Hi
Name: Paul - Age: 53 - Sex: Male
I have been suffering with pain and fatigue in the areas you would expect and others for 15 years now.
I have had virtually every test there is to have, y specialist bandies about Chronic Fatigue Syndrome and Chronic Pain Syndrome.
I am currently on 2 x Fluxotine in the morning, 1 symvastatin at night then 4 times a day 2 x tramadol 2 x paracetemol and 2 x ibuprofen 27 pills a day.
I gave up work 9 months ago as i just could not manage it any longer I had a great job too which made it even harder.
On many occasions I have felt the NHS has given up after extensive tests but I have kept on to my local gp as at this time I have no life so to speak but more importantly my partner has no life, we dont go out, sex is getting less and less frequent and some days I dont get out of bed.
Recently I went to my gp and he suggested PMR as my blood tests have showed inflamation for a number of years but not enough to cause anyone to follow up, they always ask if I am getting over anything, my gp has now written to my specialist to see if steriods could be a correct treatment.
6 weeks later i am still waiting to find out six weeks doesnt sound long in the overall scheme of things but it seems like forever I just want my life back. I have spent my lifes savings getting by and need to get back to work for mine and my partners sake I feel ike I am wating her life and my own.
I have some syptoms that make me feel its not PMR I have not lost any weight i put that down to inactivity and I suffer a continuos high pitched ringing in the ears and neck headache, my eye sight seems to have gotten worse this last year but i sort of put that down to working on a computer a lot, but having read up on pmr i am now a little concerned its something else but could i be just imagining these things in hope of a diagnosis.
Any help on symptoms experienced would be a great help and relief.
Thanks
Paul
Hi Paul
sorry to hear you are suffering so much.
I am not a medic and therefore unale to comment on all of your symptoms. However, when I read \"Symvastatin\" alarm bells rang. Did you know that the side effects of Symvastatin can mimic the symptoms of PMR? There are alternative to statins available, ask you GP.
I can send you the diagnostic procedure for PMR written by a leading Rheumatologist ( one stage of the procedure is to eliminate the side effects fo statins) I can also send you a 28 page document written by him about PMR which may help you.
kind regards Pam
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hi thanks for that, we did discuss this at the time of starting it which at that time i already had the symptoms.
any info would be a fantastic help
paul
Hi, Having read what you've put about your symptoms and how you feel You could have been writing about me!
I have also had extensive tests and seen numerous specialists both private and NHS
They all seem to arrive at the same diagnoses in the end - Chronic fatigue syndrome (me), PMR and Fibromyalgia!
According to my doctor because I have all these and depression (who wouldn't be depressed?!) I am eligible for Disability living allowance or as its now called P.I.P. Presumedly you would be too.
This is a benefit for the chronically I'll to help with the costs of living with. Disabling condition/s and to pay for care.
I had to give up work, which felt like a bereavement. I missed being with my work colleagues and having a job I loved too, it was so depressing I tried to end it all. Thankfully I was found in time.
I am telling you this to let you know, that you are not alone. Your partner can join the carers group at your doctors and if he/she gets in touch with Carers UK she/he will get support and understanding too.
As will you. I found tremendous support from my local Fibromyalgia group (Google it for a group in your area),
Everybody with disabling conditions are decent people and want nothing to change in how we regarded by other more able bodied people. We cannot just "get a grip, or simply get out more" as some would suggest! Often I have have been told "but you look so well" unfortunately what they fail to grasp is that the rosier my cheeks are the worse I feel inside! And the saying is most apt which states "one should not judge".
I feel for you, as I am in a similar situation myself. Keep smiling you are not alone 