Scared

i know many ladies has most of my symptoms but since my last cycle this is getting really scary is there any ladies that has neurological symptoms with this change? the off balance dizziness is worse im having very floaty feeling lately and numbness and tingling in my head what is this? and when i start panicking it intensifies it and last hours. my legs and arms off and on feel heavy and weak but it isnt constantly last a few min then stops. i have brain fog alot lately does anyone know if these is symptoms of low estrogen? i dont know how much more i can take of all these scary bizarre symptoms god if anyone can relate does this ever really get better? my labs was all normal end of September was even checked for anemic im not all was good but i dont feel normal and its causing much anxiety.

Hi Pamela, 8 definitely have all those symptoms and I have had them for over 3 years now, I feel like I’m one if a kind with them they are so scary and I personally don’t know anyone who has them just like me or who can relate.. It has not gotten better for me it just keeps happening every single month I get leg and arm weakness head mouth arm numbness and a feeling like I can’t move my mouth and arm on one side of my body, I get very blurry vision and lights in stores will bring on the numbness immediately so much so I have to run out of the store, it all leads to a really bad migraine to where I have to go lay in a dark room and it will intensify until I have sharp stabbing pains either above my right eye or left temple .. One scary episode I could move my left arm or talk during the migraine attack.. I live in fear that same migraine will return and I’m sure it will.. I just feel like something is really wrong, I had an mri it was ok, ive had lots of blood tests the things that show up in my blood is positive very high antibodies for both RA and thyroid both autoimmune.. I’m not sure if ive had them both for years and then started to feel off going thru meno and I’m not even sure I’m going thru peri meno only suspect because in 48 so who knows I haven’t any periods to go by because of hysterectomy with ovaries still in me, so just an educated guess thats whats happening.. In frusterated and burned out physically and mentally from all this and have so many awful symptoms that I never see anyone else with unless of coarse they are walking around in silence, I talk to woman and they just say yes it was rough or no I never had any symptoms.. Its all just so bizarre to me.. But I don’t know what to say except I have all of those neurological symptoms too, and I haven’t found anything to help it , I feel like I will be like this forever!! Sorry I’m no help with reassurance but I’m with you …

thank you for replying its so scary ive had a meltdown three times today all this is just too much to deal with it’s getting to be a constant thing with the numbness feeling in my head and face. last night was a very bad episode i got this pressure intense no headache and numbness was intense and very lightheaded floaty lasted hours but never has went completely away. i was going to go back to ER but they arent much of a help like my dr which im in the process of finding a new one. it scares me i was scares stroke but no headache and no weakness on one side and no face drooping. the numbness isnt where its completely numb i still have feeling in the areas just feels numb. god how do we do all this

all menopause symptoms. I’m 51 and can related to all your symptoms too. my labs also normal. don’t be scared. many of us ladies are going thru the same thing. hugs to you it passes. xo

hi Gypsy & Pamela - i am exactly the same as both of you, except i am 62, 7 years post, but my crazy symptoms started about 3 years ago - i totally understand how you feel about being the only one experiencing these symptoms - i even had my best friend say to me the other day…do you think your symptoms might be psych somatic? code for all in your head - nobody believes me, nobody gets it except this forum - my labs are all fine - i find it interesting Gypsy that you tested positive for RA, does that mean you tested positive for ANA? i had tested positive for ANA, but after going to Rheumatologist & getting more bloodwork, he said i dont have auto immune, but will always test positive for it - its weird that you & i have all these weird neurological issues - mine are tingling, burning, electric shock etc. even though my thyroid checks out, i wonder if i have hypothyroidism - its all a friggin mystery - i just want to live a normal life again without this suffering -

Hi ladies, I also developed several neurological symptoms, mainly numbness and tingling, zapping feeling through my head sometimes, and hot flashes that I developed this year only, although I have been without period for 4 years now. I visited 2 neurologists, and since I do not have MS or something worse, God forbid, I simply decided to try to calm down, ignore most of these, and not investigate any further. But - pleasant it has not been, to say the least.

