i have found that soy--any type, oil, lecithin, etc.--is a trigger for my oral lichen planus. Soy is in almost everything in the US so I have to read a lot of labels and ask a lot of questions but it is worth it.
Thankyou for your reply, I shall avoid Soy and hope it helps. I have an appointment today with my Dentist , I'm hoping he can help too.
Catharine .
Thanks for pointing that out; I switched from soy to almond milk when I thought soy (amongst many other things) was a problem. I can't say snything improved but your right about it being a hidden ingredient in many things!
Hi all,
I saw my Dentist and he confirmed as well as LS I have LP.
I love spicy food so I shall have to just eat it when not having a flare up.
Do any of you have pain in your bones, my lower back and cocyx are very painful when I get up and I wonder if it's my auto immune disorder.
Hope you are well at present.
Catharine.
How loyal you Catherine
Catherine, I too get lower back pain.
I attribute it to carrying heavy groceries for years & a fall I had 10yrs ago... these things catch up to us with age. However when I'm not well which is more often than not - EVERYTHING flares up... every little ache is magnified. A friend got me an organic heating pad ; it has some type of wheat or beans in it and I heat it in microwave with s glass of water. It's nice because the whereat/beans mold to your body.
Ibuprophen and naproxen don't even come close to this funny heating pad- maybe look online?
I have read that people with autoimmune disorders are more likely to suffer from joint aches.
That is very interesting. My GI doc recently asked me to stop all dairy, so I started using soy milk, and had a fresh outbreak of olp.
I have suspected I had olp for several months. But, my diagnosis was just confirmed by my dentist this week.
To make matters wors, I seem to have alternate bouts of olp and hsv2 mouth ulcers.
I'm in so much pain, and so miserable.
My dentist prescribed an $85 mouthwash. There is no way I can afford that.
Dear Catherine,
I've had problems with my lower back and sacroiliac joints for several years. I'm discovering that some of my problem may be due to herpes simplex virus (which I also have) that lies dormant in the lumbrosacral nerve root ganglia. I haven't had sex in 35 years, and didn't think there herpes was an issue. Due to back surgery complications I'm finding there is a connection that none of doctors even know about
Dear Trudy,
So sorry for your pain.
I realize lower back pain is common.
But, I too have suffered from low back pain for years.
Last April, I had an L4-S1 spinal fusion that didn't go well.
I'm really curious about how genetics and other autoimmune disorders play into oral lichen planus. I have a number of autoimmune disorders, olp is just icing on the cake. I'm 71 years old. Recently, I did a DNA test which showed I'm 46% English, 26% Irish. I live in the US. I've noticed, that some of my conditions seem more prevalent in the U.K. I'm just trying to make sense of this as I'm trying to cope with the pain.
Hi , I'm really sorry your operation did not go well, my daughter who is 40 is having vertebrae 4/5 fused with a piece of her own hip bone in April. I'm very worried about her.
Ive found a mouth wash using bicarbonate of soda helps , My Dentist has written to my Doctor to prescribe a tablet to disolve in a small amount of water and use as a mouth wash. I shall put the results on line when I get them , at the moment I'm waiting for a GP appointment.
if you don't want to use the bicarbonate as a mouth wash , I put a small amount on the end of my toothbrush with my normal toothpaste.
Hi noni9
Have you ever had a problem when you were younger with abnormal cells after a smear test I think the hpv virus is linked with olp and ls
Sorry Catherine I meant to say how old are you
My doctor told me to avoid toothpaste so I brush with a mixture of baking soda and coconut oil. Have been doing it for a couple of years and it works well.
I asked my oral pathologist re: OLP & link with HPV , she said there is no scientific link. She is even sceptical of the HCV link. However that's her personal opinion- I'm not sure I agree.
I think there's a genetic predisposition to autoimmune disorders (ie.allergies)... perhaps it may be triggered by hormones as OLPs highest population is middle aged women. Personally I believe in the HCV or some other virus must play a role.- I have had both HCV & HPV in my lifetime.
It's a lifelong condition since there's no cure. It requires a complete lifestyle change. It's VERY frustrating.
Thank you. I'll try that.
I recently underwent a prolonged period of excruciating pain and emotional stress that triggered a really intense episode of ulcerative colitis. I was treated with 3-1/2 months of steroids (to no avail), and had intense flare up of herpes simplex2. (No sex for 35 years.) This has been going on for 10 months constantly. Throughout this time, I have recurrent episides of oral lichen planus. So, I'm trying to figure out which of all these factors triggers the OLP. It is so painful. And nothing seems to help. Sometimes I wake up in the night due to the pain. Just ordered a bunch of tea tree oil oral health products. Hope they help.
I have hpv in my anus. Was diagnosed with hpv anal cancer in situ. Totally excised. Good biopsies for many years since.
Thank you, Catherine.
Someone else suggested soda and coconut oil as toothpaste. I think it's worth trying.
One thing I've noticed, a number of the auto-immune disorders I have also have support groups in the U.K. I'm English/Welsh/Irish. Thinking maybe there is a predisposition link.