Suprapubic Cather help!!

hi i wonder if someone can help me. I am a 40 yo female, I had a suprapubic catheter fitted almost 12 months ago. reason unknown, only that i go into some kind of retention but a urethral catheter was very painful, to the extent where my life stopped. however since having the SP i have had nothing but problems. i have a pain below and to the right of my SP, no one seems to know the cause.?!? i also get terrible urethral pain, to the extent that i cry trying to have a bowel movement. My consultant has said i will need to be referred for a second opinion as does not know whats going on. has anyone experienced anything similar? it is controlling my life being in soo much pain. i have considered going to a&e when i get bad. I also have problems when it comes to the change of my catheter, it has to be done under sedation in theatre as the pain is that bad, apparently i even react to the pain when under sedation. If anyone has suffered anything similar please let me know, I am getting desperate :( Thanking you in advance x