Yes to all that! You are going to be okay. That stage for me was the most awful! my arms and legs often felt like lead, so heavy! Dizzy, yes, I couldn’t even drive it got that bad.
The good news is that it will pass. Get on some good vitamins, lots of vitamin D, if it is dark and wintery there.
I took to my bed through a good part of that stage, it was so depressing. I couldn’t think, could barely move, I was so tired of everything.
I still get my period, I am 50 now. I feel very close to normal except a few bad days here and there at present.
I am terrified of what might happen after my periods stop, but will enjoy the relief from peri symptoms that I have had the last couple of years so far.
You will come through it. Don’t let it get you down. Try and stay away from any stresses and start just going with it. Bad day, stay in bed…who cares. Good day? get as much done as you can.
Hugs!

Just to add that I am so happy to see that I am not the only one who started developing worse symptoms several years after period stopped. Not that I am happy that you have all this, debra16694, not at all. But it is good to know one is not alone in this suffering. Yes: tingling, numbness, electric zapping like shocks in my head, weird hot flashes, and yes, all this 4 years after last period. Also, blood work normal. I am trying to wait the damned thing out.

thank you all im sorry you ladies is going through all this but im so relieved its not just me, ive also noticed many is post maybe im almost to the end god i can only hope prayers for all of us and again thanks for replying this is so dang on hard.

hi lana - no, you are not alone - there have been few “post meno” girls on here, but some have left the forum which i take as good news since their symptoms must have improved - the only explanation i have for experiencing this so late in the game is because i am chubby & am considered “estrogen dominant” - might also explain my incredibly achy joints, tendons & ligaments - yes, i have the weirdest hot flashes too - so over it all really -

do you think its just anxiety cause it can cause all thise symptoms as well maybe yiur worrying and not realizing how much which brings it on yiu said u had bloodwork and it was all fine did they test all yiur hormones cause low estrogen and low progesterone can cause those things it is all connected

this isnt anxiety induced symptoms this is why im dr hunting, but it brings anxiety on. not everything is anxiety ive had anxiety basically my whole life and not ever has it effected me this way and ive had some pretty bad panic attacks through the years.

I’m glad you posted this. I have had neurological symptoms since peri hit. I was so scared. I had severe anxiety and panic attacks at first. I read symptoms get worse in the last 1-2 years of peri and I just missed my first cycle for the first time ever so, I think I’m right there. I had severe dizziness. I was coming out of a store one day with my boyfriend and we were looking for the car. I lost him for a moment and the entire parking lot was spinning. I started having a panic attack. I read it can be due to anxiety but, could be different for others. The anxiety and panic attacks are severe but, you can’t function with the dizziness. I can’t focus or concentrate right now until this calms down and it’s holding me hostage at home. Trying to explain this to others is hard but, you can find information on it on line. Apparently, it goes along with menopause symptoms. I don’t understand why by now someone hasn’t come up with a solution for this. I can’t take medication or HRT. I have been trying everything otc to stop it. They say good sleep is the most helpful for it so, I try to get to sleep early and eat right. I don’t know what else to do. It has taken almost a year of my life.

I thought I had written that myself but it was you. I am two years post menopause and I’m done I’m going on some hornone replacement. i cant kive likr this and it never seensnto stop do yourself a favor and see an endocrinologist

what kind of doctor have you been going to when i went to an endocronologist they tested everything unlike regular physician and gynecologist and she definitely told me i was in perimenopause so i would check it out if unhavent already

Nearly every post I read of yours I could write myself. I have all this off and on as well. It feels like right before your leg or arm falls asleep except I get it in head/scalp, neck, arms , places on legs, etc. And my limbs have been going numb a lot overnight while sleeping. It’s absurd.

The pressure thing you describe, I get it now too. It’s like someone is choking me cutting off circulation and feels like my head will pop off.

Do you sweat alot when you exercise? I don’t and was thinking this pressure thing could be my version of a hot flash.

