Hi Cathy,
You are welcome Cathy. Yes, that is correct my name is Les, perhaps I should change it, I have been asked many times why I call myself disabled Les. Okay, I beat cancer - but I have many other disorders wrong with me. Cancer to me was really minor compared to other problems.
For 30 years now, I have Dystonic problems - rediagnosed last year to Generalized Dystonia, ,meaning affecting the whole body, which was previously Focal Segmental Dystonia, Epilepsy, Functional Episodes, etc. I am on over 30 tablets a day consisting of Class A & C drugs, 5 Botox injections every 10 weeks at the hospital, and under numerous Consultants, for Neurology, Oncology, Urology, Epileptic Specialist, Pain Management and my own Doctor.
Cancer can kill I know, but what I have been through is a nightmare, I would not wish not up on anyone, I did have a "Small intestinal ischemia and infarction", basically I was dying from the inside out, because my intestine had gone gangrene of over 50cm long removed. That was one major operation, 2 days later when I should have got better I had become worse and started throwing up bile, they measured over 5ltrs and rushed me down to surgery again, part of my liver was gangrene, which was removed in the 2nd operation. Both operations I could have died under but pulled through, it took 10 months to heal properly.
There are people on here with Facebook Accounts, but it is not a good idea to post your details directly on forums, which are on public view. If you need to contact anyone you can click on the envelope below their Picture, and Private Message them.
To be honest, I wish I could do more than I do now - but I'm limited in many ways, and over the years it just becomes worse, people think I have MS, but that is far from the truth, there is no cures for what I have - only medications to control it... pain for me is daily, 24/7 thats why I am on Tramadol, Paracetamol, and a buch of other medications.
If you need any information, I am quite up to date on most things!
Regards,
Les.