Suffering with dizziness and tight head and neck problem

Ears, nose and throat
1

Hi All, 

My symptoms started June 2017.

It was fasting month.

I break the fast prayed I was sitting on the chair I went to grab something from the floor and that is it i felt dizzy, pressures in my body and my family called ambulance for me I thought am dying. It comes out is a panick attack which I never suffer from.

Dr prescribed me amytriptilin and I have taken it for a week it nock me out. I stopped it straight away. 

I was off work for 2 weeks I couldn't drive or do anything from active to inactive  person.

I have seen so many GP's and different specialist Dr neurologist, cardio, ophthalmologist and ENT but all blood test and MRI comes normal a part from my Vitamin D was low, and now start having all other problem Neck pain stuffiness all the time.

My head full and tinnitus in my right ear back problem ... etc

One day I pushed my self and I start going out to local shops and walk for 10 min going swimming once a week.

But I tell you it was very hard and difficult for me to do, but I had to as no one understand my pain as I look very good physically but my pain is invesible so no one will understand what's is happening with me unless the person suffers from this killer deasese as I called!!

Last two weeks I saw ENT for a second opinion which he decide to sent me to a balance test which took around 3 hours and that is the diagnose from the Audiologist which I have balance disorders which to do with vestibular.

I put on weight massive bloating, stomach pain all the time  every part of my stomach I thought I am having cancer,

I have done endoscopy too comes normal.

I eat fresh almond like crazy addicted to it I eat like 250 grams every single day for the past 6 months.

So it comes out I put on weight from the almond and all the stomach ache is from it as i am eating too much.

Almond is good for our body but when it comes too much it harm you more so becarful.

Now I am going to see my ENT and cardiologist next few weeks and I will all let you know what treatment I will take.

Please go and check your ears, and check what are you eating is it too much Vitamin in your body or low is not good it have to be normal.

Help your self by exercising and walk every day even you have the symptoms, I am back to my self now but not 100% is like a least am working now, I can drive and exercise .

Please don't give up.

Good like to all.

💐🙏

2

Hi there, it sounds like you have a similar story to many people on this forum (apart from the addiction to Almonds!)

It takes much discipline to exercise when you have a vestibular problem as it often causes so much discomfort, but it's vital for your recovery, and if you don't make the effort it's easy to get out of condition, as well as putting on weight!

Glad to hear you're beginning to conquer your problem!

 

3

It will be 3 months of hell on August 7th.  I have had no quality of life- have barely been functioning.  Dizzy all the time.  Barely can work, and when I do, I am not normal.  My brain has been foggy and I had lost hope I would ever be normal again.  Original diagnosis BPPV, next diagnosis vestibular neuritis.  On prednisone and bloated, don't look normal.  I get confused very easily but physical therapy has helped.  At the beginning, I couldn't even follow simple instructions to move my eyes or head. I waited 2 months for the Nuero appt- she said I might be disabled permanently, I cried.  I asked her to try antivirus drugs and she did. Valtrax for 10 days- I am willing to try anything.  I asked her about migraines and I was basically dismissed.  Useless appointment.   I had an appointment with the ENT on Thursday. I updated her on the neurologist appt.  and asked about vertigo from migraines, as I had researched this -that it can effect the nerves and have these debilitating sysmtoms, sometimes without the physical pain of a migraine/headache.  I was willing to try anything.  She agreed to prescribe me norotrityline.  I started this Thursday night, as she gave me a low dosage to start and said to call in 2 weeks to see if we need to up the dosage.  The very next day (yesterday) I realized I felt like ME- for the first time in 3 months.  I feel like ME today. I am taking it at night per her instructions.  Can it really be Vestibular Migraines?? I am starting to realize that when I was hospitalized- I had blinding eye pain.  I also am starting to realize that I have a lot of headaches and have been searching for Tylenol at work- then my brain gets foggy and I have to leave to rest. This past Sunday- I had a terrible migraine , blinding and was nauseated, dizzy, sweating,  and almost blacked out in the shower.  I have really had to do my own research on this and ask the doctors to try these treatments. This has been a nightmare and I am praying that this medication continues to make me feel normal. Since my fog has lifted on Thursday, I have realized that I have constant pain in my left eye. I am praying for everyone- keep asking doctors to try new things- I have had to pretty much ask for everything.  Since the beginning- all the doctors have told me that I will feel better in a few days, then weeks, then months.  They don't know.  So maybe just maybe- I don't have a viral infection in my inner ear.  Maybe this is all related to migraines. I have energy today and had some yesterday.  Not once did I get dizzy, have my fog, or feel abnormal.  I do still feel a pull in my left eye right now. I also still hear a buzz in my left ear- but the research I did- did show that the vestibular migraines can have this-ringing/buzzing. So- if you are in the same boat as me- ask to be treated for this.  It's not going to hurt and the way I put it is if it doesn't help- then it can be ruled out.  I know everyone is just sick of me being sick and so am I.  And I am sick of people telling me I look fine.  I don't.  I am also so sick of people telling me their stories of vertigo.  Their vertigo lasted a day or 2. I have been on a tea cup ride since May 7th. For the first time-i am hopeful that I can get off the ride.  Nortriptyline-ask your doctor.  I also have an appointment on the 8th because my blood pressure has been a little high.  I am thinking of all of you- this is so debilitating and scary.  I have a family and a job and I have been absent in my own life for 3 months now.