I'm seeing the neuro surgeon tomoz about plan and what will happen when my son has decompression surgery in August ,what kinda questions should I ask????????
Hi Angela, I'm sorry I didn't see your post, I've only just come back from holiday. Plus it's a blooming shame nobody else bothers to answer.
I hope you got on ok with the Neurosurgeon. Did you manage to get on the Chiari board? There seems to be anyone on here and at a time like this you really need support.
Marina xxx
Hi yes it went ok got all questions I needed answering answered 😃 I haven't managed to get on chiari board for sum reason when it tells u to type letters what are in box it won't let me😪 really want to join site too! Just waiting for date to arrive now😁20th August x
Hope u had a lovely holiday btw 😊 Angie x
Hi Angela, I'm so glad everything went well with your Neurosurgeon.
Unfortunately we had to cut our holiday short because I was unwell, but that's nothing unusual for me lol.
Are you trying to sign on with the same name as you use on here?
Let me know ASAP then I'll get it sorted for you.
Marina xxx
Sorry to hear that x and yes I was having trouble on the bit where it's saying copy the letters shown in box 😒 plz send me link again and il try again and let u know xx n thank you for the reply 😉 it's nice to know there's ppl out there for advice x
I really cannot get on that chiari site at all that stupid box where u have to copy the image of letters , please try and help me get on the site I'd be so grateful 😊
Hi Angela, I posted the link to the Chiari and it didn't show up, I'm just hoping that I haven't got myself in bother for posting a link. Hopefully not, I only posted it to help because there isn't a forum on here to help Mums who have children. Children s needs and problems are often different to adults. I'm going to try again and hope they let me post, Marina xxx http://www.chiari.co.uk/chat/
Still no luck but thank u for sending it anyway
Really cannot understand why my letters don't match in the variation box 😣
Hi Angela, I've emailed the Administrator, so hopefully he'll be in touch in a couple of days if he's not working