Socializing is a problem with vertigo and balance disorder

Ears, nose and throat
1

Hi i have balance disorder and vertigo. No body understands . I dont k ow how to make people my friends and relatives believe me. Everytime i have hear some bitter remarks. Does anyone hear face the same ? Its very difficult to make everyone understand our problem

2

Hi Soni!

I'm so sorry to hear that. socializing is a horrible problem for me as well! It's so difficult to talk to people. I'm blessed enough to have an understanding mom, boyfriend, and twin sister. I talk to them all the time about how I feel. I'm sorry you can't talk to someone! I highly suggest seeing a counselor just to talk and discuss your condition! I'm seeing a counselor soon. You can dm me if you ever need to talk!

Elise

3

Thankyou . Fortunately my husbad and son are very understanding and helpful. 🌝

4

I have problems looking at ppl when I speak to them when it's real bad. Makes me real dizzy. Have to tell doc Everytime so they don't think I am not making eye contact trying to hide something. Talking on the phone can even be bad.

5

Sorry to hear that.

6

Been dealing with it over ten years. Just got worse to the point it won't stop.

7

Yea it's mostly when it's so much talking and sensory overload my systems just shut down! I'm glad you have an ubderstanding family. It makes everything a lot better!

8

Yes it is because they don't know how we feel and how we can't live our life's because we are afraid of the dizzy spells my work does not understand some days I have to leave early they all stare at me like I'm lying so I try to fight through it not pass out then try to drive home I'm miserable no one will find the problem

9

Balance disorders are life destroying and soul destroying illnesses. It is no surprise then that our social lives lie in ruin too.

10

True

11

Yes, I understand. It's hard as a mother and grandmother for my family to understand I'm not who I used to be. It makes me very sad to think of my grandchildren and not bevthe greema I want to be.

12

So true, I gave up trying to explain my condition to family and friends because they just can't understand.

And I myself still can't totally understand. 😞

13

My problem is I spent my savings, retirement, everything trying to find out what was going on. After suffering for years and struggling to pay bills I found out it runs in my dad's side of the family. Noone ever told anyone about it. I was mad to say the least.

14

That's terrible I'm so sorry! what is it that you're diagnosed with or that runs in your family?

15

Was told ov

16

Was told 11 years ago I had bppv. But it may be menieres. Am losing vestibular response in my left ear. Have a 3 hour drive coming up Friday to a specialist up north. vertigo won't stop and dizzy all the time. Been unable to work or drive since August.

17

Was told a couple months ago my grandmother, dad, and a couple cousins gave it and it's menieres

18

Oh gosh thats horrible I know that BPPV can be treated with the roles maneuver multiple times, but I've researched meneires and know how hard it is to treat and deal with. Good luck with your appointment, i hope you find answers!!!!!

19

Been to therapy many times. Done all kinds of meneuvers. Excersizes don't seem to work anymore either.

20

I think people around me think I'm faking it.