Hi, I'm new to this forum! I was finally diagnosed with Sjegren's only a year ago, however, I was diagnosed over 4 years ago with either Sarcadosis, Sjegren's, PBC for some reason were not conclusive. Understandably, due to the initial uncertainty of my condition I have begun to research our vast world of information. I have been looking into each sufferer's blood group. I would appreciate your feedback if you suffer with SS, on your condition, diagnosis and blood group.
Hi Caroline ~
I have Sjogrens and Sarcoidosis, the sarcoid is of the lungs, lymph nodes, cartiledge of the ears and nose, eyes, skin, gums and heart. I was dx'd with sarcoid in 2005 and sjogrens in 2013.
My condition as of today, is that I'm seeing the Rheumi and Pulmonologist this week and treatment will begin. Afterwards, further testing of the heart.
Every 6 mths I have to have a brain scan to make sure the sarcoid hasn't effected that are. The tiredness that comes with this disease is just sometimes too much! Pains in the joints etc...I don't know how much of the pain is attributed from the sarcoid or the auto accident I had in 2004 and again in 2013. Anyway, that's an ongoing problem.
When you say, blood group, do you mean blood type? I guess I've never heard that term before, so excuse my ignorance.
How is your condition and dx thus far?
Frustrated
Hi, I'm sorry, you truly do have a plate load! Yes, I do mean blood type! I'm new to this forum and have made a few vital spelling errors but can't find how to edit if you know i'd appreciate it!
I have severe dry eyes, liver problems, granulomas affecting heart, lungs . . pretty similar to you but that also includes my liver. The one thing I've been looking into is whether SS sufferers share the same blood group. I have in the past had 6 miscarriages so at one point Lupus was a consideration. I so believe that environment and diet effects our condition, also our immune system is basically fighting something alien which it does not recognise. I have recently gut out all GM, only eat organic. I have taken wheat and gluten out of my diet too, but it's the blood I'm most intrigued about. What blood type are you?
Hi , 😷. I'm rhesus negative ,, please keep me posted over the blood type. I'm really keen to know as much as I can about this miserable disease xx
Hi, I have RA, RV, Sjogren's, Bronchiectasis, Nodular Prurigo, Lichen Simplex, Psuedomonas colonies in my lungs, high blood pressure (getting higher as I'm on steroids) and I'm being treated for breast cancer. Blood group is O positive.
Caroline ~
Thank you for clarification! I'm blood type O positive. I, too in the past have had difficulities with my pregnancies. Losing one pregnancy while 6 mths pregnant, a tubal pregnancy and three miscarriages. However, grateful I have two beautiful grown daughters.
I agree with you regarding enviornment and the possiblites of "fertilizers" put into the growth of our produce.
May I ask your blood type? Interesting concept!
Frustrated
I am rehesus negative! I have had x6 miscarriages, but I too have two beautiful sons! I'm intrigued with the antigens and wonder whether your two could possibly be rhesus negative?
I too am rhesus negative. I hope you don't mind me asking but have you had several miscarriages?
Yes ,,, I've had about five. I do have four children though so I am very blessed xxx
Hi, were you offered the Anti-D injection after - at 28 weeks and after birth (to include the miscarriages)? xx
I'm sorry honey, it can sometimes be so hard but I do believe there is always a bright shinning light up ahead. I too was on steroids for two long years, it was horrible! Then they gradually reduced and stopped them but there was severe deterioation with my liver results and the granulomas had returned. I have now been off steroids for 18 months and intend to stay off them. Stay positive. Stress is the worse thing. Eat only pure, uncomplex food! Have you tried Bowen?
Do you mind me asking whether you have children or have had miscarriages? xx
Hi Caroline ~
Curious, have you found a connection with blood type and sjogrens? I'm reading some have O positive and R-negative, so far I'm confused 
but that's not unusual lol Anyway, I'm truly hoping that this ends up with some correlation related to blood-type. Just sayin'
Frustrated
Hi. Yeah I had anti d after all births and miscarriage s. Do u think there is a connextion ? Xx
Hi Caroline, I just have Sjogrens but have been more or less in remission for about five years now. And yes, that can happen - like all auto-immune conditions it can disappear in a very short time!
It started 20 years ago with a ragbag of symptoms nobody could put together - dry mouth and dry eyes, both with bleeding, painful sores at the corners, generalised joint pains (but particularly in my hands), Reynaud's syndrome, peripheral neuropathy in hands and feet, under-active thyroid etc. 10 years to get a diagnosis (on the basis of salivary gland antibiodies in my blood-stream). I only got symptom-based treatment - all they're prepared to offer in my neck of the woods - but am actually quite pleased about that. I wouldn't like to have to go on steroids.
Anyway, five years ago, at age 65, it suddenly cleared up. Just like that! Well, more or less. I still have achey joints some days, but that's normal at 70, and I've had a bit of a problem with dry, sticky eyes during the last six months ago, but that's it.
I'm O Positive, but so are most people so I don't think that's significant.
Good luck with the condition, and don't give up hope. Remission can come out of the blue.
I'm unsure at the moment. There are around one million sufferers in the UK, 90% are women aged between 40-60 - after child bearing years. I too am hoping there will be a connection! I will keep you updated! x
My eldest daughter lost twins about 2 years ago. I think she's same blood group as me but has no autoimmune disease and I hope she never does. 
. . I am hoping, but maybe I just read too much. I am still interested in some of my blood results and the connection to antigens. I will keep you updated! Have to say, I'm so happy for you that you managed 4 healthy children. I devoted 10 years of my life trying to understand why I kept miscarrying! xx
Hello my blood group is o positive. I used to give blood until every new tablet I was put on they had to keep looking up to be sure it would be alright. The last times they were concerned for what affect it might have on me.
Thank you, have you ever miscarried or have children who are rhesus negative? I'm still unsure what I'm thinking here as so far there has been little consistency with conditions, but every angle is worth research!
Hello, no I thank God I have never miscarried, and have two beautiful grown children. No also that isn't their group.