After several weeks almost pain free with none of that feeling of utter fatigue, I have today proved to myself that PMR thrives on stress :!: One of my best friend's died on Sunday after a long and difficult illness and then yesterday I sat listening to a paediatric cardiac consultant telling me and my daughter that my lovely grandson (14) needed major heart surgery soon - and today :?: Ouch!!! Everything aches and I'm shattered 
. I feel flattened - my grandson's reaction when asked how he felt about the operation? 'I'll deal with it and can I bring my laptop in with me :lol: ' don't you just love kids :magic: I hope everyone is well.
Lizzie xx
Oh Lizzie....what a horrible time for you :cry: . My sympathies to you on the loss of your friend...good ones are much treasured and hard to lose.
I do hope that your grandson gets his surgery soon and that all goes well for him. I worked as a cardiac surgery intensive care nurse for most of my career, so if their are any questions that you want to ask just PM me and I will do my best to help.
Lots of virtual hugs :hug: and a guardian angel for your grandson :angel:
Love, pauline
LizzieEllen ,you just didn't need or deserve this. What did Shakespeare say about trouble coming in battalions?
Another Guardian Angel for your grandson from me. :angel:
BettyE
LizzieEllen
Hang on in there, you, your daughter and your grandson will get through this troubling time. Just do not struggle and do not hesitate to go up in your steroids. Better slowly up than risk a flare.
I can only send healing thoughts.
Oh and when you feel like screaming at the moon do so and then come here and scream again.
Oh Lizzie Ellen, I'm so sorry - how hard for you and your family, plus the loss of a good friend. Even if one knows it's coming it's still a shock.
Do take care of yourself, we're all with you.
May your guardian angel be there for you too.
With my loving thoughts, Green Granny
Oh Lizzie Ellen I am so so sorry to hear of the loss of your friend.......having lost my best friend last year can really identify with you and hugs :roll: :roll:
Re your grandson, I can only begin to understand how you must be feeling. They do such wonderful things these days so we must err on the side of all will be well..... sending your family positive vibes for healing and you will all be in my thoughts :roll: :roll:
Oh no
What a terrible time for you Really good friends are few and far between and it is hard to think you wont see them again
Your grandson will hopefully with his attitude keep you all positive as well The greatest thing about operations nowadays as they arent usually as invasive as they were so recovery is that much quicker and we will all keep our fingers crossed for his rapid recovery
You will have to take it easy as you have said that PMR doesnt like stress and I found this to my cost last year
Take care and thinking of you
Mrs G
Dear Lizzie Ellen
My heart goes out to you, your daughter and your lovely-sounding grandson. No surgery is ever welcome but cardiac surgery more than anything has come such a long way over recent years but it's your flesh and blood and I can imagine just how bad you are feeling for all of you.
As for losing your friend, I can so sympathise with you as I had the same experience just after Christmas and, in fact, I had all the friends from our little 'group' here for afternoon tea last week in memory of dear Jo. We missed her at our gathering and can't believe we wont see her again.
It's almost unbelievable the effect that stress has on us PMR sufferers and I'm so sorry to hear that you are aching after doing so very well for so long. But chin up, Lizzie Ellen, and if you have a Tai Chi class anywhere ne :hug: ar to you, I can't recommend it enough for its relaxation benefits and I'm sure you would find it very helpful at the moment.
We went to Winchester one day last week and as I passed the sign for Basingstoke I thought of you - did you see me waving?!! :cheerup: :goodluck:
Big hugs to you and your daughter :hug: :hug: and good luck to that cool grandson of yours. 8)
Love, MrsO xxx
The wonderful thing about kids is they don't put all the twists into things that we might do. Bless him - and he'll be fine :cheerup: !
There's nothing to say about the loss of your friend that will make it any better or less painful - except that a friend of mine who has suffered severe and constant intractable pain due to seriously dodgy neck discs which threaten to paralyse her once said to me - as if reading my mind in fact - \"You know the best thing there must be about the after life - we'll wake up and nothing will hurt!\". It may sound flippant and/or morbid but we both sat and howled with laughter and reflected on looking forward to it.
An extra steroid or two and some serious TLC - and celebrate your friend's life. Hug the memories.
hugs for you from me and a very virtual one for your grandson - he's far too grown up for that :lol: :hug:
Eileen
So sorry Lizzie Ellen to hear your sad news.
And yes, PMR certainly does strive on stress. I am almost sure it was stress that started my PMR off.
