Hi everyone! Today and the previous two days I have experienced period of times when I was absolutely pain free! This wonderful did not last for long, but to have a glimpse of it brings hope! All this boring rest and inactivity is paying off.
My story is; due to avascular necrosis in both hip joints, brought on by 30 yrs use of corticosteroids for another problem, and had the THR's four months apart and am now 11 months out from the second one. First THR went perfectly well, no lingering pain and quick return to normal mobility. The second one however has been another story with illiopsoas tendonitits which has made sitting, standing, laying, bending over...well, EVERY movement painful. Excruciating in fact.
It comes to mind that my positive spin comes from the wonderful people who share on this site. I wish to know the good, the bad and the ugly details of all of your experiences, because it helps me.
That is fantastic news......isnt it great when your pain eases ....even if its only for a short time.
A note of caution......although being your second THR you'll probably know.
Pace yourself.....I know I should but find it hard.
Just because you feel a bit better dont think about all the things that need doing and now you'll do them when you feel better This is the voice of experience speaking....I have done that so often.....getting better now at it.
If i have a good day and I do a lot......things I enjoy....example....we went up to Scotland today and I spent a long time hobbling about on 2 crutches....much further than normal....when I got home I started to feel sore......tomorrow I will be even sorer but I will say to myself......did you enjoy yesterday....YES....then its worth the pain and it will ease off again. BUT if i felt a bit better and thought of all the housework that needed doing and spent the day doing that. I would be sore and say.....did you enjoy yesterday NO......well that wasnt worth it
I'm so pleased that you are seeing light at the end of the tunnel
Dawn, how about that!! No pain or less pain....I haven't been pain free in many moons and all worse since Fibro hit me in 1999 and then over the years OA worsened.....
Back in Jan-April 2013, I took a new supplement called Anatabloc, it addresses inflammation and got about 4 incredible months and then it stopped....I was feeling a rebirth to the point that I thought I could fly to NJ to see my sister who is challenged with aggresive MS....but it all stopped....
I'm taking the Anatabloc again after being off it for a year and have not gotten the results that I first did....
Like my body needed that supp and then it stopped.....
I deal with the nerve damage/numbness from surgery and some days I THINK it will lessen with TIME, more time so I shall see....some HOPE thou.
You are one busy lady with the girls, my daughter is 51 and raising 2 teenagers on her own, the kids father died last year at age 55....poor guy smoked too long... She has her hands full, as they say when the children are small the problems are small, when they grow up, they are larger.....how true.
I hope you continue to feel better.
Grape Seed Ex is a great antioxidant and does help with asthma issues. j
I have been off of here for a while, but am back to respond to the discussion I began...seems like forever ago. First I want to say that I have been careful and particularily when needing to twist around. I have to walk it out. There are still periods of pain free and just when I thought they were becoming longer and more frequent, that blasted iliopsoas tendon bit at me again. So, I never know really what to expect. However, those pain free moments still bring me great joy so there is still light at the end of the tunnel.
Still no word on my appointment for the second opinion. Need to call and prompt again!
How wonderful Eileen that you live in Europe! I believe that all of beauty would press me to walk a little further! So glad you are getting out and I understand fully that inner talk with oneself about how far to push things.
Joy sorry for such a long wait on my reply. I want to try the Grape Seed Ex as soon as I can work my budget into place, which I am working on to the point of exclusion of all things that are wants.
Anyway, my periods of no pain and less pain have continued but right when I felt it was here to stay, that iliopsoas tendon bit me again. Now it is hurting more frequently. I still have not heard about my appointment in Nashville, TN at Vanderbilt University for the second opinion, so I guess I need to call tomorrow and prompt them.
I am homeschooling my eldest granddaughter and we sit side by side with our desk top computers, so I am sitting about four hours a day. Sunday I dared to try a short yoga stretch routine and was abruptly made acutely aware of how de-conditioned I have become with all the laying around over the last three years. First when the hip joints died, then layed around over the next two years with a total of five surgeries, 4 major. It sure creeps up on a person.
I took it real slow with the stretches and quit almost as soon as I began! Pitiful! But have had pain since. What are we supposed to do? We try to help ourselves but it pushes us back down. It is depressing to think about getting along, accepting, chronic pain. I guess we are all fighters on here!!
Keep taking care and as always, thank you for the knowledge you share concerning supplements.
