So regretting having this surgery

I am not a negative person. In fact I had virwed my forthcoming operation with excitement. But now, being reduced to writing this post at 3 in the morning after yet another pain filled night with yet more new symptoms , there is now no light whatsoever at the end of an unending tunnel. This is roughly last nights pattern:

Went to a nicely supported bed at 9pm having taken co codamol, 5mg diazepam, zopiclone and tonic water ( for twitching leg).  Severe pain in buttock of operated leg began immediately. Up again to massage buttock. Twitching began in operated leg as soon as I lay back down. I had already taken diazepam so drank tonic water. Lay down, severe pain in buttock still plus new stabbing pain across top of toes of operated leg. 10pm Got up and relocated from bed to recliner in lounge. Twitching again in operated leg plus buttock pain plus that new persistent pain across my toes of operated leg. Sat up in recliner for a change of position and lower back/buttock pain started again. Got up to massage, lay back down, stabbing pain across toes again plus that twitching/jumping of operated leg. Left recliner, went back to bedroom, used Biofreeze on buttock/lower back.  Slept for an hour then awoken with same scenario. 

Oh Sarah so sorry. I had a thr right leg 6 weeks ago.  Had horrific swelling. The toe and foot pain I can really relate to. Lots of elevating ice home pt and what reAlly helped me was compression surgical stalkings. Can you go see your gp dr? I learned too late that my ortho didn't really give a rip about aftercare. I was in so much pain I went to er.  It will get better Sarah. Every day will be better. Can you get some sleeping pills?  I too stayed up late in the beginning .  Don't hesitate to complain really .  You just had a major surgery and not everyone has it easy.   There really is light at the end.  I still have swollen ankles but I go to pt now and ride the bikes which in the beginning like you I thought that day would never come. Thought I'd never get rid of the walker and now I am almost done with the. Cane. I am a late bloomer.  Cheer up.  It will get better.  Stacy 

Sarah. You are not alone in what you are suffering. It is b awful but will get better. Not sleeping is grim. I used to get one and a half to two hours. Then be up with back.pain. the pain in my leg I had never experienced such extreme pain. Do I regret it NO! You have got to celebrate small improvements and also give your meds time to work. You are not going to get instant relief from restless legs. Go to bed for a couple of hours every afternoon. It helps fatigue and fluid retention. 10 weeks post opI was diagnosed with a nerve condition. Given meds and it was better within a month. Whrn your in pain everything seems magnified. There is a light at the end of the tunnel you have to look for it as it is small now.

I already had nerve damage with a condition called Peripheral Neuropathy diagnosed in 2006. It felt like my lower legs were tightly bandaged and I was walking on lumps of cardboard. It’s a condition common with diabetics but I am not one. I also have spinal stenosis and had OCCASIONAL pain in the buttock.

Two days ago this buttock pain started to become unbearable. Massage, ice did nothing. Then last night I started to get intermittent stabbing pains across the toes of my operated leg. That same leg would also twitch and tremor in a most uncomfortable way. So I got up and drank lots of tonic water. My doc has prescribed diazepam 2mg for the twitching which is doing nothing at all. 

I hate hate hate sleeping in these compression stockings. It feels like I’ve gone to bed wearing my jeans. I hate that even tighter feeling and I’ve got to wear them for another 5 weeks.

I’m one of these people who really needs a good nights sleep to function. I always have been a lark, bed early up early. I can walk and function ok with aids during the day. It’s the second I lie down/flat/propped up/that the pains in my buttock, across toes and twitching starts. I absolutely know as sure as eggs are eggs each night is getting worse. 

Ow Sarah I can  relate to you I felt like that at the beginning but there is light st the end of the tunnel I’m nearly 8 weeks post and I can walk most of the time with no crutch I still get some pain but no where near as bad it will get better for you it is paitance you need hang on in there

I too can walk ok Christine it’s the night I have problems with

Yes I had trouble sitting and dreaded going to bed but it does get better I promise you

The sleeping part of this requires patience and endurance. Here is my progress on a daily basis. 

Daily  Chronologue:

I am 80 years old and have had 3 stents installed-no heart attack.  My only other hospital problem has been getting a new shoulder-good health otherwise.  I am doing everything I have been told to do.

Posterior procedure.   

I am using coumadin for blood clots. They take my blood twice a week to monitor the level.  Since coumadin I have only taken 3 BP pills out of a possible twenty. MY BP apparently has been driven down by the coumadin.

Have not used pain meds yet

Day 9: Therapist showed. Walking getting better-went outside for a walk. Still no real pain just limping along.

While I still got up two times I slept much better-a good 8 hours.  Still struggling with swelling but I am winning. This morn I was able to jog my leg off the couch while sitting up.

