I’m sorry for posting again. but I’m terrified 
I’m still waiting for my ultrasound on Monday but my anxiety is out of control.
my lymph nodes are still up and all of my googling makes it look like my igg level of 33.2 must be an old infection. I don’t know what to do. I’m was under 10.0. my test was done after most symptoms had gone. just swollen lymph nodes which seemed to pop up after most other symptoms went.
I don’t even know what my post is going to achieve I’m just so worried I can barely sleep or
i had mono for 7 months, i had all kinds of tests done thinking it was cancer or something more serious, but trust me, it were something more serious, your doctors would have known within a few simple tests. i know it is hard go ease anxiety, but with mono the numbers go up and down, igg & igm included. symptoms can come and go like they did for me, but in time the virus goes away.
Thank you Clayton. I've had heaps of blood tests, all normal. chest x-ray which was clear. ebv and CMV both positive for a past infection. I was tested about 9 weeks after everything started. doctor doesn't know what's wrong with me. she's sent me for an ultrasound on my lymph nodes, that's booked for Monday. in the meantime she's going to talk to the head doctor at the surgery to see what he thinks. but I am so terrified not having any answers. I feel like going to hospital so they can sedate me and find out what's wrong but that's not really an option as I have 2 young children :(
did you have swollen lymph nodes in groin and armpit? When did they pop up? that's the part I'm most worried about. they only came up recently but I had stabbing pains in them for weeks before they
sam,
i hope this will help ease your mind! im going on 2 years this month of having ebv!! i like you had stabbing pain in my groin and both armpits! i also had terrible neck pain in the back! after drs initially telling me i also had a past infection i saw an internal infectious disease dr who looked at my results from other drs and said i def had mono and was in the acute recovery stage because my #'s were soo high! i also had a ton of throat issues that was so bad i had to see an ent dr who scoped my throat because i was sure i had throat cancer! the dr told me it was from the mono and more the likely from my lymph nodes that were swollen in the back that made it hard to swallow and felt like i had a lump in there! i'm much much better , but even after 2 years i still have symptoms and most of have gone away but, when I'm really tired or stressed my neck pain comes back! i also had pain right under my left rib cage! i would highly recommend taking a really good multi vitamin! also when i went to the specialist she tested my b12 and came back very very low so ive been on B12 since! my point here is ive noticed alot of people through this forum that have had the same issue and that and can cause alot of weird symptoms in your body! might be worth having them test you! since taking the b12 oh, and i take 1.000 mg vit C it has really helped!
i know it feels like something might be terribly wrong, trust me i planned my dang funeral a dozen times! you will be ok! stop googling as hard as it is!!! take a deep breath and it will all be ok!! i hope this helps you a little!!
Hi Sam, I was diagnosed with Mono a year and two months ago now and despite being better than I was, I still get symptoms flare up all the time and really have to pace myself still. I was like you, so scared the first 6 months as I couldn't understand why I was so ill. I was in hospital for ages and doctors were testing me for all thoughts of things, such as lymphoma as they couldn't believe I was so ill from glandular fever. I had ultra scans, Endoscopys, I saw specialists and everything came back as fine, the only thing positive was glandular fever, It's crazy how ill this virus makes you but honestly don't worry because it will just be glandular fever. My glands used to be the size of tennis balls constantly and although they are still swollen they are nothing like they used to be. My dad had glandular fever 20 years ago and when he gets a cold or anything they swell up huge, think its all just part of having glandular fever even when you have recovered. But try not to worry! My advise is eat super healthy, rest as much as possible, don't drink alcohol and take loads of vitamins. I also take CBD oil which helped so much with my recovery! Hope this helps and you feel slightly better soon. J
Thank you very much for your reply. I am glad to hear you're feeling better. I'm worried because my number is low :( it's such a scary time.
Thank you very much for your reply. I really hope you're right! my doctor has also mentioned lymphoma which is probably why I'm so scared :(
Hi Sam,
So sorry to hear you have been feeling so terrible, it truly is understandable with this virus to feel so frightening and panicked at times. I went through the same and it was awful Sam. Like you and many others, I went through the horrible cycle of trying to google things looking for some reassurance and only finding the scare stories.
Remember Sam that the vast vast majority of people who go through this virus get well again - it's only the tiny tiny tiny percentage of people with complications who post, most people who had the virus and got well never bother posting their recovery story!
And you've done all the right things by getting tested and hoping very much that the ultrasound results can put your mind at ease. Remember too that it is SO normal for blood and other test results to show 'normal' or 'past infection' with this thing but you can still be going through the illness and the effects of it.
I wish it was easy to switch the mind off from worry and running away with different thoughts - but most definitely Sam I want you to take real reassurance from the fact that most of your tests have shown encouraging results - that is a good thing although I know it's frustrating when not able to get that firm definitive diagnosis - if it had been anything more serious than mono then these tests almost certainly would have shown some abnormalities.
Hoping you are feeling a bit more settled by the time you get this, anxiety is an awful awful thing - sometimes just going back to the simple things like deep breaths and telling yourself out loud 'It's okay, I'm okay' and 'This will pass' are simple but really good techinques that have helped me a lot.
Thinking of you Sam and believe me you WILL get through this and be well again - I truly believe that in my heart of hearts.
