Last year I started to show the symptoms of IBS and though i've done so many tests, I just keep getting referred for more tests and meanwhilst it has slowly destroyed my life. I got kicked out of sixth form today because of low attendance in the mornings where I always have a flare up. GP refuses to write a note or atleast print off my medical history for the school and the school also refuses to call them and instead doubt me about repeatedly asking. Please help, if there is anything I can do to control this can you please share with me because I just want my life back 
Hi, are u on any medication? What are the symptoms u suffer? I'm sorry things have got so bad for u, it can be v hard 
I'm in the same boat. Out of work since October as I'm pretty much house bound now. And doctors aren't doing any more tests on me!
Not what any 22 year old wants their life to be like!
Your sixth form surely should be writing to your doctor. Ask for sick notes and they will have to do something about it. It's not you fault! Try not to let it bother you (I know, easier said than done!) but if you stress more, it makes you worse. Try and find something that keeps you relaxed.
Wishing you all the best!!!! x
Hi, I am on nothing now. My GP prescribed Buscopan but that did nothing for me and then they prescribed Laxido which also had no effect. She was going to prescribe me Colofac but it is not licensed for under 18s so she sent me home with nothing, said there was nothing she could do other than more tests thank you for answering to my post
Also my symptoms are bloating, alternating constipation and diarrhoea, I feel movement in my abdomen and I get very painful stomach aches and spasms. Been getting these throbbing sensations in my abdomen as well
I'm so sorry your doctors aren't doing anymore tests, I really feels like we're being left to fend for ourselves my 6th Form is unfortunately no help at all, my teacher in fact said there are people with worser things so she doesn't understand why I find it so difficult to stay in school when I have my flare ups
Thank you for your advice and well wishes, I wish you the best too and hope you feel better soon, we can hope
That's just crazy! What tests have u had? Please tell me not just blood tests 😠It really infuriates me. I'm now 40, having been diagnosed with IBS D aged 19. I was so ill back then so u have my total sympathy. I'm sure u can use peppermint oil, I use mintec and colpermin (prescribed) but I think u can buy them at Holland and Barrett and u can get Colpermin at the chemist. U need to give it a few weeks to work, but they really help once they kick in and I can't live without them. Have u found any triggers?
Exactly but she seemed to get more angry as I kept saying I was now out of school as of today because I counldn't control the symptoms. I have had alongside the blood tests, 3 faecal tests for calprotectan and 2 tests for H Pylori. She wants me to do another calprotectan test tomorrow. Thank you for your sympathy and advice, its greatly appreciated 
I will go get some tomorrow when Boots open in the morning, thank you for the suggestion. So far I've found that things with wheat and milk in them are triggers for me. I will keep doing the food diary to see if I notice anymore triggers within my already limited diet
Have you had a colonoscopy to make sure there's no inflammations and that? They should be putting you forward to get one if they haven't already. Goodbye dignity! Haha.
We really do! Do you know what triggers your symptoms?
It's shocking they're treating you like that. If you have IBSD, it's classed as a disability so you could get that against them! Shame on them!! Can you not do like a homeschooling kind of thing?
Just read your symptoms and they are exactly the same as mine bar the constipation. Do the spasms feel like a stabbing pain that like double you over?
What are ur calprotectin levels, do u know? I think 60 or under is classed as IBS. Investigations such as colonoscopy usually happen if they are raised. My last one was over 350 but they are struggling to find the inflammation Can u get ur parents to speak to school? I work in a school and this is discrimination!!!! If u were my child I would be going insane at them lol x
The last results of my faecal test came back with an inflammation in the bowels and so my GP suggested a colonoscopy but she says she will only do that once I've done another calprotectan test. Ah dignity, I'm starting to forget what it feels like to have had one in the first place!
Wheat and milk are triggers for me but I seem to be getting a mild reaction to everything I eat and then I get stressed and the urge to go worsens dramatically. I am very shocked myself because an adult has gone with me on my behalf and explained but to no avail, it is starting to feel surreal, all I want is to be well enough to actually finish 6th form next year but they refuse, crying is now a hobby of mine.
