Hi. I have had the same symptoms recently. In December I started developing dizzy spells and it felt as if I was in a moving plane at some points. I don't feel depressed or stressed with anything else except feeling like this. Have had a stack of blood tests and a head and neck MRI which all came back fine. Now the Neurologist suggested nortriptyline and have just started day 1. Feels weird, floaty and I don't like it but will try it for a week or two and see what comes of it.
Worthwhile mentioning that everyday tasks have also become difficult, even typing an email or going to the shops gets me confused. Hard to explain to those around you who don't understand how you can be feeling this way. It sucks, stay strong.
Hi pink muffin can you tell me how you got on with the nortriptyline
Your symptoms sound very similar to mine
I have been feeling very light headed dizzy and foggy pretty much everyday for two years sometimes I get a dull headache and a weird tingling feeling all over my body lmy nose is running all the time had a sore throat along with a number of other symptoms, I was originally told I had sinus problems and was seeing the ent Doctor for a year who eventually refers me to a neurologist which has told me I have migraines he started me on nortriptyline 10mg a day gradually building it up I have been on them for nearly three weeks now and still it hasn't gone
did these meds work for you and how long before they started working
Hope your well Andrew
i see you posted 4 months ago. hopefully you have answers by now. i know how debilitating these symptoms can be. i endured the same for several months. like many others, i was FINALLY prescribed nortriptyline 10mg daily for vestibular migraines. at first the side effects were almost worse than the dizzy spells. the dizzy spells diminished quickly, but i felt very out of it, very apathetic. after a couple of weeks those effects subsided. after about a month i had a return of the spells, but only for a few days. i've been on the drug for almost 6 months now. so far, so good.
Hello,
I'm so glad to find this page! This answers so many questions!
I'll be starting on nortriptyline tomorrow and had no idea of the side effects.
I know theses posts are older, but I've wanted to let you know that I've been experiencing the exact same symptoms you're having for about 18 months. It took 12 of those months to find a neurologist that could diagnose me and nortriptyline will be the 4th med that I've tried. However, I've had some good luck recently with herbals, butterbur and fever few. I get a combo capsule that contains both. those alone have reduced my symptoms.
I hope you've found a solution to yours - my doc keeps telling me that there's always something more we can do!
Hi Just read your post and wondered how you are getting on with Nortripyline. I have just been prescribed it but after reading about it on this site I am a bit doubtful as to wether it will sort me out. I have been suffering with dizziness/lightheaded and blurry vision for sometime and was hoping for a good result. I will take the first tablet tonight and see how it goes.
Hi,
I hope you have started to have some relief?
I am also SO glad I found this page as I too have been experiencing MAV for ages now, with no relief whatsoever when adhering to the migriane diet and significantly reducing stress etc.
It has resulted in me having to stop working, and everyday tasks have become the bigeest chore.
I finally saw a consultant who seems to 'get it' and has put me on Nortriptyline starting at 10mg tonight.
I am nervous to start taking it because of some of the side effcets I have heard e.g blacking out and worsening diziness! I am terrified of my current diziness becoming even more increased, and I think this has scared me in to starting it. Now that I have exhausted every other option (without medication) I think it is my only choice.
Please can you let me know how you have got on with nortriptyline since you started, and what side effects you have found?
I also take a combined herbal supplement for migraines which I started about two and half weeks go which I have heard really helps. It has feverfew, magnesium and it B-2. Do you still take your combo capsule with the nort?
Thanks for reading!
Hi I am also starting on Nortriptyline tonight I am a bit apprehensive as I do not want to make the dizziness worse but have to try it. We may be pleasantly suppressed I hope, but have got yo give it a chance.
Hi I have been suffering with chronic daily migraine for some time the Dr put me on Amytriptiline and although it worked for me it made me so tired and lethargic even on the lowest dose that the neurologist recommended moving to norttriptyline been on it for 3 weeks and although still tired much better than before and minimal headaches!
Hi,
How did you get on?
I feel worse so far..super dizzy and felt wired the whole night- could barely sleep.
Will still stick to it and give my body a chance to hopefully get used to it.
Fingers crossed!
Hi
I took the tablet at 8pm went to bed at 10.30pm I woke at Midnight dizzy,
unfortunately I didn't get much sleep neither but the dizziness had gone when I got up at 7am, just a little lightheaded and a bit like I was wearing a tight swimming cap, as the morning wore on I did feel a little better.
So much for them making you feel sleepy I was expecting a good nights sleep.
As you say stick with it and hope things improve.
I know- I was looking forward to a good nights sleep! I'm glad the dizziness went by the time you woke at least-that's good.
Here's to day two! Keep me posted on how you get on :-)
Hi Natalie well second day little bit wobbly then about 7ish went dizzy with a bad head and was like that until I went to bed. Bad night again. Saturday was sort of dizzy all day but today not bad so far. Was you told you could increase your tablets to 2 a day if you didn't think they was working.
Hope you are feeling better.
Hi,
I had to stop mine on Saturday as they were making me so dizzy and completely out of it. Also had a really fast heart beat which I didn't like, and couldn't seem to sleep.
I've left a message for my doctor to call me so I'm waiting to hear what he suggests. I'm glad they seem to agree with you and hope you are feeling better each day
X
hi, this was my experience with migraine. I have an auto immune disorder so it is not ordinary migraine but related to inflammation. Conventional migraine treatments don't work for it and can make it worse. You need to see the proper kind of doctor to get the right diagnosis.
If you still log into the system post a message and we can chat about it.
Hi, I can't believe I found others with the same problems. I thought I was going crazy. And I think the doctors think so too. I didn't think I was having migraines but the dizziness is crazy and the head pressure unbearable. I too was put on Nortriptyline 25mg, this is my second day, not much relief. How are you doing? What is helping you?
Hi there...I have been talking to a lot of people on here with this kind of migraine syndrome. I have been diagnosed 11 or 12 years ago with an auto immune disoder...a form of vasculitis. That is what causes my migraine. Problem is it is caused by inflammation and conventional migraine treatments do nothing for that.
I am treated with mycophenolate and interferon to control my illness and my migraine symptoms have been gone completely for 3 years now.
Thank you, it's good to know that help can be found! I just hate the ringing in my ears and the dizziness. And I'm feeling weak. That doesn't help with everyday living. I hope this medication works.
I am still taking Nortriptyline it seems to be working after getting over the first 3days but after 10-14 days some of the dizziness and light headings returned so I increased the does as told to by my Neuro-otologist up to 5 Tablets but I am hoping I do not need to go that far. I must admit I haven't noticed any other Side effects. I so want these to work I was sick of my head being like it was. For 20 years prior to 2013 I had suffered with Meniers disease/syndrome then in 2013 the dizziness changed to short sharp bouts and I was diagnosed with BPPV and treated for that over a no of months, I was left with a dizziness in my head some headaches and from time to time blurry vision.
Hi Pinkmuffin,
I have severe migraines and the only med that help is Nortriptyline. My Dr started me out at 10 MG for one week and she had me up the dosage each week until my migraines went away. I'm on 50 MG nightly, they make me drousy so I take them before bed.
I'm not saying this is for everyone, just putting my experience out there.
I'd be curious to hear what side affects others have.
I hope you're feeling better.