Hi guys, I'm really hoping someone can help. Since I was about 11, I've been experiencing very strange episodes that are taking over my life, I've had scans & been put on all kinds of meds which haven't helped, I remain un-diagnosed.
I have no known trigger, Or pattern. I can wake up from sleep having these, have 7 in one day then none for a week.
So here it is. I never know when I'm going into one. When I do, I am in full control of my body & I can speak but I usually say very strange things that make no sense, and I'm not at all aware of what I've said after. I usually talk through the whole thing. I have symptoms of panic, heavy breathing, thinking my heart is racing when it's not. I'm usually quite scared/ upset or I cry.
When they're ending sometimes I wretch uncontrollably, and when I come out of one I stutter uncontrollably & usually have no idea where I am or what I'm doing. They do seem to also affect my memory in general.
I also went through a phase when having them. That during one I would curl up in the corner of a room as I was terrified that someone was coming to get me. That doesn't seem to happen anymore.
On days/ weeks when they are very bad, I tend to feel on edge & un safe all the time, like someone is coming to get me. I never feel like myself. When they very first began they weren't as complex. I used to just go into panic because I would suddenly feel like I was in a dream & nothing around me was real. They were in short spells but still had no trigger or pattern. I'm now 25 & they have been getting worse.
A while back I had a whole year without any! Until one day walking through town I had one, I rang my mum & burst into tears in public.
I've had cbt therapy, brain scans, beta blockers and alternative therapies.
Epilepsy has been ruled out.
I feel like I'm always running into a wall,
I've been fired from jobs because of them,
People look at me like I'm faking. They are completely awful and take over my life. I read up on NEAD and they sound similar but I'm still not sure.
Sorry for the super long post guys but I would love any support and any tips on this if you recognise it & tips on managing bad general anxiety ❤