Talk by Prof Dasgupta on YouTube

Bones, joints and muscles
1

I'm sure I can't post the link here, but if you do a search on YouTube for A Landmark Year for PMR and GCA and Prof Dasgupta, you will find the talk he gave recently at the PMRGCAUK Members Day.

We were very lucky to have him give a talk at at our Surrey Support Group a while ago. Well, the luck was down to Mrs O organising it.

He's a real champion of our cause.

2

Hi Susanne!

I found the video with the info you provided. Thank you so much for sharing!! 

Paula

 

3

You're welcome, Paula 😊

4

Thanks for sharing this.  I am sure that anyone with GCA will be taking notes and talking to their doctors about these new findings.  I have only watched ten minutes of it as I have to run this morning.  I have bookmarked it, so wiull watch more later.  The vision part is so very scary for all GCA sufferers and is what I think all of us with PMR fear happening if the PMR goes into GCA.  Donna

5

Have just watched, thank you....lets just hope all what he knows and has said, will get through to our Rheumies!....but I`m not convinced it will...they seem to have their own agenda, which is why so many of us struggle, and have to look out for ourselves....and be on this excelllent forum....

Wish Prof Dasgupta was at my hospital!..

​Thanks again...

6

Thank you for this reference Susanne. I learned quite abit and although I am a PMR patient, there are many diagnostic advances that applied. I have not been exposed to the use of ultrasound at all here in the US but perhaps it is in use for GCA here. The reference to muscle decline after long term steroid use in the elderly was particularly of interest along with recomendation for an excersise program to offset the results.

7

I thought that mention of muscle myopathy very interesting as there's been a discussion on here about whether it's PMR or pred which wastes the muscles.  I've asserted from my own experience that if you can keep moving through your undiagnosed spell you don't lose muscle tone, but pred can do a number on those same muscles quite quickly, and even at fairly low dose.  

8

Oh how true. We need to be one step ahead unfortunately.

9

Susanne - contact the moderator and ask if you can post the link. If it is appropriate and respectable things can be approved.

10

OK thanks Eileen.