I am a 42 year old woman and was diagnosed with the disease when I was 24. Initially it was thought that I had 2 slipped discs whilst pregnant. Unable to do anything until the baby was born I had to suffer incredible pain (as you well know). I was fobbed off with Brufen Retard by the GP until I was violently ill due to the useage. It was finally diagnosed when the physio sent me for x-rays. I have the damage in 3 places, neck, shoulders and lower spine.
I was referred to the hospital to see a 'professional' who told me that the damage was caused when I was a teenager and should not be causing me pain now! I was told that I could see a psychologist to 'help with the pain' threrefore more or less told to go away.
My GP then referred me to another hospital's pain clinic were I receive acupuncture, which is bliss, but only lasts for the duration of the needles being in my skin.
I also have problems with my feet, being told to loose weight would help, but after doing my own research have found that it is indicative of osteocondritis anyway, so once again left alone to deal with the pain.
I have a condition with my eyes in that the corneas are eroding. I have since found out by a medico that this is also part and parcel of the condition.
There doesn't appear to be any continuity in advice or support from the medical profession. However, there does seem to be a great deal of ignorance!
Couldn't agree more. I was diagnosed in 1972. Things have improved since then. I am currently on a medication called Lyrica which is the only med that has helped with the pain. I also have aveydic massage which helps keep the hump under control.
Hi
My first comment.
I am a 29 year old male currently serving in the armed forces and am in a similar position as yourself. I've
been experiencing aches and pains for the past two years. 6months after presenting I got sent to the "head
doc". Got put on all sorts of pills including anti psychotics! Any way two months ago I demanded X-rays!!
To the disbelief of the docs I was right! Diagnosed with scheueremanns and then had an MRI and I also have degenerative disc disease!! After all this I'm still being sent here there and everywhere getting knowhere!
Frustrating! Please keep me posted on how you're doing.
Hope things are improving
Hi
I am glad I have found this forum I have not been able to find any useful information since being diagnosed with Scheuermann's this year at the age of 37.
My doctor originally thought I had Ankylosing Spondylitis and sent me of for an MRI which showed Scheuermann's. I was also told that this was juvenile disease and should not really be causing me any problems, The MRI showed that I have damage all the way down my spine as well as degenerative disc disease.
I am in constant pain especially during the night and it is making me depressed. Doctors do not seem to understand the pain that comes with this condition I have been taking co codamol 30/500 as well as Lyrica and still having back pain.
I also get a lot of pain in my lower ribs and also feet. I am awaiting an appointment with my local hospital pain clinic so hopefully they can help.
Hi I am 42 and was diagnosed in 1994, 10 years after campaigning for an mri scan. Finally got the diagnosis, which was missed after a doctors assessed me as a 10 year old. Was told i was lazy and not standing up correctly. Also have osteoarthritis of the neck and spine, and earlier this year was diagnosed with fibromyalgia......am almost at the point of giving up!!!!
There is not a lot of help available for scheuermanns, mainly pain management and pain killers, which for some are not the way forward. surgery is now not an option, as the bones have deteriorated to crumbling stage, therefor putting them at risk from shattering.
Everyday is a major struggle, and i have also read numerous times that by adult hood, pain should have subsided a bit.....which is just so not true. I am aware that my other conditions cause me very similar pain and symptoms, but i have daily bouts of pain, that can never seem to be relieved.
I am glad I am not alone
Hi I'm Kathryn
I suffer from the damaged caused by sheurmanns disease the pain is everyday all day and my back spasms a lot too as you are all aware it's very painful I'm 24 and was diagnosed with sheurmanns when i was around 13 but told I would grow out of it!
I now suffer with back spasms pain every day doctors send me to pain clinics give me all sorts of painkillers that just does not relieve my pain I have had MRI scans that clearly show the damage to on my spine I was told this would not get any worse but the curve has gotten worse after a recent MRI and all docs specialists want to do is pass me around
Does anyone have any more advise on what to do next do any of you have any injections to help with pain or spasms I have a 11 month old daughter who is the best thing ever 
but I'm always in that much pain its very hard to do the things I want to do 
this gets me down and I have low days and good days !
I have to lie on the floor and crack my back for a few seconds relief ! Does that help anyone else ?
Xxxxx
I also struggle with stiffness in my spine and it pains that fees like warm blood running down my back i have been told this is nerve pain !
Have tried massage chiropractor Pilates but that just makes it hurt more I have lost 3 stone in weight due to stress from being in pain all the time !
Hi
Just joined (really shy)
I was searching through information on scheuemanns and came across this site and I must say I'm glad I did!
I am 26 years old and was diagnosed when I was 13, like others I was told ill grow out of it... Apart from the constant pain I'm in and always taking tablets I try to remain happy but it's so hard there's days when I wake up and I'm in so much pain I just want to cry.
Has anybody had any pain killers that helped them at all with there pain?
Reeny
I'm now 60 and was diagnosed at 19, and have been through all the stages you have. I have found Lyrica has helped me. I take a 75mg in the morning and a 150mg at bedtime. They initially made me sleepy but this passed. I also have regular deep tissue massage on my shoulder blades. Also lie on the floor with feet up on the bed and push shoulder blades into the ground. I spent 3 months travelling around england, staying in B & B's without too much trouble. I hope you get relief from these ideas.
Hi,
Aussie is that Aveydic massage where they use their feet instead of hands to do the massage?
Curvey
No. No feet used but it is a deep tissue massage and sometimes my practitioner uses her elbows.
Hi
I first went to GP at the age of 12, had xrays but was told there was nothing wrong.
Once I left home and started work and have my son the pain was unbearable so I had to keep on at the doctor until someone would listen.
Finally when I was pregnant the 2nd time round I was told they thought I had scheuermanns disease but I had to wait till end of pregnancy to have mri to confirm it.
Was diagnosed at 23.
Have been told it's too late to do anything to correct the shape of my spine all I can do is take pain meds, however I keep getting told over and over Scheuermanns doesn't cause pain.
Well guess what it does and its unbearable
To top it off I had pain in my hips and was told I would get pain else were because of my back but when I was examined my hip poped out so was referred to London and was diagnosed with retroversion ( similar to hip dysplasia).
I have had jy first RPAO surgery feb this year and have just started to walk again but will need surgery on my other hip hext year.
Hi,
I have been putting up with back pain for 30 years, which I thought was as a result of a football injury suffered in my 20's. Recently the pain worsened dramatically. So went through another round of doctors & physios and finally got diagnosed with Scheuermanns at the age of 48. Good to at last know what the problem is - but more than a little frustrating to have not been diagnosed for so long. Anyway hope your progressing well. Cheers