Alguém mais tem dificuldade para engolir ou engasgar? Meu reumatologista disse que não era devido à minha Síndrome de Sjögren e para que eu fosse verificar com um gastroenterologista.
Depends what you mean by choking, Lisa. Quite a lot of us have trouble swallowing food if we have a really dry mouth. I get it occasionally, especially when swallowing dry food like bread, or sticky food like potatoes. I wouldn't personally define that as choking, even though the food occasionally gets stuck for a few seconds (and a lot longer than that in my oesophagus once I succeed in swallowing it).
If you're describing something other than the above, then perhaps you should indeed see a gastro doctor.
Já em 1976, houve discussão na literatura médica sobre 'dismotilidade' (dificuldade para engolir) na Síndrome de Sjӧgren. Um resumo de um artigo de 1976 está abaixo:
Ramirez-Mata M, Pena Ancira FF, Alarcon-Segovia D
O Journal of Rheumatology [01 Mar 1976, 3(1):63-69]
"Estudos monométricos esofágicos foram realizados em 10 pacientes não selecionados com síndrome de Sjӧgren, não associados a outras doenças do tecido conjuntivo ou hepática ativa crônica. Nove dos pacientes apresentaram motilidade esofágica anormal, consistindo em contractilidade ausente ou diminuída no terço superior do esôfago. Em quatro pacientes, a disfunção também se estendeu a outras porções do órgão. A secura da boca e da orofaringe, ou atrofia mucosa, não explica esses achados. O padrão uniforme da disfunção esofágica encontrada em pacientes com síndrome de Sjӧgren primária, que difere dos padrões de envolvimento observados em outras doenças do tecido conjuntivo, sugere que a síndrome de Sjӧgren primária é provavelmente uma entidade distinta."
Além desse período, houve inúmeras referências à dismotilidade esofágica relacionada à S. de Sjӧgren, como:
"Peristalse defeituosa foi demonstrada em um terço ou mais de pacientes com síndrome de Sjӧgren primária. Contractilidade diminuída ou ausente foi mostrada no terço superior do esôfago, e a alteração da UOS pode ser mais grave do que nas outras doenças do tecido conjuntivo" - do Rheumatology 2008, 47 (6), pp 746-752 Disfagia e Outras Manifestações do Envolvimento Esofágico em Doenças Musculoesqueléticas.
Há muitos outros artigos relacionados sugerindo a presença de dismotilidade esofágica em pacientes com S.S. Talvez seu Reumatologista faria bem em fazer mais pesquisas sobre esse aspecto da S.S.
Great post, Megheart. I know a lot of us on here have complained about having to chew and swallow carefully to avoid things "getting stuck" going through the oesophagus. Interesting to know that there's a reason other than just dryness.
And frankly, I think most rheumatologists, ophthalmologists, dentists etc. etc. could benefit from doing more research into all aspects of SS! My current GP is more knowledgeable about (and interested in) the condition than all the specialists I've consulted in the past put together.
Yes I do, Lisa! And my Rhuemy said the same thing. (Doesn't know cause, doesn't associate it with Sjogren's, told me to see my primary care) Out of the blue I will just gasp for air and/or choke and cough. It is really scary when it wakes me from a dead sleep and I sit straight up in bed gasping for air. I read some on line about laryngospasms and this might be what we are having. Very little detail but it did list Sjogren's as one of the possible causes. I never had this happen to me until after I got Sjogren's and I'm fairly certain there is a connection. Good luck and if I learn more I will let you know.
Blessings,
Sharon
Olá SharonFromBama,
Não conseguia acreditar no que estava lendo. Poderia ter sido eu mesma digitando esta mensagem! &
Desculpe pelos erros de digitação.
Hello, I will at times have trouble swallowing to where I am seriously feeling like I am choking. It could be on food, drink, or even air. I had a swallow test and it was normal though like i said it comes and goes. I also have had several episodes oh laryngospasm which scare the crap out of me. If you find a reason why this is happening I would love to know. Hope you're doing well!
Oi Lisa. Recentemente fui diagnosticada com Síndrome de Sjögren e tenho um caroço na garganta há alguns anos. Ele aparece e some e dificulta a deglutição. Na época, eles complementaram com tomografias computadorizadas do meu tireoide e encontraram pequenos nódulos, mas nada fora do comum. Meu reumatologista agora me disse que isso está relacionado à Síndrome de Sjögren. Às vezes, realmente parece difícil até mesmo respirar. Espero que isso ajude.....talvez você precise de um novo reumatologista?
Absolutely untrue. Esophageal problems come with Sjogren's. I had many Dr's tell me the same thing until I met the best Vocal Cord Surgeon I. The Midwest. Why did I need him? I was having terrible problems with swallowing, choking, my voice was raspy and hoarse... It got so bad I could barely talk which led me to my Vocal Cord Surgeon. He is the reason I was diagnosed with Sjogren's. I had tests done that showed I had a paralyzed right Larangyeal Nerve and Right Vocal Cord. I went through 5 months of diagnostic testing because this can be a dangerous condition. Finally my Dr said he suspected an Autoimmune problem. At last I had an answer. I also had a narrowing of my Esophagus and severe Gerd, all caused by Sjogren's.Please know you have options. Do NOT let any Dr's tell you these things are not related. They are. My Surgeon widened the opening of my Esophagus, which may have to be done regularly. It helped immensely. Also take Salogen pills. They increase saliva thereby helping your ability to swallow. I went to a Gastro too and she diagnosed the GERD and Barrett's Esophagus, but tell your Rheumatologist they ARE related. Unfortunately, not enough Dr's know enough about all the effects of this disease we are dealing with. I have found myself educating THEM. Stay proactive and positive. YOU are your best voice. No pun intended
If it is on the net/web check out mystery diagnosis: most shocking cases aired on 10/10/2016 discovery life. The woman who couldn't cry. It is about sjogrens and one of her first symptoms is difficulty swallowing and choking.