I’m trying to stop freaking out in the forums so much, but this time I really feel like I should ask since the doctor’s office isn’t open on the weekend. My neck has hurt and been really stiff for two days now. I haven’t had others symptoms of Meningitis (apart from a headache yesterday but it went away), but I’ve stuttered a few times today which I’ve never done before and it really worries me because I haven’t seen anyone else mention this with Mono, but I have seen that Mono can cause Meningitis. Has anyone stuttered from Mono or ended up with Meningitis while having Mono?
I also forgot to add that two other Meningitis symptoms I've had are light sensitivity and sleepiness, but since those can also be from Mono I'm really unsure about those.
Hi Ciela
Yes I have had the viral meningitis potentially caused by mono (docts suspect it was ebv but didnt catch it in a blood test). Ended up in er as I didnt know who I was, where I was etc. Had the stiff neck, light sensativity, shakes, migraine with aura and tingles down one side. I dont remember much of it really but I do remember being so scared. Unfortunatly for me, the doctor in er said I had gastro and sent me home. Didnt find out till 10month into suffering from mono that it was meningitis.
Im sorry I cant really give you much more reasurance than this, but if you are concerned that you are developing meningitis (and your docts are not open) then go to the hospital if you can. Where I live there are GPs which operate everyday out of the general hospital.
Hope this helps
Hi Ciela,
Goodness so sorry to hear about all these horrible symptoms and worries you have been going through. It is so natural to go through worry and anxiety about all sorts of things and possible other illnesses when going through this, I remember going through that myself and it really is the worst feeling and wouldn't wish it on anyone.
I do hope that these dreadful symptoms can settle soon and that maybe seeing a doctor or someone with good medical knowledge / insight can help put mind at ease somehow - definitely do seek out the doc that's what they're there for, no matter how many times you need to keep going or whatever. This virus is classic at being so horrible and intense in its symptoms and how it makes you feel that it can make you worry about all sorts of other illnesses too and I went through that horrible cycle too of googling things and getting myself into panic about all sorts of things.
Remember that the vast majority of people with mono get fully well again and recover, but that it can take time and so hard mentally and physically to go through I know. It always helped me to remember that they say 90%+ of the western world get infected with EBV (virus that causes mono) at some stage in their lives, many as a child when they don't get so ill for so long like an adult does from it, and that these people recovery and generally move on without other health issues or complications.
Hang in there Ciela - you will get through this and get better, I do believe that and will say a prayer for your recovery. And of course do see the doc if concerned and hoping they can offer some reassurance and good support.
Craig
try not to freak out there are so many wrird symptoms with this ... my hands and body shake ive become very clumsy and so many other side effects . make am appt with your dr and mention it . it may just be nerves as this virus affects your nerve endings . my teeth have become so sensitive too ... lots of strange things with this virus !
Hi Sweebee,
Did you get a lumbar puncture at 10 months to determine it was viral meningitis? I have shakiness, headache and weakness for 9 months now and am getting a 3rd MRI (now with contrast) next week and possible lumbar puncture if anything of concern shows up. I am trying to be patient with my symptoms but it is hard not to catastrophise having been sick for so long.... :(
I hope you are better now....and Ciela, hang in there!
Kiki
Hi Ciela,
Stuttering was actually one of my earlier symptoms when I was at my worst. Very scary but it did go away completely. I also suspected meningitis due to many very similar symptoms. I had a lumbar puncture as well as an MRI - both were completely clear!
Hey Isabelle, it is nice to see a post from you really hoping you are doing better and things are stable and making good progess with your recovery. Still remembering all the time and kindness you took to encourage and very grateful for that.
Craig
Goodness Lori what a time you've been through. Very much hoping that your and Isabelle's messages can give some reassurance to Ciela and any others experiencing such horrible symptoms when going through mono. Still thinking about you, rooting for you and believing in your recovery - hang in there Lori, praying for God's intervention in giving us all on the site breakthrough with our own individual health issues and circumstances.
Craig
Hi Kiki,
Oh goodness I do empathise so much it's hard not to catastrophise having been doing it so much myself lately when symptoms appear and with a cyst they have found in my psoas, going to see another consultant about that next week and it's got me kind of worried, just don't think I could cope with any other unsettling or difficult news or information at the moment.
Just hoping so much that your MRI scan can bring some reassurance and hope this time round Kiki. I've had I think 6 or 7 MRI scans on my back in the last 18 months and just want to stay away from hospitals and scanners now so much. Hoping we can all be well enough to stay away from those places!