I have been researching into homeschooling since I got home from the GP a few hours ago and I think I would have to have a meeting with the city council for permission so I will be trying to get as much information as possible on it because I really want an education. Yes those are exactly the pains Incredibly painful and stops me in my tracks every time
Well if u need a colonoscopy don't panic. No its no pleasent but, it's a must and u can get sedated. The prep is the hardest part for me, but we will advise u on all that IF u need one. U don't need the extra worry. Do u go to a school or an Academy? Just out of curiosity! I'm lactose intolerant, it appears to be fairly common with IBS/IBD. If I so much as look at butter/cream/milk/cheese/pastry or any foods containing lactose, I have attacks of explosive diarrhea and it can last days, even if I just had one item of food with it in. It's really hard!
The first one I did came back 72mg/kg stool which my GP said was mild as usually it should be 51 or less but I do not remember the results of the follow up ones I have done since my symptoms got worse but I'll be sure to get the test done tomorrow then and go see the GP next week as she wants to know if it is still rising and hopefully this time she'll refer me for a colonoscopy. I hope they find your inflammation site soon because that is exceptionally high! I do not live with my parents but I will be talking to my Mum tonight to ask her if she could talk to the school on my behalf. Haha its nice to see I wasn't overreacting in my head about the way I have been treated by certain staff in my school
wello it's not easy and i must say i'm surprised at your doc refusing to write a note for you. i have it for years and years, i take hyoscine butylbromide 10mg tabs 4 times daily 1/2 an hour before food and mebeverine 135mg 3 times daily again 30 minutes before food.I hardly ever have cramps but do suffer a lot with flatulance anytime anywhere. lol. My bowels open at least 3 times every morning all before 10am, the rest of the day I am fine. i was told not to eat onions, cabbage or wheaten bread, stopped them all and then gradually re-introduced them. could you show any of this to your school or is there another doctor you could ask and if you are on medication give the information leaflet to your teachers to read. hope you get something sorted soon, good luck.
You can ask for a copy of your records. You may have to pay a small amount for each page but you have the right. Ask at reception. Ibs doesn't show up on tests. Certain foods, stress or hormones can be a trigger. I took symprove (you can buy it direct or through Amazon). Didn't have a single attack when taking it. I have depo contraceptive injection. Levels out hormones . Try finding something you find restful, keeps your mind focused and stops you from focusing on the stress. I knit & crochet.
Thank you for the advice, it seems a little scary but like you said IF I need one then i could get sedated. Can I ask, what do they make you do for preparation? I go to an Academy. Exactly, its the ultimate test because everyone around me is eating all these things I used to be able to eat but its either risk it and have an embarrrassing situation later on in the day in public or just stick to the same safe foods and at least feel less pain!
You should have the tests to rule out IBD as u fall within the "usual" age range for things like Crohns disease which tend to peak during the late teens unfortunately. All my notes say I have "regional enteritis" which is another teem for crohns and they have been since I was 19. My consultant is at a total loss as all my other problems also point to crohns yet my scope was clear. There has to be someone at school who u can speak too, I'm angry that u have been treated this way!!!
Yea that doctor gets a lot of complaints from other patients because she refuses to listen and has been known to be very rude. I will ask about your other meds but I cannot take mebeverine as it is unlicensed to under 18 according to my GP I do suffer a lot of flatulence too and frequent loose/constipated motions in the same morning too. I hadn't thought of showing them this but I shall tomorrow, thank you for your advice and for your well wishes!
I will ask at reception when I go back next week, thank you for your advice! I have been told that it costs £20 upwards at my GPs surgery and that they arent doing any right now because my doctor is busy but maybe next week she would be able to take mine through if she is less busy hopefully. I will look into symprove and go back to taking art again as it used to calm me down a lot. Thank you very much
I knew it would be an Academy. The rules they impose is just ridiculous and they seem to forget that children and young adults have human rights! The prep for a colonoscopy involves clearing out the bowel. U have a restricted diet of basically white foods for a few days before, white rice, Turkey etc, then u have to drink a litre of water with laxative powders in. Thats the easy part haha. It then turns ur bottom into a jet wash and u spend about 4hrs sat on the toilet whilst ur bowel quite literally gets cleaned out. Then, depending on what time the test is, u have to do it all again! The colonoscopy itself, they sedate u and fill u full of pain killers, give u a pair of dignity pants (I kid u not) with a little hole in the back, then pop the camera in. It's uncomfortable, I won't lie, but over VERY quickly I promise x