After arthroscopy following twisting my knee and suspecting a torn meniscus I was told I needed TKR what a shock that came as !
I am 62 years of age 13st 8 lbs ( don't do all that modern metric stuff sorry ) I cycle around 100 miles a week, can run up the stairs no problem apart from a bit of a stinging sensation on thre outer part of my knee just aware of it more than painful
The surgeon gave the knee a rating of 3 whatever that means ?
So to surgery or not, I am of a mind that why go through major surgery with all the possible implications of good/bad outcomes when I am mobile and in little pain if any at all?
The great unknown to me is the speed at which it may deteriorate, weeks months years I have no idea?
I am sole carer for my disabled Mother so surgery would impact on us both
Any input would be greatly appreciated as I am at a loss if to proceed or not
If i were in your situation i might think about delaying having a TKR for a bit - could you ask your surgeon for another review in, say 6 months? If you read through the posts on this site, you'll quickly see it's a major op, with a considerable time needed to recover. My GP told me an interesting thing too - that even when an xray shows moderate to severe arthritis of a joint, the patient may continue for a long time to function apparently normally and without pain! This hasppened in my case. Acupuncture might help delay though won't cure. Good luck!
Virtually the same thing happened with me, went to the consultant with a torn meniscus, thought I would just need an arthroscopy, he told me he would prefer to do a TKR! I am 65, fit and walk every day , go on walking holidays, yes run up and down the stairs. No pain, apart from an ache after. 10 miles or so. However my consultant said if I had it done now while still fit , strong muscles etc, I would recover better. If I had waited it could have got to the stage where I was in pain, could not walk as well and therefore not recover as well. I am now nearly sixteen weeks since the op and have recovered well. Still building my muscles up but will do that over the summer. I appear to have been quite lucky, hardly ever took painkillers before the op and did not need them from about four weeks after the op. It will be difficult if you are a sole carer especially if you have to do everything? I still get tired and it takes me longer to do things now. Good luck but I would say sooner rather than later would be better.
Daveuk321.
in my own personal experience, if you can do all that you are doing now, I would hold off. It's not a life threatening condition, so why put yourself through major surgery, when you don't need it right now, usually things do deteriorate then you can decide to do it. It's not a quick recovery and certainly not painless ...
if you can't get around and are in pain all the time then you don't have a choice and usually those people do well as the pain after surgery is less than what they had but if you go into a huge surgery with little pain, I think you'll be disappointed with the results. That's just my opinion,..hope you can come to a decision you are happy with...xx
I was a walker....& have two lively dogs. I am one of those that wasn't sure - in fact, when I went for pre-op tests, I actually told them I wanted to wait. I was immediately sent for yet more x-rays, called in to the consultant, & told I needed both doing - even though my pain was, at that time, back to minimal. I am now 64 - it was done last October, & I am one of those stories you just don't want to hear, as I fell into the 10% where things go wrong. I am waiting to see if they are going to do a revision (the whole thing again) & I am in so much pain, I actually want them to do it again. Yesterday I was told it would take 2-3 months as I have changed surgeons (wouldn't you??) & I am now on a waiting list, & I wanted to cry as just the thought of another 3 months of instability & pain makes me shudder. Think very, very carefully. I was the "legs" for my husband, who has MS - now it's reversed. I wish they had listened to me, & cancelled the first op.
On the other hand, 90% are perfectly fine.
It's not a decision to make lightly. Sorry to be a doom & gloomer, but we are (they tell us) fitter much longer into our older age,so maybe you could cope longer. By the way, my 1st consultant, 20 years ago, told me I needed them doing back then, but I would have to beg for the operation before he would do it. I so wish I was still in that county & had him as a surgeon/consutlant!
I had reviews every year while still working. I had surgery when the xray and pain showed bone on bone. I went for 4 years before needing the TKR I am 70 and after 7 months post op I am able to do most things. I bought a new bike this morning as I can no longer run and need to keep fit
Hi Dave,
I can actually argue both sides of this. I am 36 and 11 weeks post TKR.
With little to no pain and really active it's easy and reasonable to leave it for a while, especially as a carer. If I was pain free I certainly would.
However you must bear in mind the sooner you get it done, the easier that recovery should be.
