I have been having severe pains in my body, it started off with my feet and legs I wouldn't be able to walk having to crawl around the house and be carried up the stairs I work in a care home 12 hour shifts so put it down to that this happens often, recently my arm began to hurt from the shoulder down to the fingers I thought it was dislocated the pain was unbearable called 111 and went to hospital they said it wasn't broken and to investigate at gp, the doctors said I am low on vitamin d and to take vitamins for 12 weeks and come back. Since then I am really struggling had to cut my hours down at work, even when I am at work the simplest task hurts the pains can be anywhere from my fingers to my wrist knees shoulders, I am not sleeping at nights! I am loosing weight became very weak, and have no energy all I want to do is sleep! Cocodamol is to weak for the pains now and I don't know what to do anymore I can't get a doctors appointment for two weeks now and can't wait much longer, any advice?
Could this be just Vitmain d definecy? Or could it be mkre
Hi holly, you could have PMR so I suggest you try and get an emergency appointment with your doctor asap and get him to carry out the relevent tests, I doubt the pain is solely down to vitamin D.
If it is PMR he should prescribe Prednisolone which is the only medication that will reduce the inflammation that is causing the pain, good luck.
Oh thank you so much! I just didn't know whether this was normal for vitamin D definecy! I will do that. Thank you for your help
You are welcome. If the doctor confirms PMR please do stay on this forum as you will find loads of advice to help you cope as PMR can be a long term problem but remember you are not alone and we are all here to help eachother. Regards Dave (tavidu)
I definitely will, thank you for your help! Take care
Holly I should check the symptoms for PMR on Google before going to your doctor and suggesting it, as PMR has bilateral pain normally in the hips and/or shoulders and your symptoms are not really quite right for it, although I may be wrong. Vitamin D deficiency can be very painful, do you know what your readings are? It could be fybromyalgia possibly and probably other things too. I should go back to your doctor if you are in such pain. I think they often send people off and assume everything is OK unless they come back!
Hi! Yes your right I have had a look, some are familiar but not all of them! I have been researching and fybromygia and a few others do sound more familiar. Oh really, that's the only problem I don't want to make a fuss and it is Vitmain d like she said, but I am also really struggling and don't know what else I can do! I will have to try find a way to go back Monday! Thank you for your help!
Good luck for next week, don't let them fob you off. Also find out what your Vit D reading is. It usually takes a minimum of three months to sort out vitamin D deficiency. Also sun gives vit D, but not around where I am at the moment!
Why do we always feel that we are making a fuss? When you are that much pain your GP must take it seriously and get the tests to help you.
Hope you get an appt very soon.
Good Luck
Yes, please be persistent. Many of us on this forum were not diagnosed for a very long time, sometines it took years. I am sure the first doctor I dealt with (a young woman, you'd expect more empathy) brushed me off as a hypochondriac old woman! If you are taking Vitamin D3 you might want to consider making sure that all your micronutrients are in balance. Some of the other vitamins work with D3 for example to make sure calcium is working the way it should in your body. Calcium itself can help to relieve pain, depending on the cause of the pain.
Oh really, that's crazy! Yeah that's what I feel like with mine, like I am annoying them! Oh I see, thank you for that I will get onto them
Thank you so much! Definitely it's not good is it x
Whether it is right or wrong - taking a partner/friend with you often makes a massive difference. Somehow they take you more seriously and it concentrates their mind! It shouldn't be, but there it is.
You need your vit D level checked again - if it was very low then they should have put you on a high dose supplement. With a high dose supplement the level rises quickly, if it was an ordinary supplement then it could take much longer. And yes - vit D deficiency COULD be that bad.
But the weight loss and other things mean this is something that should be taken seriously so don't gloss over that. I don't want to scare you, but PMR is just the name for a set of symptoms that can have various causes, unfortunately including some cancers. If they have done the right tests they should have ruled that out but there are several other causes besides vit D deficiency and they need investigating properly.
If your GP can't work out some form of answer, then insist on a referral to a rheumatologist. Oh - and go to the practice and tell them you want an emergency appointment - 2 weeks is fine for some things Not here.
I heard recently that a GP sees around 30-40 patients a day. I suppose I can sympathise, to a certain extent anyway, if they occassionally become dismissive. If you don't roll around the floor screaming with pain, they assume you are not too bad I think.
And if you DO, then they write "somatism"/"depression"/"hysterical". So you take a witness with you...