its a case of all change over last few days!! I have several new symptoms I'm sure are fibro, hoping someone else has them. I think this one is the most scary, I can't understand what I'm reading, nothing makes sense, it's like someone has put all the words in a bucket to give them a good shake then emptied them back onto the page! Next is the feeling in my fingers, it's like everything has an electric current running through it, even the lightest touch hurts, typing this is painful. The others are all new pains that could be fibro or the trapped nerves in my neck and spine, I keep thinking "does it matter which, it hurts a lot and whichever it is it can't be cured". I'm not getting depressed about it but it hurts so much the slightest movement is agony! I'm cracking when I move too, it feels like every joint is popping, ankles, wrists, shoulders, knees elbows and neck, I've put knees but it should be knee, the new one is fantastic! My hands won't close properly and the pain in my thumbs is so bad I can't lift anything. Now I'm sick of moaning, I want to tell myself to "shut up!!!", I'm sure my husband must get bored with my constant complaining yet he never says a word.
thank you for listening hope it makes sense, can't read it back, it's all jumbled.
Oh Shelagh I do feel for you. I thought I had dyslexia when a similar thing happened to me. Everything was pixalated. I even went to the opticians and the doctor - this was before diagnosis. Luckily it went and has never come back. Don't you just love Fibro the condition that just keeps giving. I too touch things and get an electric shock - no idea why and is something on the list to discuss with the doctor next time. You are not moaning just chatting to others with the same condition who understand. I am now the proud owner of an insulated mug with a lid and a rubber surround so I don't keep spilling my drinks because my grip is so weak. Try soaking your hands in warm water with some epsom salts added. Keep strong tomorrow is another day.
Hi shelagh I am experiencing the same as you hun its all to do with the fibro. my left leg and back keep cracking my righ thumb is painful and it like its on a hinge it bends then springs back. like you typing is difficult its very painful. as for jumbled words this is happening to me all the time. my emails and text to friends are a jumbled up mess at times. my brain fog is terrible Ive noticed its getting worse.all that youve explained what is happening to you, Its happening to me also and its to do with the fibro hun. here for you if you need to talk it helps to let off steam.. my 1st time on forum yesterday and I had a winge. gentle hugs thinking of you your not alone take care
Hi Shelagh, Mmm, I've just thought, how are you going to read your replies? Hopefully you have someone who can read them to you. Anyway, it sounds to me that you are just having a bit of a flare up. All your symptoms sound familiar, from others on here, if not personally. And Maggers reply is very reassuring re the vision pixelation. Take care Shelagh. xx
Know what your going through Shelagh..it will eventually settle...quite a shocker when we get a new symptom..but your on the right place here...try hard not to worry...try relaxation..yards said than done I know, stressless is the key to living with this Fibro...you are NOT moaning as Maggers says
" you just chatting as we all do" we are all in the boat with you...I had bad electric shocks on my hands last week all day..then it went..just like that..unreal isn't it...whatever you do please stay connected with us, we are from all over the world. We really care about each other as we really do understand..be blessed Shelagh and have a lovely day...:-) xxx
It took me quite a while to be able to trust one of those mugs Maggers, but I wouldn't be without one now...look a bit funny having a cuppa with friends though..lol..even take to cafés..don't know about a resturant yet...hang on... why not...hubby has to cut my meat anyway.....so why not..if it works for for me...why not indeed...lol ...be blessed..have a lovely day....very windy here tonight..:-) xx brrrrr
Had a sleep and the text has fallen into place again thank goodness . It is incredibly reassuring that others have had the same at one time or another, I think I'd go mad if I didn't have all of you to check things out on. I can't express how grateful I am to all of you. I've had this awful condition for over twenty years looking back I think it goes back to a car crash where I got a wedge fracture of my neck, that was in 1987, the following year I acquired a stalker, it was very scary as he would threaten me with his car. Police couldn't do anything until he physically attacked me, luckily he never did. Same year my dad had his first heart attack, my husband moved away to work and said he wasn't coming back because the doctor had tol him our newborn baby wasn't his, I confronted the doc, she said it was a complete lie she wouldn't say it even if she thought it and she didn't. Other things happened too so I think that may have been the beginning.
