Hi, I've only just joined this forum but as a long term sufferer of Chronic Sarcoidosis I thought maybe I could say a few things on the matter. First of all I was shocked to read that one of the forum members had been told by his specialist that night sweats are not a symptom of sacoidosis. Nonsense! night sweats and indeed profuse sweating during the day are symptoms of Sarcoidosis. The lack of support for people suffering from sarcoidosis is dreadful but the truth is that not enough is known about the disease and especially amongst UK doctors. American doctors are more on the ball but then they have the money for research etc in the US. I spend my entire time fighting and arguing with health people, trying to get appropriate treatment for my various symptoms. Luckily I have an excellent respiratory specialist but that is all he is a respiratory specialist so when it comes to all the other problems I have due to sarcoidosis such as skin, eyes and nerves I have to fight to get tests and treatment as either no one believes me or they think it is up to my respiratory specialist to deal with it. He in turn kicks it back to my GP (rightly so) and at the end of the day nothing gets done as no one will take responsibility for the symptoms! It's a ridiculous situation but it boils down to money as all these MRIs and tests are very expensive and neither party wants to foot the bill. The over powering fatigue is dreadful and I can literally fall asleep in mid conversation. Also the depression that comes from constantly feeling unwell and the frustration of fighting for proper care also takes it's toll. The sweating I spoke about earlier, can not only hit at night either as I find that expending a little energy just hoovering a carpet can cause sweat to literally drop off me. At the moment I have severe pain and severe pins and needles in both arms and hands and it has taken me 6 months to finally talk my GP into allowing me to see a neurologist. I will see her tomorrow but my respiratory specialist told me not to hold out too much hope of being believed! So you see even the doctors who understand Sarcoidosis know the taboo within the health sector so what chance do we have? I was originally on high doses of steroids but unfortunately they caused me to have a psychotic break so I had to be taken off them so I am now on an inhaler and mucosal thinner to try to combat the extremely thick, sticky sputum I cough up.In one sense I suppose I am luck as I am already in a wheelchair due to nerve damaged feet (hospital screw up!) but I had to change to an electric wheelchair because with being so breathless and having nerve problems in both arms I couldn't propel myself around in my manual one. I say I'm lucky to be in a wheelchair only because without it I wouldn't be able to get around at all because of the sarcoidosis. I sometimes wonder if UK doctors have a bad attitude towards sarcoid sufferers because they think everyone only has the acute sarcoidosis and it would probably resolve itself or even come and go undetected in it's own time. I really don't know but what I do know is that they need to become better informed about this disease and be more caring when treating their patients. It's not a deadly disease but it certainly takes its toll on the sufferer and the symptoms need correct and fast treatment before they become a real problem. Keep your chin up fellow sufferers and don't be scared to be pushy with your GP. He has a comittment to treat his patients whether he thinks its serious or not. You have a right to demand to see a specialist or to get a second opinion but do remember that not everything is linked to your sarcoidosis so if you develop a new problem make sure you get it checked out properly and don't be fobbed off with your GP saying it's just a symptom of your sarcoid because it could be a different health issue altogether.
I am suprised to find there is only one comment on Sacoidosis. I have been unwell since Novemeber 12 and have had constant blood teste, xrays and scan, finally a CT scan showed enlarged nymp nodes on my lungs, I had a biospy with the camera down my trhoat a month agao to be told that this was insufficient. I am now waiting on a call to go in for a more invasive proceedure. I wonder what my diagnose will be at the end of all of this. I have many symptons pointing to Sacoidosis, with the latest being blurred vision for which I am now under the eys hospital.
