Just wanted to quickly say thank you to all the helpful posts. They truelly have made me feel so much better. I haven't been fully diagnosed yet with the help of a biopsy but after getting three different opinions from three different gynos and reading everything on here....I am pretty certain that I too have LS. I am 4 months pregnant right now and so have to wait until after the baby is born to have an official biopsy done but I have been living with these uncomfortable symptoms since the birth of my first child nearly 2 years ago. It is somehow strange but very comforting to be able to speak about such intimate details with all of you, knowing that you probably feel the same about most things. Don't get me wrong, I have so much to be happy and thankful about but....having LS certainly changes some areas of life....mainly the sex side! I used to have the most amazing sex life with my husband whom I still adore and find the most attractive man I've ever laid eyes on. But since developing what I believe to be LS, I dread even the idea of it. (He's being sweet and not making it an issue since I'm pregnant anyway and have been dealing with bad nausea but I know he suffers under all this as much as i do) . What some of you have described is exactly how I have described it too.....painful, sore, swollen, like getting papercuts or tiny glass splinters down there (the only symptom I don't seem to have, at least not as much as others, is the terrible itching)......even huge amounts of lubrication dont seem to help anymore.....and its not just the act of sex, its going to the loo afterwards, its wearing a pair of jeans and sitting down.....its knowing that you are slowly developing a phsychological block towards sex with the man you love more than anything. The whole thing is just a NIGHTMARE! So.....I'm so sorry for having babbled on about all this but it really does help to get it off your chest to people who really do understand what you're going through. Thank you Thank you Thank you
Bumbleicious, You poor thing. I feel for you, i really do. Have you been given anything by your GP to use to help you? I went through exactly the same feelings as you . Just the actual thought of sex made me completely tense up before i even got in the bedroom and then when my hubby (who isn't really understanding of what i was going through) made a move on me i would be as cold as a fish. I've said it before on this board that LS messes with your mind as much as with your body . I used to find after sex that a really good hose with the shower head helped me (sorry if that's too much info). Sperm was an aggrevater to me as well . It kills off any kisses and cuddles afterwards as i spend so much time in the shower, but for a little relief i'm afraid it's always worth it for me. It's a massive change to your life this bloomin condition , but you do , over time adjust . Allow extra time in the morning for applying creams etc . Routine is now , shower, hair, teeth, nethers , lol ! Go knickerless as well if you can . When you have had your baby and got a diagnosis then if it is LS you can then begin your treatment and get it under control . You sound a very positive person and that's a good thing as stress is a real baddie as well for aggrevating things, i find. Keep reading and posting and stay strong. x
Thank you so much for your kind and supportive words. As much as I don't wish this condition on ANYONE, it does help knowing that others are going through the same thing. Yes, I was given Dermovate but told to use it only for a month and very sparingly since I am pregnant. We didn't have sex for that entire month and then (stupidly) I put all my hopes on the fact that the next time we were intimate, all the pain would be gone but, no, it wasn't, in fact in didn't seem to help at all. I keep reading that you have to use the dermovate for at least 3 months at the beginning for it to really work so obviously this doesn't apply to me now since I'm pregnant but, do you know, does it really get better after that? My heart sinks everytime I think about it 
Yes , honestly , over time , it does get better . When you can properly get to grips with it and get it under control . I am just one person in many that are the proof of that. My labia had split down the sides into open wounds (more or less) before diagnosis, and it was awful to even try and walk , but with treatment you can live a full life again. It might be worth giving your GP a ring and asking him/her for some advice if you're still in terrible pain . Hopefully you will get some more encouraging posts . It's a big plus that you have a supportive and understanding husband as they go through the wringer as well with us. x