I installed the Clue period tracker app and it seems to be the worst when I am supposed to be ovulating and the few days before I expect my period. Not sure what is causing it though, I am only ever told testosterone is low but scared to treat it because I already get a beard and am shedding hair like crazy.

I never had anxiety in my life but have always been a bit OCD and very in tune with the environment around me. Maybe we just notice everything too much and then focus on it? I don’t know but at this point I have had about 50 of the 66 perimenopause symptoms and am not even 43 yet and regular periods. I don’t know how long I can go on.

yea the pressure is just like you described all of this is just so bizarre i never would have imagined feeling any of this in my life, ive become very in tuned to my body when perimenopause hit me. but its hard not to focus on your body not functioning properly when its 24/7 non stop. in the beginning of all this symptoms came and went right before cycle that i could handle feeling hot pee’in alot sore boobs hairs growing on the chin adult acne i could go on and on those symptoms is easy to accept. but when it gets 24/7 non stop scary things thats hard to ignore. im sorry your suffering too god help us all and give us

Hi debra and Pamela, I agree it all is such a mystery .. Very weird neurological symptoms that are scary everytime they occur.. I feel weird head brain sensations whenever I’m near fluorescent lighting or blue lighting or different electronics maybe because of the buzzing Wi-Fi not sure, and near new tv’s my old tv ( I hope never goes out) but the new tv’s bother me bad, I bought a huge tv for the family room right around the time all this started and watched it one time and it gave me such weird symptoms felt like my brain was being tugged at.. instant dizziness and numbness and then it caused a migraine, so I tried to adjust the settings they say for people who are sensitive to their tvs who get motion sickness but nothing helped so I don’t watch ever!!! I can’t… Also computers tablets all give me bad symptoms.. My phone is the only device that I can tolerate without getting numb and dizzy and nausea only because I have an app filter on it, and I dim the screen, helps alot.. After all we never had any of this technology to long ago so not sure maybe my brain and going through all this I’m just overly sensitive, but definitely not ANXIETY this is real with real physical symptoms feels like a seizure or stroke .. How its described because never had either.. and its awful just want to be normal again.. Debra for RA its the rheumatoid factor that is always high for me.. Its suppose to be under 13 and its in the 300s and the thyroid antibodies are 48000 just insanely high which is consistent with hashimotos , diet helps control both a lot but I miss eating fun stuff just can’t do it or I suffer with extreme joint pain from the inflammation.. Truly hoping that I at least can feel somewhat symptom free and normal again once hormones settle , but really think this is the new me now just getting by can’t go far.. eat much constantly have to ask myself is that ok can I do that or can I have this or go here.. Not anyway of living it makes me sad :cry:

Bizarre indeed. I find it strange that no one talks about it or if you ask Doctors about any symptoms besides the obvious like hot flashes, "that’s not a menopause symptom ". Or they do not believe the body may prepare for it years ahead, I am always told I am too young.

Do you have children? I do not but have read it can be worse for women that haven’t given birth. I don’t know why, maybe because we didn’t go thru the hormonal roller coaster of pregnancy.

I am so grateful for this site, before I found it I thought I was dying of some rare condition all labwork missed. I still think that on bad days lol.

yes i have three kids two grown son is 16 i have two granddaughters that i cant even enjoy doing anything with. i never had symptoms of puberty and not even with my pregnancies sailed through no problems. but this part of life is literally kickin my a** my whole body is going through so much scary intense symptoms im scared it will never end and i cant except this. i cry all day everyday doesn’t help my symptoms but i cant help it im defeated being kicked repeatedly while down its like im drowning and no lifesaver. i cry beg plead pray for help and peace that just doesn’t come. all i can say is women are soldiers warriors to have to be tormented daily 24/7 like this. and all this suffering and not taking seriously Drs are useless oh labs is normal its anxiety thats bullsh** i know this may be wrong but i hope the Dr i had gets this 10 x worse then me. might sound mean and hateful but at this point i dont even care I’m fed up. cause if she does i want to tell her walk it off its anxiety suck it up buttercup. sorry im done venting praying for us all