Hi Linda, Sorry to hear you are having so much trouble getting a diagnoses. Unfortunately there are only 19 out of 100,000 people in this country with Sarcoidosis so hardly surprising that the doctors aren't up to scratch with their diagnosis. I'm surprised that the lung biopsy did not confirm the Sarcoidosis (maybe the technician wasn't so good at his/her job!) What is the more 'invasive' test they have lined up for you? I suppose I was lucky (if you can call it that) in the sense that I have such chronic Sarcoidosis that my ACE blood test was off the scale but my specialist did say that many sufferers don't show anything in their blood test! Weird eh? I know have chronic carpal tunnel syndrome caused by the sarcoidosis so it just shows you how it hits your immune system and causes so many symptoms. I'm sure you are finding as I am, that you have to fight to be heard and believed. I get the GPs nodding and smiling as though I am a nut so I no longer confide in them. My spine and joints are so terribly sore right now too and yes the blurred vision is a real problem. Don't be surprised if they don't find anything when you go to the eye hospital. It is so hard for anyone to actually see the sarcoid sometimes even though it is really there. When I was first diagnosed they thought I had lung cancer and they also had to discount lymphoma because the sarcoidosis causes the lymph glands to swell so much. My chest x-rays looked shocking when I was first diagnosed, little wonder they thought it was cancer. Don't worry if they decide not to give you any treatment because in many people the disease fizzles out on it's own. Chronic cases are treated with high doses of steroids which carry their own problems such as bone thinning. The doctors also might give cancer killing drugs like chemotherapy ones if the steroids don't work . This is something I am facing at the moment and will be seeing my specialist this coming Friday so will see what is happening. I'd really like to keep in touch if that is okay with you and would be more than happy to offer any support I can as I know how scary it is at the beginning. This goes for anyone who is awaiting diagnoses or has been diagnosed.
Hi Alisa,
I am having a mediastinoscopy, its basically they are making 3 incisions in my neck.
I am back to the eye hospital tomorrow as I am now under the Uveitis clinic.
In all honesty apart from the hnaging around in between results or lack of I have been dealt with quite quickly, but this is now all through the hospital, I have not been back to my GP since see the rheumatologist.
Oh ive just had a call i;m going in on Sunday.
Hi Linda,
I'm really sorry I meant to get back to you before you went in for your procedure. I'm thinking about you and wish you all the best. Let me know how you get on when you are feeling up to chatting. I went to my appointment on Friday and have been told that my lungs are now permanently damaged so will probably be on steroids and other meds for the rest of my life. I'm also about to start on Hydrochlorquine for the nerve damage and joint pain so fingers crossed it will help. Also had bloods taken as the specialist suspects that the Sarcoid is getting bad again but he will write to me when he get the results. I couldn't believe that after 6 weeks the Neurologist had still not been in touch with my specialist with the latest test results! It's just a joke the length of time they take to communicate with each other. I could tell my specialist was not happy but hats off to him for keeping his cool. Of course he is unable to start any real treatment without the full results but he did decide to try the hydrochloroquine in the meantime. Anyway enough about me. I'm really hoping that everything turns out good for you and that you get a proper diagnoses. I always think that people feel better when they have a full diagnoses and know what is happening. It is scarier not knowing and makes you feel worse I think. Feel better soon and take it easy. Hopefully we will chat soon. Kindest regards, June
Hi June,
Thank you for your kind words.
My op got cancelled at 4.30 on Monday, but I was told that evening that it would be carried out Tuesday afternoon, which it was. It wasn't 3keyholes it was a 3" cut just above my breastbone. There is no dressing on the would just a plastic coating so it is not a pretty site. I was sent home yesterday morning, but got this horrid annoying coughing which is making it painful. Hopefully get my results on Wednesday!!! Oh so sorry to hear what you have been informed re your lungs, is this just from Sarcoidosis? That's awful re your results and communication. I must say I have been luck with being kept up to date etc.
Today it all seems to of hit me, whereby I've been quite relaxed about it all....but now it seems like the 'real thing'
Actually how did they discover you had sarcoidosis, did you have a biopsy and which type. Also how long have you had it?
