I have the burning feet mostly the right foot.After scans and an examination the neurologist decided I have RLS.I,m taking pramipexole which to be honest doesn,t do much for me.Ropinirole was ruled out as I take other drugs that they would react with.
The strange thing for me is that standing no symptoms whatsoever as soon as I sit or lie down the burning starts immediately.
My GP is basically at a loss,can any out there help.
thanks
What scans have you had. If you have read my posts I have been through everything as the mri showed inflammation in my neck and back but not a lot so that they tell me maybe ms. Loads more tests but inconclusive. I take prefabs long but they do not have any effect so trying to get off them. Have zimovane to help me sleep. The burning is my legs from foot to past my knees but the left I'd the worst. I try leg exercise which help a bit. The burning I'd when I rest and worst in bed
I am not got a clue about the cause keys hope some one can help us. Good luck
Pregabalin
Hi David
Have you tried a body and emotion code practitioner.They are very good at finding the problem.
Some people have gone here and then back to the doctors so they can prescribe the correct meds.
In the mean while you can also massage that part of the foot that is burning as well as look up to which area in the body it refers to
Look on a reflexology chart.
I use to get this burning sensation in my foot around 2am and then massaged it till it went away.It was when my bloodsugar went down.Did help a little.everybody is different so there is no harm in trying it.
Hope this helps
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Hi David,
My husband ,Gerald (86) has had RLS for about 5 years and it is getting worse. Like you, he is ok during the day moving around, but in the evening as soon as he sits down in front of the TV or in the cinema etc. it starts immediately. Like you, he has had scans, and been prescribed Ropinorole - it had bad side effects , did no good, and he had to stop it. He has been prescribed another drug, but is postponing taking it. Most of the drugs used for RLS are strong, and they affect people differently. Gerald is now trying alternative therapies e.g. Reflexology.
There is evidence from a small patient study done in 2011 that certain kinds of exercise ("positional release manipulation" (counterstrain) can be effective in lessening the symptoms of RLS, and I believe a larger university study is under way to test this more widely. They say it offers a new approach, eliminating the need for drugs, but it is at a very early stage.
Gerald is about to arrange sessions with an osteopath to try it out. But with RLS, what works for one person doesn't necessarily work for another. We will post news of anything positive from these treatments. Exercise does seem to be helpful for quite a few people, but too much of the wrong kind makes RLS worse (apparently).
I do hope you find something soon that helps. I assume you've had your iron levels checked? (Low levels are linked to RLS). Also, if sleep is a problem, it's best to avoid caffeine and anything else (like using a laptop in the bedroom) that interferes with 'winding down'. Best wishes, Cynthia.
Hello David 65065. I take Pramapexole. It does seem to help. I take it about 17.30 and by the time I go to bed it seems to have kicked in and I'm able to sleep. Thats not always the case though. Sometimes I'm up all night unable to control my RLS. It sems to take about an hour or two to take effect. I wonder if your giving it enough time.
Hello Rose,
Thanks for the suggestion,my cousin is a body and emotion code practitioner.I will contact her and see what she recommends.
regards David
Hello Cynthia,
Gerald has my sympathy.I can relate to his problem.
Iron levels have been checked,I only drink decaff and the laptop is not used at night.I,ve tried to eliminate all the possible causes.
Thanks for all your pieces of info.
David
Hello Thomas,
Your right to suggest that I give it more time,my GP,s thoughts are to keep taking the Pramapexole and see what happens long term.
regards
David
Hello David
I am currently reading the book om the Emotion Code.Would really appreciate it if you could let me know how successful this therapy was.I am so positive that it will work for you as it has for so many others.
Looking forward to hear about your progress
Regards
Rose
Hello Rose,
Is the book The Emotional Code by Bradley Nelson,He recommends we all pray to God.Not quite up my street.
David
Hello David
Yes it is the same book.Have you read it ?
Your health depends on the decisions you make..
He suggests before you ask the questions to ask God for guidance in getting the correct answer.At least you will know what is really wrong with you as apposed to a practitioner wildly guessing and prescribing drugs which are more damaging to your body.You have to make a decision as to what is right for your body and put your opinions iro God aside.Its about getting better and healthier.
Emotions can be very harmful and can destroy us as we develop disease due to not taking stock of our emotions and getting rid of the negatives in our life.From what I have read this Emotion code has turned most people's lives around for the better.
Once you have the correct answer you can go to the doctor and get the correct script or therapy ..
You hold your health totally in your own hands..So it is up to ;you to make a decision.Good luck!
Rose
you might think this is a stupid thing to try but a lot of people are getting all night relief by having an Orgasm. i had RLS in legs arms and started iron capsules and it helped but my suggestion is the only thing thing that helped bad RLS nights. it releases dopamine. there is research online I don't take their prescribed drugs for me it was to scary but tried everything after months of no sleep good luck
hi David, for me i use a magnesium spray. After reading some reviews about mainly sports people using it and even in one case his grandma using it for arthritis and working, i decided to give it a try. it definitely worked for about 3 months but now have to keep stopping it for a short while before it will work again but its the best thing ive ever used. Hope you get some relief too. just spray a few sprays all over your legs then massage in and after about fifteen mins or so the restlessness should completely disappear for a few hours.
Hi David
I have restless leg syndrome. When I go raw vegan RLS completely disappears. By raw vegan I mean eating only raw fruits, vegetables, nuts and seeds. When I start eating cooked foods again RLS reappears again.
David, what spray, dose & where from? leave on or rinse off?
what spray, dose & where from please.
I have struggled with restless legs too, the feeling of pent up energy is so annoying.
Some time ago, I found a solution, and it has not let me down. It's all to do with the soles of the feet (cricket rubbing does help this a bit.)
But a more reliable solution is to get a sock, tie it around the foot, with the knot against the sole. Pull it tight enough that you can feel the pressure of the knot (but don't go cutting off circulation!)
Now, when you get even a hint of leg energy, you can feel it fading into the sole of your foot. Adding a slight pressure on the know from the other foot can amplify this relief when needed, but for me, as soon as the sock is tied, the energy fades away.
I only need to put it on my right foot. Maybe one on each would be even more effective?
Oh, also walking for a few seconds with the knot there ( a little painful!) really helps drive home the feeling of the knot pressure when I get into bed.