I have decided to do this chronologue because It might help. I will be glad to answer specific questions. I will do a complete update every few days.

Doctor office called and doubled my coumadin dose.

Day 10:  Still not taking any pain meds or other OTC stuff.  Therapist showed.  Total walking inside and outside for day about ½ hour.  Still struggling with swelling and winning but I am forgetting about the swelling at the top of the hip above my butt. I have to ice that once a week. It seems.  While I feel more power in my leg I still can only lift it about 15-20 degrees above the floor while sitting. I was quite tired at the end of the day. 

Day 11.  Sleep was not great.  Started the day dong ankle pumps, knee presses and hip squeezes before getting up.  I also iced the calf and hip area before rising.  No therapist today. I did exercises and then walked our circle outside my house.  I skipped the BP pillls again because my numbers were in line. Later in the day I did the exercises again and also walked the circle two more times.  Total walking for the day about 25 mins.  

It appears that I now have a very sore op side butt. When I sit it hurts. I get up a lot and put a pillow on the side that does not hurt to ease the pressure.  I am lying down now when icing. It is easier on my buttock. 

At this point I cannot imagine I will have to use pain meds. But I have not eliminated the possibility.  

Doctor called and increased my intake of coumadin again. He wants my blood to show a certain level.

Day 12:  Slept well-only got up once. Did icing and exercises before rising. Completed standup exercises. Went for a walk on our circle. Later walked again on circle.  Then still later did icing lying down and exercises. Again completed standup exercises. Later took a walk on circle.  I wanted to go again but decided to wait another day. Did more icing lying down.  Practiced quite a bit walking around house with cane staying close to things I could grab with free hand.  Did icing and exercises before going to sleep.

Day 13: Sunday Slept well-up twice.  Still sleeping only on back-not easy.  Very similar to Day 11.  My op butt is not hurting today. I am still getting up often. Swelling there but not bad. Therapist put me through exercises. 

Day 14: Slept well on back-up once.  Similar to Day 13. No therapist.

Day 15: Slept on back-ok not great.  Icing and exercises before rising. Able to get out of bed by maneuvering my op foot.  Therapist put me though entire exercises and added another where I move my op foot to the rear while standing. Marching exercise is getting better with a higher step. Walked circle 4x. And leg did not feel very much discomfort. Butt is not hurting very much.  Practiced walking with cane and also on my own for short distances.  Kept up icing and did the final icing while laying down ready to sleep.

Day 16: Slept on back-sleep ok Visited Doctor -xrays looke good. Stopped iron and vit C pills.  Coumadin untill next Tuesday.

Similar day as before.  But seeing a vast improvement in leg mobility. I can get leg into and out of bed without much effort. Swelling still there but getting more under control. Still practicing with a cane. I am also walking, albeit with a gimp, without anything, but only short distances and again able to grab on if necessary.   Have to be very careful turning.  Getting up and down on chair without any extra effort. Legs showing strength.

Day 17: Tried to sleep with pillow on non op side-fuhgeddaboudit. Still cannot sleep on op side because it feels bulky and uncomfortable-no pain. Any ideas on sleeping would be welcome.

----------------------------------------------------------------------------------------------------------------

My previous post follows:

Day 1 & 2: in hospital 

In the following days cited. I have not taken any pain meds yet 

Day 3: Getting home no problem-just followed instructions-now that the hip was done tryng to understand how to organize the house needed changes. Which chair? How many pillows? What to use to get up out of chair? Where to sleep? These would all change as the days went by. I found out what better or worse means. My wife, always my hero, was awesome.

I did the basic therapy for the day and I felt fine. I am walking fine.

That night we got me into our bed which we thought would work well because it is like a hospital bed. The head and foot can be adjusted. No good. (I simply could not use the leg wedge provided in the hospital. It did not work in the hospital as I wound up in the chair every night.) So we decided to use the couch which would keep me on my back. We put some barriers next to the couch.  I slept for three hours and had to get up. Yes, she was there to help.  Anyway it was somewhat of a fitful night.

Day 4:Thanksgiving-The therapist showed up and we went through some extra exercises. I again felt fine.

Sleeping was about the same. I was sleeping during the day sitting up. I used an airplane pillow. I am still feeling only discomfort-not pain. Eating normal. No problem walking.

Day 5: My leg is swelled-the hip and calf about 11/2 /  2 inches larger. We were concerned because no where were we told to expect swelling. So we called the VNA visiting nurse association.A nurse was dispatched. We began icing and raising the leg.. In the meantime I looked on line and found this site which affirmed that some people had swelling-it was a relief. The nurse affirmed it was onl swelling and not a blood clot. Sleeping improved but still somewhat fitful

Day 6: Therapist shows up and we do some exercises and he also affirms swelling is just trauma.