Craig
im sorry
i understand how you feel
i was convinced i had; well- everything!!!!
its all a big lie
this virus is the devil and it deceives your mind
anxiety is running high as it is a part of this stupid virus!
(im bitter)
ive dealt with this 10mos now
its horrific
the fear it keeps you in!
its all by design
eat really well if you can
nourish your mind*
try to go outside/walk a little
throw the ball for your pup
it helps
its hard to control your mind when something is F•ing w/ it!
but you gotta fight
its draining!!!---
i actually pray when im being harassed by this foolish virus!
i also write down what i want and who i am-
try to remember who u are
think about what youre going to do when this drama ends (ugh feels like forever)
its hard to relax
this thing is so insane
i wake up and wrestle with it daily
ive cried
worried
etc
its so annoying
i just got an MRI of my brain as i wanted to make sure i had no diseases
as i was convinced i did*
well my MRI was clear and i panicked for nothing
this thing drains you
emotionally
mentally
in all ways
its so so evil
it stalls healing too
im praying for all here-
try not to worry (easy to say i get it)
its like praying for something bad to happen.....
this is a difficult journey.....
hope you can try to ease your mind somehow.......
healing prayers to you!
My lymph nodes, 3 in my neck, are still not back to normal at 17 months. They are getting smaller by the week now. After the 12th month the ones in my groin and under arms vanished. With every cold or sinus infection the ones in my neck got larger and still do. Try not to worry until you actually have been diagnosed with something else. Your lymph nodes are doing their job as they are supposed to. Some people take longer to get better and stress which you have makes it even longer. Hang in there and think positive. Sending prayers your waychris
Clide i am not sure if i could handle this 17 months i am depressed anxiety is crazy i just started taking anxiety medicine today actually i still fee tired and week and can not breath. They did a pulmonary function test for work and it was only like 40% i think 70% is passing so now i am going to a pulmonologist. I can not win it is always something and like i have said before this i have always been super healthy.
Star the way i look at it everyday you wake up you have won again and eventually the virus is gonna get tired of losing and give up. I am not sure what symptoms you still have but you for sure have less than when you started so that is a win too. With every win you are a step closer and your body is gonna win more than it loses. I have faith in all yall to heal and feel better. Also your body needs to know what better is do not settle for ok today. You are better than the 3rd month and that is "better" We can all do it mentally and physically.
Thank you Craig. you always encourage me and help me to feel better. I'm very scared of what tomorrow will reveal. I will update you (if the radiologist tells me anything), if not I'll update on Tuesday when I go back to the doctor. I hope you're feeling better and your blood test results were ok and that the headache has long gone xx
Thank you very much. I hope you are feeling better. if this is mono it is the most horrendous thing I have ever experienced. I have been in 2 induced comas for 8 days each, and the recovery after those was horrible, but I still think this illness is much worse.
Thank you Chris. how far into it did your lymph nodes swell? mine didn't start popping up until after 4 weeks which makes me worry that it's something else (like cancer)
Good luck Sam for the start of the week, hoping there can be some good news at last for you and something that really helps take the pressure off you.
Thanks for your best wishes for me too, been feeling a bit down and upset over the weekend, my back has been bothering me as well as headache and sometimes it gets a bit much for me. Hoping for a better week ahead for us all.
Still thinking of you and believing better times are ahead for us all, thanks to our good God.
Craig
Thank you Craig. I hope you're feeling a little better today. could you go for a massage? maybe that would help? I had my ultrasound this morning. the doctor wrote on the form "+/- fna (fine needle aspiration)" and I was so worried about them doing it. they did the scan and I asked her if it looked ok, she said she couldn't tell me anything until she went and spoke with the doctor there. they both came back into the room and obviously I was terrified, but he said everything looks normal, no signs of cancer. they are the lymph nodes that swell to fight infection.
now I just need to find out 100% what the infection is. I am beyond tired. it's only 11am and I want to go back to bed but I can't because I have a 2 and 3 year old :( back to the doctor tomorrow to see what's next.
That is good news to hear to calm you down some knowing it is not cancer. Always is scary i thought i had it to for a while. Honestly did not know what i had so i was thinking everything possible but as the test came and went and got the results they never found anything bad or crazy. Just got to know it takes time..a lot of it obviously..
Thank you. were you the one who's lymph nodes didn't swell till 5 months?
I started feeling bad middle of Dec 2017. Sore throat, tired and just a weird overall feeling. The tenth of Jan I noticed a bump on my neck, still feeling bad thinking i just have sinus infection( which i have usually twice per year) and just need antibiotics. 3-4 days later i get a call and they tell me to go ahead and finish the antibiotics that i have reactivated mono. After a couple more days I get the rash from amoxicillin and feel 2 more nodes swollen on my right side of neck. The original one is still up but about half the size it was. I was told if may never completely go away...The first 6 mos i definitely made it much worse by stress of thinking i'm dying, no rest, and negative thinking. I could not miss work with 2 girls in college and i only missed 2 days last year. So as you see i helped feed the monster. Today, i feel like 90% which is awesome! I urge everyone to click on my name and READ MY STORY. Only a very small amount of doctors know just how devastating this ebv virus can be. Thinking of you all and i can promise you will feel better, but it will take time to run its course. Feel free to question anything in my back storychris