Suffering for over 10 years with strange unexplained symptoms

Brain and nerves
1

Hi everyone,

I just wanted to seek some advice about some symptoms I've been experiencing for over 10 years. The symptoms are often debilatating and I feel that sometimes I can't function. Here is a list of my symptoms I experience:

Eyes are sensitivity to light

One of my pupils is bigger than the other mostly in dim light

I sometimes feel pressure behind my eye

I have a tremor throughout my body

Fullness in my ears and a buzzing sound

Sexual dysfunction, no libido

Constant headaches mostly triggered by light

Disassociation, feeling unsteady, feeling unreal, feeling like im drunk

Sinus problems

Tingling burning pain in head and back of throat

Feeling spaced out

Feeling drained and exhausted even with rest

Sparkling dots in vision like static on a tv, i see this all the time, it makes patterns look like they are moving

Recurring infections (ear, fungal nail)

Brain fog, difficulty concentrating

Memory problems, its like im living in a haze

IBS

I've been to several doctors and had a range of tests done and everything has come back normal. I've tried many different supplements and herbs, accupuncture, and other alternative healing but nothing has helped. I am physically fit and healthy and exercise regularly so my symptoms are hard to explain. It really pains me everyday that I cant do the things I would like to do because of the way I feel and often feel like giving up. I would appreciate if anyone would have any advice/suggestions as to what I could do to help myself. Doctors always dismiss everything I experience as anxiety but I dont believe it to be true, how can I convince my doctor to investigate further and should I see an ENT or a neurologist?

Thanks in advance

2

Check out intracranial hypertension also known as Pseudotumor Cerebri . They call it that because its signs of a tumor but no tumor. Its to much pressure on the brain. To much spinal fluid. I was diagnosed in 2014. Didn't bother me much until recently i developed a hole in my skull called a csf leak.

3

I’m living with this every day too unfortunately 

4

Which symptoms started first ?

5

Try taking a good curcumin. This helps battle any inflammation in the body. I belueve I had in brain..seems to really be helping me.

6

Curcumin ?? What’s that ?

7

Tumeric. A natural -supplement yet look it up. It is truly a GREAT nutrient. My friend has cancer and drs from cancer centers of America put her on it to keep inflammation down. So I thought, hey, iv got so much happening in my head why not try. It has seriously helped me..not completely but much better. I got the Vital brand which is what they put her on..check it out online..

8

Do not take it if you are on any blood thinning drugs.

9

Its hard to remember it all started such as long time ago. I was about 19 at the time, I think the first symptom I noticed was brain fog and poor concentration along with sensitivity to light and the static in my vision.

10

I might try some of that, I've heard good things about it before. Thanks

11

I used to mix the turmeric powder in milk or yogurt and felt it helped my joints. I later switched to the stronger capsules but no longer felt any benefit and found I bruised very easily and slight cuts

 bleed for ages.

12

You have such a common set of symptoms that doctors/neurologists don't understand and seem to want to ignore. There seems to be a connection with the areas involved. Have you looked at Fluoroquinolone Toxicity Syndrome

 

13

Really? Iv never found ANY side affects at all from curcumin..after searching for them. I can say the capsules really help me it seems..

14

It is contra indicated for patients taking Wafarin as are many other things that would additionally thin their blood like garlic.  

15

Yes, I have read if on blood thinners to refrain from taking Tumeric(curcumin ) but that's all iv seen as far as side affects go..just saying, it's helped me..

16

Gosh im dealing with the same nightmare. I barely function I feel brain dead and the tremors don't even let me sleep I don't even know what that feels like anymore. So many ppl suffering from this and doctors love to blame anxiety. I have two questions. We're you on any meds around the time this started happening ??have you been tested for lyme ??

17

Me too :-(