Hi Shelagh, firstly so sorry to hear you're in such agony and I really know that feeling of hearing myself whining all the time - it cant be helped. The pain on touching things with your fingers is something I experienced many years ago, at that time it was due to stress at work and I was off sick because of it. I seem to recall my doctor back then called it something like 'neurostasia' (although I cant remember the exact word so that may be slightly wrong). He said it was an inflammation of the nerve endings due to stress. I don't have the exact same thing now with my fibro but my skin on my arms and knees is sore to the touch - just went for more blood tests this morning and had to ask the phlebotomist to avoid my right arm as its total agony to touch it, luckily my fingers are ok, as I have to use a keyboard for work. I've not previously had any problems with my brain going blank or misreading words etc., but just yesterday I was in a garden centre with my partner and knew what I was looking for but couldnt say it, not just the name of the plant but couldnt even think how to say I needed bedding plants in trays. My other half just looked at me as though I was nuts I managed to look around and finally just pointed at the section I needed but for the life of me the words were lost. What the heck is happening to us - this is like an epidemic and the symptoms are so varied and differ from person to person but all lumped together under one dreamt up heading - 'pain syndrome'. I cannot and to be honest, will not, believe we all just have to suffer like this and the only offering is generally toxic pain meds, which in many cases dont give any relief! All my GP wants to prescribe is steroids - which firstly make me very ill and secondly, fellow sufferers on here state they're of no use as fibro is not viral or inflammatory and thus doesnt respond to steroids. What a merry go round it all is.
Hi, I've had the problem of not knowing the simplest words for a few years, when I worked my colleague was also a good friend so when I couldn't get a word we'd laugh about it then try to work it out, I miss that! Now my husband is stuck with it but we are on the same wavelength so he often knows what I'm thinking. The worst is if it happens in a shop or on the phone especially it it's mixed with the staggering drunk looking walk. I'm sure my neighbours think I have a drink problem yet I never drink alcohol !
have a great day, got to stop typing it's getting too sore!
Hi shelagh I have brought a hand with thumb surport from able world, it was £14.99, Ive found it a great help. it takes me ages to text and do an email as in alot of pain with right thumb fingers and hands. also have to keep checking what Im writing as my words are coming out all jumbled up. I keep getting cracking in my back and legs my left leg is the worst. its very heavy today and painful Im having to drag it along. Im struggling to get up stairs. Ive priced a stair lift reconditioned 1 from able world prices vary to what they have in they can start from £600 up wards. Im finding it a struggle to peg washing on the line as I keep dropping the washing as my grip is so bad. like you I get sick of moaning I keep telling my self to stop moaning and shut up. at least on here we can let it all out. take care hun gentle hugs coming your way. x
Yeah, usually we do have this fiibro for many years before being diagnosed, and spot on there Shelagh..it's caused from a shock to the system....usually seems to be more than one too...great you are getting some reassurance from this blog..keep in contact,.we care...be blessed...have a lovely day..
I've been finding over the last year of so, that it takes me longer to read and I used to be a quick reader galloping through books, now I take ages! I have always had eyesight problems and worn glasses since a child. I had verifolcals and managed with those for a long time but now I have to have proper reading glasses. I also get a shadowing effect, like double vision, sometimes. That frightened me, but the optician said its a musle weakness. Fibro again.
I have now found pottery insulated ones with rubber tops and a band of rubber around it. Pretty because it is covered with owls so it doesn't look like the usual steel ones. Have one at work as well now.
I'm with you on many of the points you have made and fingers all point to Fibro once again. Over 20yrs of pains they all come and go and some are here for a while. I try not to let the pains get the better of me. It's hard at times but one needs to have a strong will power on certain days and this can be a challenge. I always say to my self tomorrow will be a better day.
A few weeks ago i was joking about my brain fog. I was trying to say i'm surprised i remember my own name but ended up saying i dont remember what that thing is i'm called, well you have to laugh, it's a better option than crying. xxx
Aahhhh, jemini,(much better option) .... can sooo relate to that one..I'm always saying to my husband half way through nearly every conversation.." that thing ...you know it looks like...mmm then I'm blank again...awful with names too, but I call most friends and family precious. I never seem to forget that..mm interesting..have a lovely...... ????? O' yes DAY. ...be blessed..:-) xxx. We just have to laugh at ourselves sometimes....from frustration to laughter...good medicine...
We all know how your feeling, it might well be a trapped nerve I'm having same problem at the moment, can't actually feel my fi get tips at the moment, so excuse rant spelling mistakes,
I'm waiting a mri scan to fi d out if nerves are trapped in neck, remember fibromyalgia effects the back of neck so could be other but you should go to Drs , I have cervical spondolosis which just adds to the pains I already have, but today is my push forward be positive day, I'm going to see my unborn baby grandaughter today with my eldest, so the pains can go do one, because I refuse to let them ruin this day. Xx so moan away always here to listen xxxxxxxxxxxxxxx
I managed to look around and finally just pointed at the section I needed but for the life of me the words were lost. What the heck is happening to us - this is like an epidemic and the symptoms are so varied and differ from person to person but all lumped together under one dreamt up heading - 'pain syndrome'. I cannot and to be honest, will not, believe we all just have to suffer like this and the only offering is generally toxic pain meds, which in many cases dont give any relief! All my GP wants to prescribe is steroids - which firstly make me very ill and secondly, fellow sufferers on here state they're of no use as fibro is not viral or inflammatory and thus doesnt respond to steroids. What a merry go round it all is.