I have had trouble with my knee for a few years following a fall as a student (that's a whole other story but a badly healed crack turned into osteoarthritis, a rapidly crumbling knee and a large cyst pushing everything out of its way). I was turned away with painkillers constantly and frequently told I was too young for a TKR although I really needed one. Long story but I was in awful pain and incredibly debilitated in my movement when I eventually got to the consultant stage....a year (with no holidays and virtually no life) and several cancellations later, I had surgery.
Unfortunately due to the deteriation of the entire leg it has lengthened my recovery. My leg is quite bent still, so much so that I may need further surgery to cut off bits of muscle.
I wish I could of had this done years ago. I know I will need it all doing again at some point but I've been told that as my leg is so bad, I've essentially skipped a few stages (so medically it's like I'm on my third joint). The better condition everything is in, the easier the recovery. That isn't to say it's not incredibly hard at any stage but if it's allowed to worsen, it does have an effect.
Sorry for the long ramble, I just wanted to put my view into context. At least if you're in good health, you have the time to make an informed decision. I don't expect many people to get to such a condition as I was (I got sick of every healthcare professional I saw telling me it was the worst knee they'd ever seen)...for once a younger age worked against someone.
Take care & good luck
Kath
That is a real dilemma in which to be placed. First thing would be to line up help with your mother for a few weeks because at best, you'll be doing good to manage yourself. Having that responsibility could cause you and her additional injuries. Without anything going wrong you will still be undergoing major surgery and your entire system will be weakened and will have to recover. I was in very good health at age 65 before the rare tumor hit me. Within 6 months I had to be put under 3 times to have the knee drained and 30 rounds of radiation. I became very weak and had a rough time getting going again. Then came the synovectomy (removal of the entire synovia), then the tkr. I guess what I'm saying, when they start whacking on you, no assurances and you can't go back. Had I not been almost completely crippled with pain I would not have had the 1st tkr. Now I am getting ready for my 11th surgery on this knee next month. I've got a million dollar leg and still in pain And can't walk.
If you aren't in any considerable pain and can have a normal life at present, I would delay it. I couldn't be on my feet for more than about 30 mins without then being able to bend my knees and in considerable pain before my operations.
Hi Dave
I have always been active horse riding, walking, working etc, my knee was deteriorating aches and pains. I stopped riding but could manage everything else I wanted to do, then I stopped long walks but why would I go to the doctors I was in my 50's it's wear and tear and I managed. At the end of the day my knee ached and my husband said about time to check it out.
Like yourself id had no therapies injections etc. the consultant said tkr!!
i asked the question, could I do any more damage by waiting ? My consultant said I would know when I needed painkillers and couldn't do what I wanted to do.
3 years later my leg had started to bow and I was limping but if needed I could have gone on !!
This time the consultant said the best recovery would be now, still able to bring the knee back to its central core.
i have many commitments in my life and tried my best to organise myself a 3 month "time out". My mother who is 85 with good knees - lol lives with me and I am her carer. She will probably be here in 10 years time so when is there ever a good time. My knees won't be here!
i am 2 weeks tkr and it is going to be slow but everything is in place, and this is "my time".
I couldn't change the inevitable but I could decide "when"
hope these posts are helpful to you.
Sue x
Most people who have TKR's are in a lot of pain before the operation . . seems strange that you are being recommended such surgery when you are mobile, and obviously very active! I personally would put it off until it begins to limit lifestyle. . Perhaps you could ask your specialist why he thinks you should have it donee now. perhaps he knows more than we do! ( I hope he does!) As the sole carer of your mother, it would make life very difficult, as you could do with a carer yourself for the first weeks after a TKR!
I know most surgeons seems to recommend cycling, and static bicycles, but mine has to be different. . he told me that the biggest enemy of the knee is cycling! I don't know who is right . . just thought I'd mention it, and 100 miles a week is a lot of cycling! Mind you, he also told me no swimming when I had shoulder probelms, so perhaps he just likes to be different?
I think you take surgeons advice mine just told me to come back when I was ready and it was only six months later then I wished I gone back sooner as it was so bad pre op it took longer to recover post op. You won't be off your feet too long but will need help so start planning early just in case.
