixtuxan? Wish him well Tara
He is doing better today. He was fatigue and had stomach problems. The only thing he is dealing with now is mouth sores. Thanks for asking. He has to get another infusion Monday. How r u do with wg?
Hi Dalia I have had ups and downs the MMF seems to be too high so consultant has upped the presdnisolone. Feeling a bit fatigued at present but it has not stopped me completing the Thames River walk 2015 today with my family and 70 others supporting Vasculitis UK to raise awareness for research into this dreadful rare diseases WG being one of them. Great day even if I am going to pay for it tomorrow. Good luck to you husband for Monday 😊
Congratulations. Hopefully one day we will have a cure. Thank you