im so glad I've finally found a forum. I've struggled with meniers ever since I was 17, I'm now 26 and have a 7 month old boy. This last attack doesn't seem to be going after having it for two weeks, feeling dizzy everyday, having naps, going to bed at 7pm. I have been taking Betahistine 16mg three times a day and water tablets which don't seem to be working. I have gone back to my doctors who gave me buccal tablets which I've been taking for a few days which I'm still dizzy and sick with.
In the past I could sleep it off and wake up feeling normal. However, it's not like that this time. I'm tired all the time,I wake up in the night feeling really hot and the room spins and I have to be sick.
I dont drink alcohol and never have, I don't drink caffeine, I have a low salt diet. I take my medication.
im seeing a ENT specialist on the 14th January, but I'm really struggling this time round as it's not just me. I'm on maternity leave with my 7 month old and I'm too scared to leave the house in case I get an attack and can't stand. Does snyone have any suggestions or has been in a similar situation? I wish there was a better way to cope. Thank you
I suggest increase the betahistine to 32mg x3 a day, ring doctor to ask his advice if in any doubt (but its yr body) til phase passes. Buy Stugeron (cinnarizine) at chemist and take two every day til this phase passes. Keep out of noisy situations/people I know noise can set me off. Keep us posted? X
Hi Melanie, it's very sad to read your post, it sounds awful what you're going through. I just wonder/hope they've got it right or if perhaps there's somthing else ailing you and combining with it at the same time because I'm now convinced thats what happened in my case. I'm only asking this because in my own experience at least, it's all too easy for the Medics to find a box to put you in (supply you with a 'name' /diagnosis I mean so you'll go off happy). Better hastily add; I have no grudge or resentment againsed doctors even if the above makes it sound as if I do.
Won't say any more as I'm sure others will be able to offer better advice. I'll just say that as a lifelong sufferer of ear centred problems myself I do know how it does so badly affect your life.
Welcome to the forum, have a good read, there's loads of really helpful posts, some more than others admittedly. On this one has to make their own mind up of course but most are well meaning. My best wishes to you.
Hello Melanie, it is very important to get several opinions regarding your condition.
I found relief with the neurology dept.at the V.A. in Albuquerque N.M.
Problems with the brain can very closely resemble Menieres.
I had several Doctors who were wrong. I did not have Menieres. I listened to the wrong people over twenty years.
See other people.
Good luck. Dan T.
Hi Melanie, I'm sorry to hear of your situation. As a guide I'm on waterpills, betahistine to 24mg x3 a day and lots of vitamins. Try to figure what triggers it off, for me it is loud noises and noises places and likely sharp banging noises. Some people get triggered off visually.
Hope you get better soon.
Hi Melanie,
Hope your latest episode is wearing off and that you're feeling a little better today.
Sometimes it can take weeks to get back to normal after an attack, and the best advice I can give is to increase your Betahistine to 32mg x 3 and try to rest. I know it may be hard but do try and get about a bit (walk outside) as I find that fresh air and open spaces are better for me.
Take care and try to keep your chin up!
O Dear You are feeling not well at all are you
Now I find that I take one extra Betahistine and 2 paracitermols also i know it will sound odd buy buy yourself some Sea sick bands that go around your wrist theses press on the pressure points that stop sea sickness keep them on at night as well they will help.also dont put yourself into places full of noise ,shut your eyes if you are traverling in bright sunlight as this will trigger an attack .
I am 66 now and have started to use a stick not that you will do this as you are far to young but any body else of my age this helps as well.
Thank you everyone SO much on replying to me. It's so good to know I'm not alone as sometimes it feels like it. I will take all of your suggestions into consideration and try to see if it works for me. I'm looking forward to seeing the specialist as I hope I will find out what my trigger is. Thanks again
I suffered for 7 months with the same vertigo being sick loss of balance pressure in my ear deafness etc from feb to August 2014, got diagnosed with MD in August and consultant booked me in from grommet insertion in affected ear. I am soooooo please to say apart from the odd dizzy spell when I am tired or stressed been absolutely fine 😃 I was on the same meds as you I've now stopped all medication as well. Maybe worth having a chat with your consultant about this it definitely worked for me, good luck abby
Ps read up on the Internet about it. It's a very simple procedure that takes less than a minute to insert and virtually pain free I carnt believe a suffered for so long had this done and effects were more or less immediate
Hi sounds awful. Really important to reduce stress, lots of rest, regular meals, eat well, also I find the sea sickness band works for me. Good luck.
Hope you are feeling better.
I certainly feel for you Melanie with a baby ! I take 15mgs 3 times a day , I was diagnosed a year ago , I take stemitil when I'm feeling sick which is a lot ! I find I'm off work around the end off the month and wondering if being hormonal makes it's worse !? If anyone else finds this ? Please let me know , just joined myself so will be good to Know I'm not alone too , good luck Melanie x
I have joined the Menieres Disease Uk on face book you may care to take a look great group of ladies and gents
Hi all just wanted to say I have suffered from menieres for a while now and back in the summer last year I was so ill everyday vertigo for seven long weeks. So I looked on the internet and came across a good web site stating to take this list of vitamins etc. since I have started taking these I haven't had any symptoms of menieres apart from the humming in my ear. The victims are a very strong muti vitamins and minierals, high vit c, calcium, ginkgo and grape seeds. There are all from the health shop and at the mo my life's normal. I have even joined the gym.
im sharing this info in the hope it may help someone else xxx
Hi everyone I wanted to update you on what is going on. I went to see the specialist and had a hearing test. I've been referred to a meniers disease specialist who can then refer me to a support group (apparently a lot of people suffer with meniers). On top of that I'm getting a hearing aid. Which I'm looking forward to as I feel anxious when talking to people as o struggle to hear them.
My dizzyness has got a bit better since christmas, still hasn't gone but atleast it is manageable. I just feel so tired! The only thing that helps the dizzyness and sickness is the buccastem tablets but I don't feel betahistine works.
im feeling more positive today, as you all probably know when you have attacks every day it's hard to remain positive!
I hope you're all well, how is your meniers?
Hello Melanie,
I really feel for you, because three weeks ago that was me, stuck on flipping betahistine and having attacks every couple of days. Then I went to my GP (too ill to wait for my next consultant visit in March) and she prescribed me two other medications and I am heaps better. Cinnarizine 15mg, two tablets three times a day, and Ondansetron, one 4mg tablet twice a day. Cinnarizine is an anti-histamine (who would think histamines and antihistamines could both be used for one illness?) and is also known as Stugeron, for sea sickness. Ondansetron seems to be given for people who have bad reactions to anaesthetics. My life has totally turned around. I still get attacks, but they are much milder, so no more crawling to the loo shunting my sick bowl. I have to lean on walls etc for support, but I even can stay in the sitting room on the settee, rather than having to go lie down in the dark. I'm not sure which medication is working on me, or if it is both together. If I get an attack I still take some stemetil, but not nearly so often as I have been doing. Go and ask your GP for alternative medication, because it is out there, they just like giving you the betahistine which is nothing more than a placebo in my opinion.