Sleeping still fitful.Walking good. Struggling with swelling.

Day 7: Sunday       Walking well. Icing leg a lot-keeping elevated as much as possible. Doing exercises.

Struggling with swelling.

Day 8: Therapist showed and we do our workout-helpful with ideas and knowledgeable about other folks problems. Struggling with swelling. Sleeping a little better but still getting up a few times at night. Sleeping during the day a lot.

Nurse took blood.

Good luck> 

Sarah,please hang in there. The mental game is terrible but you must push through and know it gets better. My week 5&6 after the major swelling, and looking at the ripped skin on my thi I thought (what the hell have I done to myself) the stockings we're nothing compared to my have having to pressure wrap my entire leg for 4 weeks. Then trying to get the knee to bend again was awful! I remember my pt guy (also a friend) telling me to hold my breath as he pushed and forced my knee back and forth. He also told me, that with all this swelling set back and pain, once you get through it , you will be shocked how much better it gets and faster. For me that was about week 10 I was really walking in aided pretty good, still pain though. Then week twelve , I noticed pain levels dropping. In façt last night was first night I didn't wake up from pain, (just my wife snoring 😁wink hang in there! Each of our journeys is so different, but it gets better! Hopefully you will be like me , and in one week you will gain a mile!

Sorry to hear you are having such a struggle Sarah. I had really severe nerve spasm the first week at about 1 am. It felt like my leg had suddenly kicked the end of the bed. I rang the hospital about it my first night home. It was to do with the healing process of the nerves and lasted about a week. They had given me some tablets that I can't remember the name of that helped with nerve pain. I only ever took one though because the person looking after me lost them somehow.  I found timing of my pain meds really helped. I put my alarm on for 6 am, midday, 6 pm and midnight to remind me. Once I did that everything was a lot better. As for sleeping, the first few weeks I was lucky to get more than an hour at a time as I would wake needing to go to the loo. I just accepted this as part of recovery and used the trips to the loo as a good reason to move and exercise. During the day I mainly rested on the sofa with my legs raised and just dozed. Perhaps speak to your doctor or the ward you were on to get something for nerve pain. You need to tell them what you are experiencing as everyone has different needs for pain control. I don't think I slept for more than an hour until the end of week 2 and then it was for 2 hours. It takes time but it gets better. Your sleep pattern will eventually get back to normal but try not to get too frustrated by something you can't do much about at the moment. 

Regards

Ann

Just remembered the drug that was prescribed for nerve pain but I lost was Gabapentin. 

Regards

Ann

Thanks Ann 

Hi Sarah,

That’s me 7days post op and I can’t believe the pain I am in compared to my last hip I have not cut down on my Morphine yet which I am quite disappointed.  I think the key for us is to be patient we are going to have bad nights but eventually they will be good nights and we won’t even remember complaining about the pain lol 😂 not looking forward to bed well it’s my recliner actually not been in my bed since I came home sleeping on the recliner and it’s not the most comfortable thing I can tell you.  So I hope you have a better night tonight I will have you in my thoughts.

Big Hugs my Friend x

Jacq x

 

Just thought I would point this out. My surgeon strongly advised against recliners, and preferred to have us on back in bed, to help reduce surgery swelling. If your heart is pumping down hill to your surgery site it puts more pressure and thus more swelling and more pain. If its pumping uphill, its the opposite.

Just a thought

Hi Chuck I can’t lie on my back and have been sitting up in bed sleeping since last August while waiting to get my hip done, I understand what you are saying but in the recliner at the moment I am probably lying down more than I would be if I was in bed.  Once the pain has subsided I will make the move back to my bed fingers crossed x

Big Hugs

Jacq x

Jacq , I am not the normal to take advice from for sure. When My leg swelled so bad, I was ordered flat on my back with leg at least 18 inches above the heart for a week. and the pressure wrap. So take any advice from me as one of the more difficult recoveries.

Good luck, lots of ice! Good days to come, today I was able lie in the mud and connect some pipes in a trench to my new garage, but now before bed I am icing as everything throbs.

That’s great to read Stacy. You’ve done really well. I already have those stockings though, we have to wear them for 6 weeks here in the UK.  It’s like going to bed wearing your jeans though!

Thank you for taking the time to write all that x

Thank you Chuck smile

Hiya Jacq lovely to hear from you xx what type of recliner have you got? Is it one of those you can operate the head and foot independently of each other, so if you want the back to go down and the feet to come up you can?  I think they are called Dual recliners. Yes I too have great difficulty sleeping on my back. I’ve never been so exhausted in all my life sad