Struggling so much with labrinthytis

Hi, I was diagnosed with labrinthytis about 4 weeks ago but had symptoms a few weeks before that. I'm a mum of 3 young children and everything is really starting to get on top of me. I can't focus on anything, objects always feel as though they are a moving. The dizziness seems so much worse this last week. I feel like it's never going to get better. I've been trying to continue with things as normal as much as possible but it's getting increasingly harder. I feel spacey most of the time and lately just keep crying. I don't know anyone else that has had it. Any advice or anything to keep my spirits up would be great.

Hi Kanina

I have been diagnosed with the same thing. What helps me is I Get ice packs and put one in back if my neck and one on my chest and I try and drink a lots of water. It helps calm things down some especially the stress.

I Hope You Feel Better. 🌻

Hello kanina. I was diagnosed firstly with labrynthytis. Then it progressed to vestibular neuritis and vestibular migraines. I have had these symptoms 6 months now. I have ok days and not so good days. I started when I had a virus in March it damaged my balance nerve in my right ear. I have dizziness every day. I do vestibular exercises 5 times a day to help desensitise it. I have just gone back to work. You must keep positive you have got to fight it. I'm taking beta blockers, magnesium and riboflavin. I see a vestibular physiotherapist she is very good she also suffered with it a few yrs ago. She understands me. Has your doctor prescribed anything for you. Take care Gill xx

Hey! I'm also a mum to three young children. I remember how tough those days were in the beginning. Awful. But around the three month mark things got easier. I'm now on month 5 (nearly 6) and while still not 100% I am about 85-90% and can do my lifestyle as usual. Sometimes these things take time (and a long time) but recovery is possible! Are u doing any VRT exercises to help? Moving around and keeping busy is the best thing u can do to help recovery.

Hi Melody

I just went online and viewed some vrt exercises, how many times a day to you do them?

My ENT never Put Me On Them so I am going to try them slowly.

Hello Gillian

My ENT never put me on any VRT Exercises.

On went on website and saw them. I want to try them slowly to see if I can get some relief.

Do they help with the off balance and spinning? The back of my neck is always sore like I have been lifting weights when the only thing I am lifting are ice packs. 😃

I would try to get doc to send you to PT. They can get you moving in the right direction. Doing them wrong or to much will make you worse. I been there. They can also try epely maneuver if it hasn't been tryed yet. I started off with 4 eye excercises , 60 seconds on each, 3 times a day. Was to much. Made me sick twice. Called PT to tell My therapist. She called me back 10 minutes later between patients. Cut my time in half. Said we have to go slower with me. You get anxious wanting them to help you so you push it to far, it will push back, HARD. Twice it made me sick to my stomach. Way dizzier than I already was for 6 hours. I been dealing with this 10 years. Been to PT alot of times. They will help but it's a slow process. Gotta take your time. Do them right. Start off slow. Gradually increase times then speed.

Btw the anxiety it all causes is normal. We all get that to. But it will make your symptoms worse. Try to calm down. I know it isn't easy to do. Hope you get better soon.

Hey karina, do you have any sensitivity to any light?

I went on YouTube and searched home vestibular exercises. I clicked on the one with an Asian looking man and he tells u how many times to do each one :-)

Oh I did that And He Is The One I Chose 😁

Thank You

He's the best one I have found! All the very best! Have u been struggling long?

Hang in there I know it's hard I have been dealing with that for 35 years I get so dizzy I cry my eyes out and kinda weird pee a lot I'm only 36 years old all I do is go hide breath and focus..don't eat a lot of salt and drink a lot of water slowly tho!!! My hardest thing is driving and working no Doctor has helped me any just take it easy don't stress that will trigger it o know I have a two kids

since December of last year. I am presently in the emergency room because I Have been very bad for 9 days.

The spinning and off balance, nausea feeling of passing out, I just couldn't wait for my appt. On Monday with my ENT.

I did that the first few times. Then found out they just repeat the same tests over and over. Make them do different ones. MRI etc. Rule out stroke etc.

Sorry to hear it's been so long :-( I found an article online about a woman who had labs and had it for 2yrs but that's because she was never told to keep moving and spent a lot of time on vestibular suppresants and in bed. I hope they help u

After 8 hours in ER and all kinds of test, I have an infection in my inner ears with inflammation and lots of fluid. All blood work, EKG and chest xray we're normal.

They took pictures of my head and said everything looked good no sign of stroke or tumors.

Given an antibiotic and Valium just when the symptoms get bad again.

So I pray that I have some calmness, I see my ENT on Monday hopefully he has answers for me.

Hey. I did at the beginning, that's really where my problems started. I thought there was a problem with my glasses but then all the other symptoms kicked in.

I haven't done any VRT exercises as the Dr told me it would clear on its own and that was all the information I was really given. I'm going to go back to the drs Monday and ask to be referred to an ENT specialist. The symptoms were pretty consistent over the 3rd 4th and 5th week but this week the dizziness has been horrendous. I feel utterly miserable and guilty that I keep having to tell the kids I'm still not feeling well. 😣

Glad you atleast have some answers. The valium should help with vertigo/ dizziness.