Kind regard
Linda
Oh you poor thing! First to have it postponed, which is nerve racking in itself, and then to find that you have a 3" wound. That's dreadful. They should have talked you through what was happening way before your op. Just not acceptable! I'm sorry it's all suddenly hitting you now too. I doubt the messing around you had over the weekend has helped either. I know it's really worrying for you having to wait for your results too and no amount of people telling you to 'think positive' will help. People who have never been through something like this just don't get it. The good news is that the majority of people who get sarcoidosis don't need treatment and it burns itself out often never to return. For others there is treatment and it is not a life threatening disease unless it has damaged major organs like the heart or lungs. I know it is worrying for you because you don't have a diagnoses of anything yet and all I can say is to try and not think of what it might be. No matter what the diagnoses you sound like a fighter and the medicines today are far superior to what they were so everyone is in with a great chance nowadays. When they first thought I had lung cancer, it took my GP half an hour of stuttering and coughing his way through trying to tell me. Not to say his mobile phone kept going and he informed me that he was waiting for a relative to tell him their results! So much for keeping his private life separate from his work! Anyway I just took it to be lung cancer and was told I would have a lung lavage and biopsy of my lungs and glands so I thought 'fine, they are doing something at least', but as I left his office it just hit me like a sledge hammer and I have to say I burst into tears and was whisked away into a side office to compose myself. So I totally get how you must be feeling right now. To be honest, it was his humming and hawing that got me more than the prospect of fighting lung cancer. I just wanted to know so I could get on with it. However I went for my biopsy and during the procedure my heart went into SVT (supra ventricular tachycardia) so they had to get an ambulance and ferry me 2 minute (yes I'm serious!) along the road to the old hospital because the new one did not have the facilities to deal with me. My poor daughter was yelling at them to do something for me - the poor thing thought I was going to arrest and these idiots didn't know what to do. I got sorted out eventually and was told that the biopsy was a definite positive for sarcoidosis as was my ACE blood test which was apparently off the scale. (It doesn't always show in a blood test in sarcoid patients though, so if it's not showing in yours it doesn't mean that you don't have sarcoidosis. I saw the specialist who said it was the worst case he had ever treated of sarcoidosis, but at least it wasn't lung cancer! Yes, the damage to my lungs is totally due to the sarcoidosis but it is probably because they now think I have had it for a lot longer than when it was diagnosed last March/April.I cough a lot and often have very sticky green sputum (sorry that's a bit too descriptive!) When it was at it's worst I had a rip roaring chest infection too. In fact the chest infection was what drove me to the doctors. I'm not good at going to the doctors but I was so breathless I just had to go. First I was sent for an X-ray which was quite shocking in the fact it was very obvious there was something very wrong, hence why they though it was lung cancer.After that I realised I had skin lesions and eye problems. I've actually got a little sarcoid cyst on the white of my eye. I lost loads of weight very suddenly and I started to lose loads of my hair. I used to sweat profusely (something I've never done in my life). and the slightest exertion would cause the sweat to run off me. Like hovering my flat for example. I was also told that the lymph glands in my chest are massive and I have to say I get severe pain sometimes from my glands especially the ones in my neck. It is like having a severe dose of the mumps! Although I have officially had sarcoidosis for 1 year now it is possible it has been there since 2001 because I had 3 bad bouts of severe chest infection one after the other but as I was living in China at the time I thought it was due to the dreadful air pollution there. What about all your symptoms. What did you start with? How were you feeling at the beginning? Did you think you were just maybe run down or did you think something serious was going on? You try and keep your chin up Linda. I am thinking of you a lot so don't think you are alone. I hope you have someone to lean on at home. Contact me any time even if it's just because you are feeling a bit down or a bit worried. I'm always on the computer so will pick up any message.
Kindest regards,
June
Hi ... I was first diagnosed with sarcoidosis in 2001. I was told by the doctors it would go on its own and never come back (which was not the case) since then I suffer from other symptom flare up constantly but I never get much feedback of the doctors. My tattoos and scare tissue get sore nodules in them and im tired almost constantly (for which the doctor put me on anti depressants, which made me exhausted and unable toget out of bed ) . I get a rash on my feet which on some occasions does go elsewhere. Also accompanied by the usual shortnes of breath.the achy jounts . I also get a lot of headaches. The only test I have ever had done is a chest xray with my original diagnosis and one this week. The doctors kept giving me cream for my rash saying they didnt know why my tattos were getting lumps in them and saying it was not a symptom of the sarcoidosis. Obe doctor even said that my diagnosis in 2001 was unclear because I only had xray and blood tests. I feel like a hyper condriact and the doctors wont listen ... any advice ???
Hi Debra, I still havent been diagnoised - with anything.....as such. But the only people that got things moving for me was rheumatology who then passed onto respiratory then thisngs moved very fast.
