Let me preface this by saying that I’ve gone to the ER for this once already. I had a CT scan that came back normal. They gave me a benadryl shot, a toradol shot, and a reflux (Robaxin?) shot. They didnt explain why. They did no blood work and sent me home with a Toradol prescription. And told me to follow up with my neurologist.
My neurologist is a) refusing to do any labs b) prescribing me meds (MORE toradol 50 mg 1x day for 7 days and 4 mg Decadron w 3 pills only) despite me not actually getting to talk to HER, not her nurses c) hasn’t actually shown up to the last 3-4 appointments (so 1-2 years) and just sent a nurse.
I dont know what the decadron is for.
My GP cant do anything because this is supposed to be my neuro’s job.
My medical history and prescriptions will be posted below my current concern/symptoms because of length.
I’m a 23 y/o F, 280 lbs, 5 ft 6 in from Alabama, USA. I don’t smoke, drink, or do any drugs not prescribed to me.
My symptoms for my current concern started on 4/16, and I was able to make a timeline of my symptoms with help, because I don’t remember a majority of the time from when I got sick up to right now.
Started 4/16
Symptoms: low fever (99.9) cough, confusion, vomiting, nausea, headache, mild hallucinations, memory loss, extreme twitchyness when falling asleep, distorted vision, fatigue, not a complete loss of coordination but I stumble, list to the side while attempting to walk, and have poor balance
4/17:hallucinations, headache and memory worsen, tested for flu (negative) and covid, went to er for shortness of breath, chest xray was clear, still had a low fever, no vomiting but persistent nausea, fatigue, balance and coordination stay the same
4/18: headache and memory worsen, no nausea or vomiting, now continuously taking tylenol to combat the pain of the headache so no more fever. Hallucinations go away, but the vision distortion remains. Still fatigued. I stumble a bit less.
4/19: headache and memory worsen. Pain goes from 6 to a 7 as the day progresses. Vision distortion is no longer constant, only when experiencing spikes of pain from headache. Still fatigued. Coordination is worse, running into things or knocking stuff over.
4/20: headache debilitating, memory problems continue, still have a slight cough, received negate covid 19 result, still fatigued. Balance and coordination are the same.
I kinda stopped taking/forgot to keep daily notes but my symptoms stabilized at this point. I have the headache, memory problems (I completely forget what I’m doing and when I got where I am), still have a cough, it takes me a few tries to grab things and i drop things more often, I can’t understand what people are saying sometimes (i can hear them clearly but I have no idea what the sounds they’re making mean), I’m extremely fatigued, and I’ll have spells where I just kinda stare at nothing and not think about anything.
My current headache pain is at a 9 without toradol
The best way I can describe the headache is it feels like someone with hands made of acid is holding my brain and squeezing, while a knife is lodged in the middle from front to back.
It feels /completely/ different to my intracranial hypertension migraines.
Existing conditions: Endometriosis, PCOS, POTS, intracranial hypertension, regular hypertension, psoriatic arthritis
Current Medications:
Venlafaxine 150 mg antidepressant
Atenolol 25 mg beta blocker
Lisinopril 20 mg high blood pressure
Ambien 10 mg sleep
Seroquel 25 mg sleep
EZFE 200 mg iron every other day
Nikki .3 mg birth control for endometriosis and pcos
B-12 3000 once a week
As needed:
Alprazolam .5 mg anxiety
Tl;dr I’m a 23 y/o with the worst headache of my life, and memory, cognition, and coordination problems that are not only severely impacting my life but are really really scary