Hoping Kiki that these have just been part of the symptoms of the mono and I know you also dealing with another virus too, I can only imagine how tough and low the experiences of this last year or so must have been for you Kiki dealing with so many things at once. Just hoping and praying for breakthrough and a turning point where all these symptoms cease once and for all and you start to get your health and confidence back again.
Still thinking about you and believing you are going to be FULLY over this and well again, and that 2019 is your year of total recovery. Keeping you in my thoughts and prayers and hang in there.
Craig
Hi Craig, Thank you, I am doing much better! Not completely back to full health but genuinely hopeful that I will get there eventually. I haven't had a crash in two months which feels pretty incredible to be honest. Now I am trying to get rid of some milder lingering symptoms and hopefully after that I might work up the courage to do some light exercise. I am not trying to rush it though. I am happy letting it take its time. As long as I am getting just a little bit better each month, it doesn't matter if full recovery happens next month or in another year. The body is ready when it's ready. How are you feeling nowadays?
Hi Craig,
Thank you so much for your words and comfort and prayers at this very frustrating, lonely and bewildering time. I am trying so hard to stay positive but I worry about ME/CFS or other another depressing diagnosis. Worrying doesn't help of course but it is so hard not to. 2018 has truly been my 'annus horribilus' as I know it has been for you too. I am hoping that 2019 will be the year of FULL recovery for both of us.
Kiki x
2018 has been an awful year !!!
thank you craig ! getting tired and weary of all this . its such a battle
thats great news isabelle its such a slow moving virus ... i wish we could just wake up and it be gone ! you must be feeling better if you are already thinking about exercising. im missing my workouts like crazy its been 2 months but trying to follow protocol and rest rest rest ....sooooo boring.
Resting is definitely the best thing you can do for recovery. I missed exercising so much during the course of this illness that as soon as I got a little better I would try to do some light exercise or brisk walking and I would relapse right back every single time. It is only these last couple of months that I have COMPLETELY rested that I have started to heal in a more stable manner. Hang in there Lori and continue to rest both body mind and body!
i am .... i do a short walk late afternoon but none of the hardcore stuff i was doing .running weights you name it ... i did it. i wonder how long until we can get back to it ?
hi,
ive noticed ever since i got mono i tend to stutter sometimes when i speak but i feel like it may be a result of the brain fog. when i am more tired my brain just cant think of what to say fast enough. i have no idea about the meningitis but getting aches and headaches seems fairly common in people with mono.
Hi Kiki,
Unfortunatly they didnt do a lumber puncture as it occured sept last year, so my GP said she discussed it with a neurologist and it wasnt worth going ahead with the lumber as the virus is long gone. It sucks because if it was handled better by the er back then (and did the lumber puncture), maybe I could have been signed off work for longer than 3 days and could have rested/recovered faster. This really does upset me alot but theres no point in dwelling on the past as it doesnt help the now.
I can sympathise with the shakes and neuro issues.....looking back these horrible symptoms were still present for me right up to around 10-11 months. Currently heading into 14 months and these symptoms have gone, although they sometimes come back when I catch a cold or do too much. So dont get discouraged. Having MRIs is a good idea to rule out anything nasty.
I do feel alot better than I did this time last year, but still along way to go. All one can do it look back and apreciate how far you have come, and try not to think about how far you have to go. One thing that I miss the most is being able to exercise. Will never take that for granted ever again. We will ALL get better! Its only a matter of time, however long that may be. Its funny but when you talk to people....theres alot of people who knows someone who has gone through this (or something simiular), and they ALL have made a full recovery although it took them over a year or two. Personally Im trying to think of this experience as something that happened fir a reason , where I need to learn something from it.
Sending love Sweebee
Hi Isabelle,
So pleased to hear that things have been progressing for you, you most definitely will get there to a stage where you feel fully recovered again - you're approach is very wise indeed just taking things each day and allowing the recovery to come and remembering you will get there and that it is often just a very normal and natural process for your body to strengthen and recover over a period of time after such a battering with this virus! It was how I felt at that stage too Isabelle just grateful to be feeling a bit better and just doing what I could to be be sensible still and allow my body the time and space to get its strength back, thanks to God only managed to get there - and absolutely I truly believe things will continue to improve and get better for you and you will be able to do exercise and all the good things that bring joy into your life again!
God has been helping me too Isabelle, I've had a tough year lots of things being going on and still a way to go, there have been ups and downs and need God's hand to guide me every day but hoping that with His help can get there too and that can be healthy and living a good and positive way of life again. Thanks for your kind words Isabelle and sending you hugs and best wishes, do keep in touch.
Craig