Hi Debra, I'm really sorry to hear how dreadfully badly you seem to have been treated so far. This is my argument exactly - because a lot of the doctors really don't know enough about Sarcoidosis they don't know how to treat it. You really need to get pushy with your GP. It is your right to ask and be seen by, a specialist which you definitely need to do. While your sarcoidosis is cycling it's way in and out of your life and going on without treatment there is the very real risk of permanent damage. Whether this damage is to skin or internal organ, depending on what it is targeting most. I know it may seem like I am just another Sarcoidosis sufferer who is only going on her own experience, which to a point is true, but I was a Registered General nurse for many, many years so really do know what I am talking about. I am shocked to hear that they only did an X-Ray to confirm diagnoses. This is not enough. You should have had a lung biopsy to confirm. Sarcoid lumps are very much a symptom of Sarcoidosis. My God it makes me so angry to think that your doctor is so arrogant as to think he can tell you all this on the strength of a chest X-Ray. Not every Sarcoidosis sufferer shows an elevation in their ACE blood test The blood test measures the levels of angiotensin-converting enzyme. They are looking for a raised level. With me it was off the scale but very often it doesn't even show up in a Sarcoidosis sufferer so it is not always a good diagnostic tool. If it does show raised ACE then they can monitor when your Sarcoid is at it's worst. Depression is part and parcel of it because of the fatigue and the fact that your immune system is fighting your body and not fighting disease as it should. Anti- depressants are not necessarily the answer as they carry their own side effects so unless you are getting a lot of benefit from them I would knock them on the head. I think your depression is more down to the fact that you are not receiving the proper treatment and support you need and that is only going to happen if you put your foot down with a heavy hand and insist you are referred ASAP to a respiratory consultant. I say this because Sarcoidosis attacks the lungs first and foremost and as you are suffering from shortness of breath you definitely need this addressing. From there the respiratory consultant can refer you to a skin specialist if need be. You sound as though the doctor is blaming you for having tattoos and that is why you have a rash. That's rubbish. The Sarcoid rash is horrible and can get very uncomfortable and unless he gave you steroid cream then it's not going to help. If your doctor thinks it's not Sarcoidosius then he should be sending you for proper tests to rule it out. If you are just not getting anywhere with this doctor then change your doctor. You can do this, it is your right but I would make an appointment with him first and insist that you are referred. He has to do this and you can tell him so if he is difficult with you. By law he cannot refuse you. I honestly think, by what you have described, that he will be eating humble pie when you are diagnosed properly. The thing is, what if it isn't Sarcoidosis? Shouldn't he be finding out what it is? Doesn't he worry about being sued if you become seriously ill because he didn't treat symptoms that indicated something was wrong? No, Debra you've got to pull up your big girl pants and face your GP head on. Don't shout at him or be rude, even though you could be forgiven for both given his attitude! Write down everything that you want to say to him. All your symptoms and your worries and take the paper with you when you go to your appointment. Don't be fobbed off and if he uses medical words you don't understand ask him to explain clearer in easier terms. It is understandable that GPs don't know enough about the disease because it affects only 19 people in every 100,00. It is true that for a vast majority the Sarcoidosis will burn itself out within 1 - 4 years but for other like myself steroid or other treatment is necessary. Steroids carry their own serious side effects and are not to be prescribed or taken lightly. If your doctor knew about Sarcoid he would have realised that in some people Sarcoid appears to burn itself out but can reappear. You can go into permanent remission and never suffer again, it can keep going into remission and then reappearing again or it can be on-going when it does not respond to treatment. This last one is the most aggressive type and is the one that causes the most damage. Treatment can take many years and specialists like to have at least 3 years to try to put the Sarcoid into remission but it can taken much longer. The disease isn't a killer but it can leave damage in it's wake if left untreated. I hope this has helped you Debra. Please get back in touch if there is anything I can help with or explain for you but first and foremost, please make an appointment with your GP next week and spend this weekend writing out what you want to say to him so you can be clear and calm when you go to see him. Good luck, Regards, June
Hi Linda, Sorry to hear you still have not had a diagnosis. I thought after the biopsies they would have had an answer for you. Were the biopsies negative or inconclusive? It is possible that you were suffering from Sarcoidosis but by the time they got round to testing you it has calmed down and isn't registering. Please keep an eye on your health and get back to your GP if anything flares up. Hope you are feeling better than you were. Kind regards, June
Hi June,
It appears both biopsies have been inconclusive, hence I have to wait for the 8 week period for the cultures to grow.
I am still under the hospital so we should get to the bottom of it.
But I think you have a very good point, in as I feel that I did/do have sarcodoidisis, but now they appear to be thinking possibility an element of TB, hence they are treating that first as would be harder..
Hence it is possibly both.
