Hi all, I've been through the mill. I started taking an infusion of Actemera, and came down with a very bad cellulitis infection in my legs. (Stopped Act.) Stayed in hosp. and rehab a couple months. Came home better, but the rheum saw a little problem with liver labs so she had me stop the hydocloraquine and another hydrosteroid (I can't find the name). These seems to me to have been helping the prednisone somewhat because I am so flared up with the PMR type pain and can hardly walk without crying aloud. I am taking 22.5 mg pred., high, I know for someone who has had this pain for years and years it seems. Also have fibromyalgia, arthritis, etc, but I know this PMR pain. It is in my shoulders, hips, legs, etc. What do you all think?
So sorry Debbie - but it’s back to the drawing board isn’t it? Really don’t know what to suggest.
Thanks anyway. I just had an exray on my sacriliac and it showed a lot of arthritis that could be causing the pain in my sides, so hopefully a shot will help.