Its easy for us to say try not to worry and get upset, but please do try.
Hope all goes well with your granson's op. He has youth on his side and as the young seem to do, will no doubt sail through it easily.
Best Wishes,
Gilly.
Lizzie Ellen
I'm so sorry to hear about your sad news and the stress you are going through.
They can perform miracles with cardiac surgery nowadays. I'm sure your grandson will take it all in his stride from what you say - but your daughter will need your support.
I agree that stress does seem to be a major factor in this PMR - try to give yourself times every day just for you when you force yourself to empty your mind and relax (I know how difficult that is).
Thinking of you
Beev :cheerup: :choc:
Dear Lizzie Ellen,
so sorry to hear of your news and just wanted to echo everyone else's thoughts to you.
Sending much love and many best wishes to you and your family
Julia :angel: :hug:
Dear LizzieEllen, I have lived long enough, to have been There and Back a few times. We need lots of love around us, and, although we are virtually strangers, our love on this site, seems absolutely tangible and very conforting. Keep in touch. There IS LOTS OF LOVE on this site ! We are here with you and for you. :love: Granny Moss xxx
A huge thank you to all my virtual friends :hug: . The love, support and empathy is, as Granny Moss says, almost tangible and so much appreciated. I will PM Pauline if that's OK as I have several questions I didn't want to ask in front of my Grandson. I feel more positive today. I know my friend is in a better place than she's been for many, many months and my Grandson is delighted that Nannie has promised to buy him a dongle so he can use his laptop in hospital :lol: As I've mentioned before, he has a genetic disorder and he's steroid dependent so that worries me, but I feel sure he's in safe hands. Today I treated myself to an extra 1mg for breakfast :yikes: (actually I just didn't do today's drop!). You're such a lovely, lovely group of people and its the one advantage to having PMR. Keep well.
Lizzie Ellen (from a very cold Basingstoke :brr
Just been rather overtaken by technology :? I sent a PM to Pauline and it said it had been sent. However, when I checked, it was in Outbox but not in Sent - HELP! Pauline, please let me know if you get it and if not, I wonder what I have done wrong. After all this time, I've never used PM before, so no real idea what I'm doing :yikes: And while I'm on the technical stuff, what are the little indicators on the left of the post title? Some move and some don't - by deed of elimination I'm thinking that the ones that do not move are subjects I haven't commented on. Am I on the right track? Its about time I knew how this site worked isn't it :lol:
From a beautiful sunny but freezing cold Basingstoke
Lizzie
Lizzie Ellen
Certainly the fixed yellow symbols are the ones you haven't read but, like you, I've always wondered why some of the ones that we have read which say on clicking \"no new posts\" are dancing away. I think that the PM you sent to Pauline stays in your outbox until she opens it - I'm sure someone will come on and put me right if necessary on that one - Rick, you are our expert on such things?
MrsO
Thanks Mrs O. My message made it to sent! I feel quite proud :D I'm now off to put my feet up, eat a big dish of fresh pineapple and read the paper. Bliss :tomato: (I'm improvising!)
Lizzie
PMR and Thyroid Problems
CathyG
I respomded sometime ago about having these two problems together but somehow some my posts do not get on.
Anyway, I'm almost 86 years (young?- 3 more days) and have had hypothyroidism since I was 18. It began after the birth of my first son. I've been on some form of thyroxine ever since. I've had PMR for (at least) 21 months now. Started at 15 mgs of predmisone and am now at 2 1/2 mgs. It was pretty rough at first but have come down slowly and fin the advice of all of our fellow sufferers so very helpful! Many thanks to all who read this - may God bless tham all!
Yes, I have heart palpatations sometimes - not too often - but I rest and try not to get to excited about them and calm my mind and soon they subside and my heart is beating normally again. I also take a blood pressure medicine and that seems to agree with the thyroxine and prednisone OK = but so many medicines I have had allergic reactions to, I am very wary of taking anything more than these.
I lead a pretty normal life (for being so old - ooh - there I've said it). I keep house for myself and a single son and when the weather permits - play eighteen holes of golf once a week.
I do have aches - but nothing severe - and I do tire a lot. But by resting every now and then and falling into bed by 8:30 - that is if there's not a family party going on- I get by fine. I say family party because I have a raft of kids- grandkids and great- grandkids.
Well, I've gone on long enough. Just know that you'll come through this fine and that you have someone out here sho knows what you are going through.
Tinker