Hello,
I’m from Poland, so sorry for my english…
I’m 35 years old. I am HIV positive. Undetectable. CD4 - 91 cells.
In November 2018 I came to the hospital with a diagnosis of PCP with the etiology of Pneumocistis jiroveci, pO2 48.9, pCO2 27.3.
Since then, unfortunately, I have problems with my condition, consisting of sometimes faster breathing, faster fatigue (admittedly I am slightly overweight, but conditionally I have never had major problems being a rather physically active person). In addition, there are chest pains radiating to the jaw and back (in the area between the shoulders unpleasant feeling like stinging).
CT after PCP showed frosted glass image with thickening of the stromal partitions, dominating in the upper and middle fields with a predominance of the left lung. In both lungs there are visible 5-16mm nodules in the upper and lower wages, and in the left lung there are densities with the fibrosis component, a 26mm subtrogeneous node.
Another CT scan in March 2019 showed regression of right lung lesions. In the left lung appeared a few minor nodular lesions. An EBUS bronchoscopy was done, after which I was directed to a bronchoscopy with the examination of bronchial lavage - BALL.
At the beginning of August CT was performed again - regression of changes in the 6 RL segment, regression of changes in the 1 RL segment. Further changes of a frosted glass image, nodular changes at the interlobular fissure in the 8 RL segment, pleural plaques in the lower lobe LL, subtrogical node 16mm.
In the BAL study, inflammatory cells were found, no tuberculosis was found, but quite numerous Streptococcus Equi colonies were found.
I learned so much that it is a bacterium that attacks horses. I wonder how because I have never really dealt with a live horse. Yes - I saw horses in the stud long ago, but I have never touched any horse in my life.
The doctor said simply that he does not know how to treat because he has never met it. Until there are no additional symptoms I am still on the antibiotics Biseptol (Sulfamethoxazolum 800mg, Trimethoprimum 160mg) 960mg 1 daily and Metronidazolum 250mg 1x daily to protect against opportunistic infections with HIV, until the reconstruction of CD4 cells above 200 and ARV Genvoya 1x daily.
I don’t know if this bacterium is contagious to others, or what to do in that direction. Due to the lack of any more severe symptoms I am registered in February 2020 for control CT and BAL and to the pulmonologist in … May 2020.
Where could this bacterium come from, how to deal with and what should I deal with and how to get rid of it? Is that dangerous? There is nothing on Polish forums and residual information on foreign ones.
I will be grateful for your response.
In addition, recent blood tests include:
PLT 352
Hemoglobin 14
LIMF 1.18
MPV 9.3
PDW% 10
PCT% 0.33
CD8 839
CD3 950
CD4 91
CD4 / CD8 0.11
Viremia 0
VDRL negative