When he was discharging me from hospital mine told me to buy a skateboard. When I laughed he informed me he was serious. He said it's the best thing for getting movement back in it if you sit with your foot on it and push it back and forth. Seriously I have wooden floors, can you imagine?
I've went for the plastic bag tied around my foot option instead...classy I know!
He really was trying to be different.
I think the cycling thing is probably right if someone has a grinding knee issue, I would think following a TKR it would help but I don't have a clue...I learn something new about knees everyday at the minute 😀
Hi Dave, I would possibly get a 2 nd opinion, otherwise if you are still mobile & relatively pain free I would wait. You will be out of action for some time after surgery. The fact that you are so active is a big plus.
Hi Kathryn,
I live in Australia & the skateboard is very popular with ou physio's. I found it wonderful as the movement is much smoother . I borrowed one from my grandson when I went home. If you have polished boards, get a carpet off cut to roll it on.
Wow such a very big thank you to all the replies to my post, so nice to know so many people are willing to take the time and effort to reply with so informative replies.
I have made an appointment with my surgeon for 6 months hence with a view to injections rather than surgery should I be experiencing pain at that time, as I simply cannot be incapacitated until the Granny Flat extension is complete with Granny settled within it. bless her.
I cycled 30 miles this morning with around 1000ft of elevation and the knee feels better for it, however weird that may sound ?
I appreciate the view sooner than later, but am going with the leave it till it becomes a mobility/pain problem for the above reasons plus been a fully signed up member to the Coward Party !
Again thank you to all for the amazing and very welcomed replies I wish you all the very best for the future
Best Regards
Dave
Hi Dave, I write from Montana in the US. I didn't come into this with the injury you had - mine was from a fall from a stepladder a long time ago. But I can speak to the process. It's your knee. You only have two of them. Honker down and do the research - research your problem online and look at all alternatives, then go to different orthopedists to talk to them about it. In the US many will talk to you on the phone if you simply have your x-ray/scan's sent from your doctors office and you ask them to call you. I talked to a total of 9 physicians before I scheduled a procedure...party because Montana is rural and many procedures aren't available here. We only have total knee replacements - no one here does other procedures. I ended up doing a partial knee resurfacing procedure called Makoplasty, and am 2 weeks post operation. Mako can correct two compartments at most, a total knee corrects all three. Mako is much less drastic - but requires that your ACL and PCL are intact. You also need the side ligaments to be intact as well. Find out exactly what a "rating of 3" means, I could find no information online that collaborates with this number: http://www.drrmarx.com/wordpress/wp-content/themes/dr-marx-2015/articles/knee/meniscus-injuries/01021900.Knee-Rating-Scales-for-Clinical-Outcome.pdf ; So call the doctors office and have someone explain it to your satisfaction. When you go in to your doctor take notes - you won't remember everything they say, or take someone with you and let them take notes. The sensation on your outer knee may be the lateral compartment - you need to ask for more information. Ask why he wants to do a Total Knee, then find a practicionner who does Makoplasty and ask them to evaluate your xray as well. If you qualify for Mako you may want to consider it - far less invasive. Far less debilitating during recovery. If the doctor told you it would degenerate I can speak to that some - I, too, was told it would just "suddenly fall apart" in a matter of months. And indeed it does. And when it does your life becomes a nightmare because it really doesn't work, hurts like all get out and scheduling surgery takes months and months of planning. Don't wait to schedule it until it falls apart - it's the one thing all the people I know agree on, they all waited too long. But do check with another doctor, or doctors. It's your leg.
Have you tried a TENS unit? Your doctor can perscribe them. Your PT can show /help you use them. Also try a reserach-based hypnotherapy program on chronic pain that can help a lot. Gapapenten can also help. I'm sorry you've had such a struggle, truly.
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See if you can get a TENS unit. Shop for another surgeon - for sure. It sounds like you had an infection? I am so sorry. Medical cannabis helps knees a lot - there are many cannibanoid receptors in the knee making it a responsive site if you can get it there. A TENS unit must be prescribed from the physician and set up through your PT - try it. Not super expensive. May help. I am so sorry for your struggles, I hope it gets better for you.