Hello I had TVT surgery in September but unfortuneately my problem has increased. My consultant has now stated that he thinks its an over active bladder and has started me on solifenacin twice a day. It doesnt seem to be making any difference at all. Anybody had any experience of this drug. Also not sure if its a side effect but my urine smells very unpleasent and is cloudy, should this be happening? Thasnk you in advance. x
Hi it gave me a very dry really bad tasting mouth. And didn't help a bit. I am now on tolterodine which is just as bad.
How you doing with the sling. Hope it's worked for you
Claire
Hi
yep I got put on made me v unwell found out shouldn't be taken with my other meds
my daughter was also on it and she was very unwell
fill in the yellow card available in chemists until. A lot of pts complain they don't get statistics
mine was blamed on my weight but I pointed out to him in 1992 I wasn't over weight (it's taken this long)
Now I'm resigned to nappies and no social life
good luck
Solifenacin (or Vesicare as it's also known) worked well for me for quite a while with no side effects, but I suppose like anything else my body got used to it and the dosage could not be increased.
I'm now on Trospium Chloride, once per day, and this is working for me up to a point at the moment (I still get the odd urge or two when it's wearing off and I'm due for the next dose). Again, this dosage cannot be increased, so I'm hoping this continues to work as well as it is. I certainly don't want to have surgery after the bad reports on this site.
Glad it's worked I'm on amodarine and that plus warfarin seems to dislike anything causes tachycardia can't afford to get af again I've been restarted 6 times quite had enough
Hi I would advise personally not to have TVT mesh sling. I have just had to pay for a private scan which results are a loop in the tape on the right hand side, right arm/anchor not in right place, ? Nerve entrapment and it's partially eroded it's been just over a year now and my doc just don't want to know. My GP is kind of listening to me asking for a second opinion I wish I had gone with Botox now as still need it in the end. Xx
I ware nappies, i self catherterise. Take 4mg tolterodine which they want to change to patch that goes on the buttock but I won't allow as I get so much pain in my buttock and down my leg. Cutting pain in my vagina and have sores down there were the inconinence nurse comes out and sorts. X
I eventually see the specialist in January. The original date was in November, but they cancelled it twice (giving me new appointments weeks later) and then I had to cancel because of another op on my left eye. I certainly won't be having the sling. It sounds like quite a lot of things can go wrong. I was offered an operation (could have been the sling) years ago and refused then because of the possible adverse outcomes.
Are there any other ops beside this TVT mesh sling? How does Botox help?
I have a friend who's on Warfarin and they gave him Tramadol for the pain of broken/cracked ribs. They gave him really bad hallucinations and he was admitted to hospital for a few days because he was that bad.
It looks like you've to be very careful what you take when you're on Warfarin although I would have thought the prescribing doctor should have realised!
Hi....i was on Vesicare for months. At first it worked, but after a while it seemed to slow down. I hated taking it because all it really seemed to do was dry my mouth out. Horrible. I was put on another which i can't remember the name of but they gave me terrible palpitations so i stopped them after a couple of weeks.
My doctor finally refered me to the hospital at the begining of this year where after a barrage of tests was told that not only did i have an over active bladder but that it was abnormally small as well! They promised me i'd "be dry for christmas"
My low point came after i'd walked round a supermarket and could feel myself wetting myself. There was nothing i could do to stop myself. The thought of being like that forever more......iI went home and cried....
A month ago i had my first botox treatment. I know it's going to be ongoing but it's changed my life already. I can actually hang on!! I can go to bed and snuggle up to my husband without being padded up to the eyeballs!! I can relax...it takes some getting used to.
Know one on here should ever give up. Go back to your doctors and keep nagging them. None of us should resign ourselves to a humiliating life in pads. I'm 47 n there was no way i'm spending the next 30 odd years like that. We all deserve a good quality of life.
Good luck n go back n see your doctor. Try n swop your meds x
I am so glad to here the Botox works as that is my next step after I get the TVT mesh removed if I can that is. And I was so scared as i was promiced to be dry for this Christmas but not dry and in agony. I do not trust my consultant so it's hard for me to go threw the motion with her at the moment Really pleased for you x
Hi I don't know from 1st hand how Botox works but it has changed Helens life she has commented how Botox has gave her her life back. Was never spoken about until after the TVT mesh op and by then my head is all over. I would try Botox as if nothin else it is not permanent as you have to go back for injections so many month apart talk to your consultant and Google before taking any risk on TVT I wish I had x
Hi....the botox works by paralysing the bladder. Imagine a pint glass which is only a quarter full. Well the botox is injected into most of the other 3/4 of the glass so that it stops the signals that make the bladder spasm and us wetting ourselves. I hope that makes sense.
I was dreading it, but it wasn't nearly as bad as i expeçted. Just a local anesthetic into the bladder then i had 20 botox injections that i could only just feel. More mildly uncomfortable than pain. I was wheeled back into a day room and given tea n biscuits and had to be able to wee before i left....about 10 mins for me. I walked out of the hospital a bit delicatley mind you!!
Hope this helps....Helen x
Hi Helen thank you. You have explained more to me there than 3 app with consultant. But I don't really listen now as I know she gunna say make an app for 3 or 6 months can't help ya yet. But certainly when the time comes I have a bit more confidence in it. Thank you x
It's a pleasure Claire.
It's really weird not having to be padded up. I still wear a little sanitary pad through habit!! I don't know how long the botox will last, but i do know i won't worry when the time comes to have it again. I suppose i was lucky in as much as i never had any pain. Just the urge incontinantancy, and the only treatments i was offered were the tablets and the botox.
Good luck with everything x
I suppose it's the warning of self catharisation I can't imagine trying to reach there etc
Hi I can't help ya on how long it lasts. I didn't have that choice as I have mixed inconinence so it was TVT 1st Botox 2nd I am looking forward to being dry and not being paranoid I smell. X.
Oh Gillian that part of it was my biggest worry. You have to be able to self catharise before they do the botox. I did it but hated it. I work in a school and couldn't imagine having to do it there!! Thankfully this time i haven't had to x
Is Botox free on the NHS or do you have to go private? 
Your gp can refer you to a specialist on nhs x