Kind regards
Linda
Hi everyone I'm new to this forum hope you all don't mind that I am 63 yrs old. I work as a nurse and was diagnosed with Sarcoid in 1997 but had had an "episode 11 yrs before that, but it went undiagnosed until1997. Recurred twice and I am now stage 4. This may sound gloomy, but I did had 11 years symptom free until I got a Psuedomonis infection 5 yrs ago. I agree that GPs do not understand the effects sarcoid has on a person so they tend to treat or even not treat depending on their knowledge. I believe that my health has suffered due to poor management by my consultants/ 5 new ones over the years/ and my previous GP. I am wheezy just now with a cough and fever, sore throat, enlarged parotid gland in front of my left ear, chronic sinusitis, bronchiectasis, scarring in both lungs and I get recurring bronchitis. Recently developed skin problems, red burning rash eczema both feet, legs and face following a collapse with Clarithromycin in February. My FEV is about 220 and I am frequently breathless. Now you might say OMG but I force myself to keep on working. Cannot afford not to. My GP did not acknowledge the multiple symptoms. I am back on steroids and antibiotics. I feel down just now but reading this forum gives me the feeling of not being alone with this illness. My daughter is wonderful but I see the worry on her face every time I get so unwell and it breaks my heart. I was on long term antibiotics for about a year and it made me have a better quality of life but the latest consultant told my GP not to give me them unless I was ill, after the severe reaction to Clarithromycin, I feel that if I had been on them this episode would not have happened. I hope that you all go into remission soon. Like all of you I have read widely about this disease but knowledge is no good unless your Dr or Consultant cares enough about you to try treatments. Maybe I've been unlucky with mine. Love and good wishes to everyone
Hi Helen, a big welcome to the forum. I'm 58 so don't be worrying about your age and you are definitely not alone. I firmly believe there are far more suffereras out there than get diagnosed because GPs don't think to test for it perhaps believing that their patient just has a chest infection, or skin problem or their favourite one "you have a virus"! I'm sorry to hear you have had a rough time of it with Sarcoid. If I had not been in a wheelchair with other health problems I would have carried on working too. Would not have had an option as the government thinks you should work unless you are dragging your coffin behind you! I too have had Sarcoid a lot longer than the recent attack which started in 2011 and is refusing to go into remission. I can't take high doses of steroids as it causes severe paranoid events. Unfortunately I am one of those people who is sensitive to most medications so it is always a bit of a nightmare when I am put on anything new. My specialist has decided to keep me on low doses of everything to avoid the side effects but it means that I'm not getting much benefit from the meds. I can see you GPs point of view not giving the antibiotics unless you have an infection as eventually you would have built up such a resistance that he would be stuck for what to give you. The antibiotics wouldn't have stopped your current attack but you should have been on long term steroids. Large dose first with a reducing regime and then finally a maintenance dose. Like you my lungs are permanently scarred so I cough a lot too. The sputum is so sticky and it is so difficult to expectorate it. You kind of get a little insight into what these poor cystic fibrosis sufferers have to go through. I look at my disease and always think there are worse diseases out therewith people suffering much more. Although it is hard to think this way when you feel like you are coughing up a lung! My daughter is my main carer and she too tries to hide the upset she feels when I am feeling at my worst and of course I am always trying to hide it. It's the frustration at having to fight for everything that upsets me most. Every time I go to my GP it's the "there, there" comments and the pat on the back of the hand like I am some neurotic person looking for attention. If I lose my temper I get told to "calm down" and they offer me anti-depressants which they are promptly told what to do with. I'm not depressed, I'm just really angry for the shocking treatment we get. I can tick every single box for the symptoms of Sarcoid and add a few more too. At the moment it is attacking my nervous system so I've been put on Hydroxychloroquine but it's not doing anything for me. The doctors seem to forget it's not just the Sarcoid that is the problem but all the other problems it causes. I even have stress incontinence due to the constant coughing but no one addresses this problem. For this one I got "Really? How long have you had that for?" Every few weeks I get several days of nose bleeds. No warning just whoosh. It's embarrassing if you are out and it happens. I don't mean to be awful but I see the adverts about people being told they have cancer and about the need for MacMillan nurses. They do a fantastic job but I wish people would remember there are other dreadful diseases that are just as bad as cancer and the people need just as much support. You and I obviously have the chronic type of Sarcoidosis and will probably never get full remission so all we can do is make the best