Hi I've been diagnosed with fibromyalgia for the last two years but suffered with it for the last 13 years I've been getting worse and worse the longer I have been battling it and now I'm bed bound for the past five weeks I've been going to the Dr's over and over again but can't get them take me seriously they keep giving a low dose of anti depressants but nothing for the pain I have constant Migraines I'm feeling sick and confused and every where on my body is aching my legs and feet feel like they're being crushed I can't even walk around the house but i was told by my Dr it's all in my head because I made it to the local Dr's I don't know what else to do I've seen so many Dr's none of them will send me to a rheumatologist I feel so deflated and I don't know what the next step to take is I'm fed up with fighting for help that I'm not getting I'm a single mother and I don't want this illness to affect my parenting no more I have no energy left in me I just need more support and help I struggle to breathe has anyone been through something like this
Hi Chloe
Sorry to hear all that - have they tried you on pregabalin ? I’ve taken a number of antidepressants as per so called specialist to no avail so I’m trying this now - not taken yet so wonder what everyone else thinks ?
Thanks and good luck
Thank you no I haven't tried these I have a problem getting them to listen to me they they talk at me instead of with me so it feels like my opinion doesn't mean anything to them
Hi I have been diagnosed with fibro, there is no cure , the best thing u can do is force yourself to get up and go for short walks at a time or a gentle swim as exercise really is the best thing for it.. I find it worse when I sit and lay around . Even If they send you to rhumotologist all they do is confirm there is nothing serious wrong , you will then end up living on painkillers . I am trying to manage without having to take gabepetin as makes you like a zombie . I promise if you get out and move aroundcthings will improve good luck
I've tried walking but it makes me worse I become so exhausted I feel like I'm just going to faint and muscle pain goes from a 6 to 9 its hard because a few years ago I could cope with the pain alot more but 2018 has been a nightmare on the pain scale I feel like the longer I suffer with it the worse I get i feel trapped at the moment and I can't get over the latest flair up which is really weird because I usually only have a flair up for a few days rather than weeks
For the past ten years, I suffered all the symptoms that you have, and went to see many specialists, they also said that the problem is in my mind. In my case, I also have a gadolinium poising issue due to having many MRIs with gadolinium based contrast in the past due to my health condition. So I think that all my symptoms could be caused by Gadolinium poisoning too. I'm just wondering, if anyone in this group also have had MRI with gadolinium based contrast experience. I'm looking into this possibility cause of my symptoms now.
Hi Chloe,
I get so cross when I hear things like this.
Can I ask who diagnosed your fibromyalgia, if it wasn't a Rheumatologist or someone who specialises in this condition, then your GP has a duty of care to refer you on, as various tests need to be done in order rule out certain conditions.
Your Doctor owes you a duty of care and if they still refuse to refer you, then I would certainly recommend that you change your GP as it's not right to fob people off by saying that it's in the mind. x
Sorry to hear that I personally haven't had any MRI's just blood test I hope you can find the answers your looking for.
Has anyone taken Pregabalin / lyrica ? Rather than Gabapentin ? Any positives ?
Blueboy, with respect it might be an idea to start your own post, this one was started by Chloe and it's in danger of being taken over by people wanting to talk about certain medication. 
There is a new medical test offered by EpicGenetics for FM and a drug called BCG which is waiting to be approved in 45 days . Google both
Thank you I'm glad you agree with me I feel left behind I feel like I've been fighting this battle for decent care for years and I'm getting nowhere with it i think I might have to change Dr's surgery but I'm just scared of having another GP telling me there's nothing they can do for me and basically it's all in my head.
Thank you I'll have to take a look at these.
yes, I have been there.. Don't give up.. Ask your Doctor to make an appointment with a rhuematologist for a CONSULT to rule that out.. If you put it that way, im sure they will agree..hopefully...Have u tried LYRICA?
yes, I take Lyrica and love it.. I stopped for two weeks. because I ran out and then there was an insurance issue and I definitely knew the difference.. NIGHT AND DAY. I am also on 325mcg of percoset 3x a day. My doctor said LYRICA and Percocet work wonders together. The Doctor was correct. im not saying im pain free but it has made a huge change in my life...
My GP referred me to a pain management Clinic where I met my current Doctor . She is Awesome. Very strict because of narcotics, etc. I also see a rheumatologist who is specializing in things like Fibro.. I really got lucky.. Do you have a pain management clinic near you?
I'm so sorry to hear that no one wants to take you serious. I truly feel your pain. Is there any other way that you can seek out your own doctor's? Do you have to have a referral which is why you say that the doctor won't send you to one? I've had fibromyalgia for 18 years now and have gone through quite a bit of doctors that didn't want to do what I needed them to do. It shouldn't be as hard now that there's finally a diagnosis code for it. With this illness we have to advocate for ourselves. And I know it's really hard having small children. God bless you and I'm praying that you can get the support from the medical field that you need. I was never told that it was in my head but I was told that that particular specialist office did not believe in fibromyalgia. A rheumatologist, he said that I had cervical spondylosis instead. You have to kick those that are not going to help you to the curb. Yes, it's frustrating but keep at it. You will find the doctor's that you need. Take care of yourself.
No I live in a isolated part of the UK where funding for NHS isn't good at all and if its not life threatening there's not a lot they will do for me I don't know any other fibromyalgia sufferers in my area and I can't find any local support groups either I've seen about 8-9 different gp's and haven't got any success with any of them I've asked so many times to be referred but every time I bring the subject up they change the subject back to mental health which is frustrating for I was even told by one Dr that rheumatologist's doesn't want to see people like me which I don't believe I honestly don't know what the next step to take is.
Aww thank you for your kind words no I haven't seen any other health professionals just the local GPs I have asked for referrals but they never let me I'm a wreck lately I've begged for help off them because I don't want it to affect my parenting but they won't give me any.
It’s absolutely disgusting that this goes on ? Have u tried suggesting drugs to them such as lyrics that you could try ? Are you a member of any group ie fibromyalgia UK or anything where they can help
Good luck