Hi Jill, sorry it took me this long to respond to my own discussion! Have been super busy doing things I have been unable to accomplish for too long, and if you read the posts above, you will learn that my periods of pain became longer but then it came back. However, I was feeling good enough to try some yoga stretches on Sunday and barely got started and had to quit. I have suffered ever since. But, I am clinging to that light at the end of the tunnel that those pain free periods gave me.
Hope is stronger than fear, right? Still no word about my second opinion appointment. Thank you for all of your support! This site is a great place to be when one needs a bit of hope!
I'm glad you are still having pain free times or less pain times.
Are in the US? sorry cant remember if you mentioned it.
I know here that the hospital I go to in particular is very good. If I'm waiting for an appointment that I think I should have had by now I ring the consultants secretary and have a chat with her......more often than not it gets the ball rolling.....Do you know the name of the consultant thats giving you a second opinion?.
Are you still sore from the yoga stretches......I'm always told we should exercise {use it or lose it} but it has to be the correct exercise...not just any old exercise
I know I havent got your complaints,thank goodness......it makes me realise that that I'm not as bad after all when I read your posts...thanks. OA in neck, spine, hips, ankle, kyphoscoliosis, spinal stenosis and 8 months ago a fracture "greater trochanter bone" 4 weeks after my 2nd THR. They originally said they could do nothing, it would heal itself but take a long time...8 months and still on 2 crutches??? I was on the operating table and the surgeon was doing an aspiration of my hip a week ago and I said to him "will this fracture ever heal" No.....first straight answer i've had about it. I see him again in a couple of weeks time so will find out more.
I go to yoga now I suppose to a fit person its laughable when I say that but dont forget 2 crutches and cant lie flat because of spinal problems.
A lady who runs a yoga class said I have one for "older ladies"
I thought give it a try. A lot of the stretches are done standing up....I can balance OK without the crutches but dont ask me to move my feet or I'll fall in a heap Then when some of them get on their yoga mats.....{.I wouldnt be able to get up again} I sit on a chair as does one other lady and she adapts the moves to suit us.
I usually feel better afterwards.....sore maybe but better
I'm lucky ...I cant walk very far but can still drive so throw the crutches in the back of the car and go.
You have a great attitude and it should get you far
Eileen, you are an amazing person. I am going to continue with the yoga stretches slowly because just the 3 minutes I could last, caused instant inner joy about myself. Laying around is so easy to do with damaged or dead hip joints and then the pain pills, no matter how mild, dulled my senses and made me feel drowsy. Then with each of my five surgeries there were stronger medications, more laying around. I am so de-conditioned that sometimes I look at my body and wonder who I am as compared to how I used to be!
I too have a few of your diagnosis added into the mix. What I love about this site is that we share all of the subtle little things that can bring us comfort to know that we are not alone and to receive advice about how to overcome. Such a positive site!
And thank you Eileen for all that you share and how you support me when all the while you are suffering so.
I dont know how you can think I'm amazing....you've gone through much more than me.
I'm glad you think the yoga stretches will help....even if you only do a little bit. I missed my class today....it hasd been a mad day and now I'm shattered.
I dont sleep well at night at the best of times I'm not refreshed but today........Shattered
9am Dental appointment, Home, 10am Back into the car a drvie {only about 10 mins} to help at a coffee stop at our chuch, dirive home about lunchtime. Quick sandwich.....into the car again.....go for a mammogram.....Home, Actually sat for 30 mins LOL Into the car ....Meet a friend for coffee {had been arranged for ages} {30 minutes drive} after that onto a Committee Meeting for arthritis care, got home about 6.30pm....collapsed. Still have to get my Avon finished and sent off tonight but I have my doubts.....it should be sent in by 10pm tonight but the way I feel it might be tomorrow Blow them!!!
These forums are great for getting and giving support aren't they.
All I've done in this post is moan.......not so long ago I could have done all that without getting tired never mind shattered.
Oh yes...because of the rest of the day thats why I didnt manage to fit my yoga class in at 1.30
Sorry you got knocked down again. It's so tiring. I'm glad you are trying new things. I m hoping my revision will have a good outcome down the road but right now I feel like I could've dealt with it. Ahaha, isn't that the way we are?
Trying to tell ourselves we werent that bad before, when it doesn't even matter because we can't go back anyway.
Thank you for all the support, you and a whoke bunch of the people on here with THR are tough cookies and keep me strong!!