of a bad lot. I've started to keep a diary and would like to eventually hand it over to my consultant who has a great interest in treating Sarcoidosis. Perhaps the things I tell him will help the treatment of fellow sufferers or even make GPs a bit more aware of the problem who knows? In the meantime I just tell people to be pushy with their GP and fight to be heard as it is the only way most of us will ever get treatment. Try and keep your chin up Helen and remember you are not alone and I'm sure I speak for everyone on the forum when I say we are all here for you and each other. Keep in touch and feel free to have a good old rant here on the forum when you are feeling down, it might help make you feel better. It's not moaning it's just helping to get it off your chest (pardon the pun ha ha!)The same goes for everyone who joins the forum. You know what they say "A problem shared is a problem halved". Kindest regards, June
Hi Linda, TB? really? Have you been exposed to TB or visited a country where you might have picked it up? Have you never had the BCG vaccine? (although it only covers you for 10 years and most people don't get it renewed). TB should be easier for them to diagnose than Sarcoidosis. I still have a gut feeling that your sarcoid had probably peaked and was calming down when they did the tests and that was why it didn't show up properly. I know how frustrating and worrying it must be for you not to have a proper diagnosis but try not to let it get you down and don't let them make you feel as though there's nothing wrong just because they can't give you a definite diagnosis. It's not the easiest disease to pin down unless it is doing a total song and dance with your immune system not to say it can mimic so many other immune problems. At least they will have been able to discount lymphoma which is probably why they did the lymph biopsies too and that's great news. I've got my fingers crossed that your sarcoidosis has burned itself out without treatment and that you will continue to improve. Maybe keeping a diary of your symptoms - what they are, how you feel, when the symptoms are at their worst etc will also help the doctor diagnose you better. You need to keep a close watch on your health even if it is going into remission as there is no telling when or if it will flare up again. Maybe you will be one of the lucky ones and never have another flare up again. The aftermath of a Sarcoid flare up takes ages to get over. The fatigue itself is one of the worst things to overcome I think because when you are tired everything is worse and this is fatigue not just tiredness. What are the next tests they are going to do and when? If they are thinking TB they need to get a move on so don't be shy in telling them to hurry up. Did they even do a quick BCG scratch test? Keep us posted on how you are getting on and come and have a rant if you are feeling down. Kindest regards, June
Hi June,
Yes that seems to be the latest thing and a very big shock to hear it.
I was in Egypt for a week in November but it appears all the test for that are negative.
I really think it was Sarcoidis to beging with as all the symptons very similar.
The TB is now what they are looking at and treating but they havent ruled out both as yet.
Since I have been on the precautionary TB medication I have kept a diary everyday.
I am going back on June 26th whereby my cultures should of produced some results, meanwhile I have to go to see the nurse every 2 weeks.
I have had the TB tets to see if I have actually been exposed to it at anytime.
I have had 38 blood tets so fsar...so they have been on the case!!!
Kind regards
Linda
Hi June,
Yes that seems to be the latest thing and a very big shock to hear it.
I was in Egypt for a week in November but it appears all the test for that are negative.
I really think it was Sarcoidis to beging with as all the symptons very similar.
The TB is now what they are looking at and treating but they havent ruled out both as yet.
Since I have been on the precautionary TB medication I have kept a diary everyday.
I am going back on June 26th whereby my cultures should of produced some results, meanwhile I have to go to see the nurse every 2 weeks.
I have had the TB tets to see if I have actually been exposed to it at anytime.
I have had 38 blood tets so fsar...so they have been on the case!!!
Kind regards
Linda
Hi June it was really kind of you to reply my post to this site. Just to discuss this illness openly is a relief as most people either are scared its infectious or don't understand you are so ill, because to them you look ok. How are you coping? Did you give up working because of poor health? I try not to be off work but today I was sent home a patient was concerned that I might have had to attend to him as he saw me coughing a lot,so I can probably expect to get sent to Occupational Health again and then a meeting with HR and Management. It's so stressful.
To Linda Hi, hope it is not sarcoid TB is awful but is curable Hope the meds are working
Love to all Helen
Hi Helen,
Well in all honesty after 6 months of being poorly I just want an answer really so I can finally put a label on it as such. Lind regards. Linda
Hi Linda, your right of course, it's often not knowing what is wrong because it cannot be dealt with until you know what it is. Ps Sorry I just clicked the report button trying to catch my computer mouse as it slipped off my laptop Best wishes to you too Helen