I'm wondering if others can comment if they've experienced a swelling of the vagina with LS? Or it could be due to the steroid (which I havent taken now for almost 3 weeks). The only thing I've used is the coconut oil. With that being all natural it seems strange that it would cause swelling and redness.
Thank you in ladies.
Sara
Hi Sara,
It could be thrush?? Apparently we are much more likely to get it cos of the LS
x
I do not use anything apart from advantan fatty ointment and dermeze sensitive. I would ask your doctor who is looking after your LS.
Kathleen,
Are these prescription "advantan fatty ointment and dermeze sensitive"?
I'll look up thrush. I'm not familiar with this.
Thanks ladies!
Kathleen,
Is the Advantan a 1% steroid? I was going to call my dr's office this morning and request a 1% prescription.
It looks like the Dermeze is OTC?
I don't think it's thrush; I'm familiar with yeast infections and I dont have abnormal discharge.
Crazy that we have to do all of this diagnosing ourselves! And crazy that this disease takes so much attention and energy. For me it's turning out to be daily monitoring.
Sara
It could be the coconunt oil. Just because it is natural does not mean you cannot have a reaction to it. For example peanuts, shellfish and sesame seeds are all natural occurring things that people can have (deadly) reactions to. And sensitivities can develop over time.
I think I have recently developed a sensitivity to coconut oil and there are others on here who have said the same thing.
I hope you figure it out soon.
I guess you're right. I could be sensitive to it even though it's natural. Makes sense.
It looks like Dermeze is not available in the USA. Has anyone found this product in the US?
The Advantan fatty ointment is less than 1% as it is not as potent as other ones. The Dermeze is a moisturiser and also good to use if going in the water to protect that area.
I am in Australia, Sara.
Hi Sara,
Me again. My specialist said you can get thrush in the flesh/skin which wouldn't necessarily give you any discharge. x
Hi Sarah , i use Diprobase which is nearly the same as Dermeze according to a pharmacist in Australia.
I had a lot of swelling of the labia when the LS was at its worst. I would try and see the consultant you go to if possible- Continue with the higest concentration of the steroid you were prescribed with and use it accordingly. Keep moisturised and protect yourself from body fluids with a good barrier cream/ ointment. Look daily and dont allow the skin suraces to stick together - it may be uncomfortable but it will inhibit fusing. Keep the area VERY clean esp after using the loo. keep the area cool and use bland non allergic products.
Ivy is natural as is aconite - you wouldnt use either of those products any where near your body as both can cause severe reactions and in the case of aconite - death. Do check the Dr Goldsteins webinar and do not be swayed by "if it is natural it must be good" it isnt always!
Go down the scientific well researched route for treatment - not the anecdotal new age thinking of those who want to ditch modern medicine for unresearched "natural rememdies", there are many who have no real knowldege that try and persuade one to drop convential products unnecessarily.
Always look for the side effect and interactions with other treatments when you embark on alternative therapies.
I know that individual sensitivities will also play a part,and, if it does no harm and makes you feel better, that is good, but do so with knowledge that you are experimenting on yourself and with products that may not have had rigourous scrutiny of their therapeutic effect.
Take care and good luck
Sue
Yes, Sara, I believe it could be the coconut oil. I am newly diag. so I have been trying everything I read about. I read that coconut oil is good for tears. I started using it around the vagina and all over the vulva. After about two days, I was more irritated, red, swollen, and more tears. I stopped using it because I couldn't think of anything else it could be. I am using emu oil now with some improvement .
I agree with you. I only use the prescribed treatment. I attend a special clinic in Melbourne and use that advice only as it is a women's hospital and I see several specialists including a dermatologist and gynaecologist each visit. I have a bidet which is great but told to use no more than twice a day as wetting the area too much is not good. I have had LS for many years.
Hi Sara, How about trying to calm things down with some Manuka Honey. I use this to calm the area using an incontinance pad to protect my clothing. It is antibacterial and seems to calm everything down. Seems to work for me then I continue with Epaderm moisturiser. I think Hydramol or Advantan Fatty Ointment are the same thing. Treat with Clobetasol if the ls is active and reduce to twice weekly treatments only.
I also guess, that it might be the coconut oil. Unfortunately, I get very irritaded from coconut oil, although I love the taste and smell.
Hi Ladies-
Thank you for the feedback on coconut oil. Glad to know that I'm not crazy. Yes, I used it for 2 days and appeared much worse; red, irritated, burning and swollen. Now, 2 days off and I'm better.
I'm still not sure what to use for a moisturizer. I'm afraid of not keeping the area moist thinking that the LS will sort of adhere things together if I'm not super diligent.
I have been using vaseling the last 2 days but I'm still swollen.
Can vaseling cause an irritation too? Has anyone experienced this? You'd think it would be okay because it's used on babies bottoms, but who knows at this point.
Thank you again!
Sara
Vaseline is what works best for me. It never gave me any problems. I also use a zinkpaste with tar to treat tears but it us quite messy. But I guess everyone is different. I hope you will find out what is ideal for you soon. I would give vaseline a chance, especially white vaseline that my dermatologist recommends in the first place.
Try using emulsifying ointment - bought from the phamacy in large inexpensive tubs. Use it to wash wlth and leave a residue on the skin - that may calm things down. The inflammaton is what is beiing treated by the steroids- To cool it temporarily crushed ice in a plastic bag covered with a damp flannel will cool the area- no friction - of any tight clothing - no tights or tight pants/ knickers- use long skirts and go commando for a while. cool setting on a hairdryer after washing
Your doctor may prescribe Diprovate - (or Dermeze depending which country you are in)- I find the former works well for me- a 1kg pump lasts ages - I wash with it too and it is a useful barrier. Several people here find their diet affects their undercarriage so perhaps look at your sugar intake and or other food stuffs that can affect you
good luck
Sue
I have a friend who has a different autoimmune skin condition and petroleum products give her grief. I'd never heard of it before until she told me. I have no idea how common that is as a sensitvity.
I use dermeze sensitive and have no issues with that!
Hi Kathleen-
I looked every where for the Dermeze sensitive and can't find it. I'm in the US. Where are you?