Hi everyone. I'm just curious.i know I get the Fibro fog now and then but my biggest issue not being able to get my words.out properly I have to repeat the sentence a min of 3 times before I get it right. I'm finding that difficult to cope with. I'm 29 and a mother of 5 and looking at the confusion on their faces when I'm trying to tell them something is heart breaking 
I don't really think anything can be done about it. Does anyone else suffer like this??xxx
Oh yes Nicola; I think we ALL do.....and yes it is embarrassing.....and I have begun to think that this Fibro is here for us to learn something (wel let's say I'm trying to find a reason for ALL od these symptoms today).....maybe we now know what EVERY disease/condition is like.......as we seem to have a Bit of them all...........I have meant to say things, and they have come out all wrong (there are times when I just have to Not say anything as I know I will put my foot in my mouth)......and as others' will say, with 5 cchildren, you really do have stress..........I guess, if possible, it may come down to, for you, to learn to stop and think about what you want to say, before you say something to your children???? This can be a hard learning test for you, but it may become essential, as if you have 5, and you only 29, I guess they are all too young to understand your Fibro???....................Bron
Yes Nicola that's what I get when I have brain fog..thought it was brain disease at first....poor you and with 5 children too..it must be all so very hard for you...really feeling for you...hope things settle down some for you really soon.. gentle hugs, be blessed...have a lovely day..:-) xxx
I think the kids do pretty well to understand it bless them well my eldest 3 do. I tend not to look at the negatives so much now and stress used to be an issue put I have learnt how to push it away. I don't get stressed very often now. But yes I have had to slow down when I'm trying to say something to someone. It's tough x thanks all x
Yes me im34 with 3 children who are 15,11 and one I was counting to my one year old and kept getting to 12 and then starting at one again! I burst out crying it was horrible as I knew it was wrong but I couldn't stop doing it I also trying to tell the boys something like could u get the monitor and that last word will not come out yet in my brain I'm thinking it but the word won't come out ! That really upsets me 😢
Gentle hugs xx
Oh yes Sadie; this too, is a problem with Not being able to remember the "word" that you want to use..............and for me, too, is the spelling ( I was always soooooovery good at spelling.....top of the class and getting awards for same in spelling competitions etc)...but even when typing on here, I have to really think, and go over the words Many times, to make sure that I have spelt them properly
Hi Nicola51831 Its all normal hun and to do with fibro fog. Im forever coming out with the wrong words it is embaressing frustrating and upsetting. Im forever getting corrected by my husband and laughed at by my son which doesnt help. my spelling is really bad when Im trying to write anything words end up all jumbled up.Its sooooo hard for us when we know what we want to say but it doesnt come out right, half the time I dont realize what I have said is wrong until Im corrected on it. you take care big hug coming to you xx
Morning Nicola and the rest of you Fibro sufferers, just when you think theres nothing left for this Fybro to cause us then its getting our words out, i think all the stories of how the fybro affects us should made into one long list and shown to the PIP tribunal people, would be quicker just to say read all this because i can get any one of these symptoms or all of them from one day to the next. Im very fortunate i havnt experienced this myself yet, i just wake up feeling nausiated every morning and the itchiness i have been experiencing after having a shower, well im now waking up with before i have one. could the nausea and the itchiness be anything to do with the fybro i wonder which i get because of the M.E. i have.
Sue
Hi kaz how are you today?. I started gabapentin yesterday I only took one but it did effect me badly and when I got up this morning my husband told me I was having a seizure in my sleep! I knew nothing about it and I'm very concerned x
Like everyone else here, my thoughts and words are chaotic at times, but my short term memory seems awful too, my daughter tells me something and half an hour later I ask her the same question sometimes because I can't remember her answer, sometimes because I don't remember asking!! My spelling is worrying me too, as an English teacher, my spelling, or lack of remembering how to spell sometimes simple words is getting to me. I am trying to accept it as part of the fibro, and not beat myself up about it, and laugh at some of my silly words like parcark instead of carpark, but I do get frustrated and annoyed when I can't remember!
Hi nicola51831 My advice is hun dont take any more of those tablets contact your gp asap, tell them what happened. Any side affects from meds should be reported to your gp straight away. please get in touch with your gp today dont take any more of them. Im very concerned what happened to you. let me know how youve got on when spoken to your gp take care big hug coming to you xx
Hi susan556 I have had the itching and the nausea its all part of fibro Im afraid. I also have ME as for trying to get words out I struggle with words spelling and speech every day. when I try to write anything words come out all jumbled up Trying to tex is a nightmare all we can do is plod on take care
Hi nicola
Yes we all do it, this morning I was trying to say the farmer is muck spreading , but it took me 4 times before I could say muck.
I was so red in the face.
Yesterday I went to the bank to start a standing order for the 30 September or the 1 October, but I said 30 September or 1 December!! The lady said October comes next. I felt so stupid.
It's rubbish.
Take Care Mace x
Thanks kaz doc has told me to stop taking them. So iv now tried pretty much any med the doc can give me and I react to them all so I can't take anything x
Hi Hun I was exactly the same turns out Im allergic to opoids, I dont take anything for pain at all. just use wheat bags hot water bottles. has your gp tried you with a pain patch, that was the last thing I tried it went on my back. I had the lowest dose she could give me, I reacted that bad my husband had to ring hospital. My gp tried me on everything the patch was the last thing. theirs quiet a few of us that cant take anything take care gentle hugs xx
Oh crickey I will ask my gp next time I go x
OMG no i had no idea that fibro caused itchiness and nausea too. Aww all this with the menaopause too, how do we get through the day, trying to get people to understand well they just dont, im even dreading visitors latley too, how bad is that. I plod on, make myself look as good as i can, smile, makes cups of tea, chat, give the impression im ok, always messing up with texts too, having to re read everything before i send of late. this will make you laugh, i sent a message to my son you coming around later Sh....t (one letter missing hear! ) Thing is we must have a sence of humour even if its with in ourselves lol Take care
Sue
yeah i have one and she looks at me like to say what are you on about
hi nicola ive been having the same problem lately with my speech i was recently put on setraline 100 mg as i have anxiety disorder and fibro i am on other medications alos but i have found that this 1 was making my jaw wobble confusinf me all the time and my words didnt match what i thought i was saying or trying to say its so embarrassing and upsetting i havenow halfed my tablet but i understand what you mean im 33 i dont have children that must be awful for you maybe try and see your gp and chabge some of your medicaion??if you are on any that could be doing this to you i know that fibro itself can make us act a little different
Yes, I also have ADD but only take my perscription on work days. Even with it, I have the foggy brain and words will escape me but more often when I don't take my ADD meds. In my family, I have it, one of my sisters has it, my mother, both of my grandmothers, 2 of my cousins and 3 of my aunts- there are varying degrees but we all have it, you should hear the conversation at a family reunion. It can occassionally be embarrassing in some work situations, though most of my coworkers are used to it.
I will say that when I was being tried on various perscriptions for severe migraines that some of the medicines made it so terribly bad. Have you started taking anything? Even certain vitamins and supplements can have these kind of side effects. Even if you arent taking anything, you have fibro and you have 5 kids to distract you, it's going to happen. My mother used to call out all of our names in a row because she couldn't remember who she wanted to yell at. I attempt to think out my words first but it really slows the conversation down.