Such weird symptoms ugh

i have complained before. But i had tmj but feels more severe and my ears have all kinds of tinnitus and since january flicker inside my ear drums at times. Its quite maddening. Drs look at me like im nuts. But its real. I found it on other forums.so im mot the only in the world. pET eustatian tube thing for the ears and nerve issues on the jaw. Anyway when im stressed it way worse which i tell younmakes me calm myself very fast. Its just maddening. I have been to the maxiallary surgeon a few times, ent a few times and an acuouncturist. I see a nuero end of july. Im scared i have nerve issues from the tmd. And i cant use steroids or muscle relaxants because eye issues.i have an optic nerve pallor and they are watching the angles which are stanpbile at this time. I do have siica some auto immune thing recently noted. But still this weird stuff doesnt seem common at all. People see an ent for the ear spasms but very extreme in a few they cut the muscles and that injures hearing obviously. And wont stoo tinnitus and  can mask it. Its just i dint see this much in the forum to say its anxiety either. It sure does cause it thiugh. It is mind bendding, and painful and weird.  I feel someone should do an mri. I guess it is guess work cause it would be brain, sinus, ear and neck. Noone will scan all that. Although inhavent spoken tonthe nuerologist yet thats the end of july. And i think i sound nuts but it is really happening to me, i have rukes out a lot of stuff. It is not lyme or anything very sinister via the RA dr. Could be dryness inside causing inflammation, he doesnt know.many feel tmd nerve from tmj. And anxiety on too of it, not a common thing for an anxiety disorder apparently. Noone else notes it. Almost feels like seizure. Which it isn't. i think im looking to see if anyone can relate or knows anyone like me. This isnt a quality of life.

Anyone have any ideas, theres no medtiattion for nerve pains and ear twitching spasms. It does calm doen at times though. It has been 4-5 months of this somit cant be shingless so i dont know. If its nuerolgia they leave you like this as well.how am i going to live like this? 

My family is tired of me complaining. Which is cruel. And im stunned noone has scaned this yet. But maybe the nueromis the ine who does that. The ent said they didnt feel the ears were the root cause so thats their end. The maxiallary surgeon im surprised hasnt they just do xrays. So maybe it is a nuero. My gp says nuero and he feels bad this is even a thing.

Any help is lovely. Anyone can relate that would be great. 

 i'm sorry you're going through such a difficult time. It's hard to get people to understand with some symptoms because they can't actually see them like you can see a broken arm .   

but I can tell you that the tinnitus and ear flickering  are common symptoms of anxiety that I also have. Yes it has to do with the nerves and anxiety  very often. When I calm myself down, the flickering tends to go away or diminish and the tinnitus isn't as loud. I'll never completely get rid of the tinnitus but I can live  it because I've had it for so long . I don't hear it during the day just at night. That's when I put my earbuds in and listen to my Mindfulness  meditations on YouTube. 

 i'm sorry you're having so much pain.  Can you get a  another doctors  opinion? 

Wait you get ear spasms in yiu ear. Flickering? Wow i dont know many ithers. I have bad clenching issues tmd. Maybe nuerolgia from it i dont know. And other diagnosed stuff so no drs seems to care i a, anxious. They say yes im sure you are. I cant use the meds so i guess they cant do much. I have a therpaist she feels bad. She was with me when i had an eye steoke and got optic nerve pallor.  This mess with jaw and ear is smack after a case of the flu in december, had a three year break. From panic and such. 

I am seeing a nuero end of july.

Wow many typos sorry.

Yes being calm helps everything. Geez they told me not to let it rattle me. Seriously? You just comforted me though that means i have a fighting chance this can dissipate.