Well, after 14weeks of waiting, I finally got my visit for a second opinion to see if I have pmr, gca, neither or both. I saw a Professor who specialises in Vasculitis and she was very nice. I told her my saga, and although she says I have all the symptoms, because of my inflammatory markers not reducing, she cannot give me a definite diagnosis until the Pred. is reduced. I have had difficulty before reducing, so from 20mgs a day, she wants me to drop 5mgs to 15mgs for a month, then to 12.5mgs for the same, then to 10mgs. for a month. She says then I will need a ct scan as the Pred. will affect the result if it is too high. I woke up this morning, and was in agony with a toothache like feeling in my right buttock, I was determined to make the appointment after waiting so long, I virtually crawled home andam now using a stick to move around. This comes after approx. three weeks ago, I had the same ache in my left buttock, Voltarol and paracetamol saw this off, I hope the same happens again. I saw a "nurse practitioner," and he said it was "muscle pain" duh! Something new every day with this pesky disease, whatever it is!