Hi ladie are any of you having problems with your hair. Ive noticed mine has gone alot thinner, and Im loosing quite a bit of hair. just wondered if any of you were having the same problem
I was diagnosed a month ago and only last night while washing my hair handfuls were falling out and once dried I noticed my hairline is thinner
Than you for sharing that with me deborah, must be another fibro symptom. I use to have very thick brown hair but not now
Hi Kaz, yes I have been losing hair for about 9 months now. I thought it improved when I had been on Vit D for about a month, but now I'm losing it again. My daughter was a hairdresser and washes my hair for me as I can no longer manage to, and she says that more than usual is coming out. Also when I brush it, and even finding it on my clothes and pillow. Fortunately my hair was very thick to start with so it is not noticeable at the moment. I checked the pharmacy sheets for all the meds I take and a few of them list it as an uncommon side effect, so I don't really know the answer. xx
Hi Kaz At present I am having dire problems with styling my hair I always lose lots of hair every time I shower and my scalp is very itchy as well as also being sore. I am on prescribed Nizoral which I apply twice a week must book in with GP and see what is going on probably down to the added non stop stress alongside this illness I am under unable to sleep a great deal too body awol in so many areas and from both knees down my feet are swollen and agony give anything not to wake up. julia
Hi Jeanne Im not any meds I cant take them because of side affects, my hair was once very thick but its now gone thin and Im loosing quite a bit of it. Ive just been on a sight and checked it is a fibro symptom, and apparently hair will grow back. the joys of having fibro thank you for taking the time to reply back to me take care gentle hugs
Ive just been on a site and apparently it is a fibro symptom and the hair should grow back so heres hopeing the joys of having fibro. also some meds can be the cause of hair loss but Im not on any meds gentle hugs
hi julia Ive just read on a sight that its a fibro symptom and any hair loss should grow back so heres hopeing also some pain meds can cause hair loss so thats worth you checking out with any meds your taking. Im not taking any meds as Ive had bad reactions to all that Ive tried. Like you sleep is a problem. but last night 1st time in a very long time I managed to sleep for a few hours which was great. my hands knees feet and legs are badly swollen and very painful. Its so hard dealing with what we have any other stress worry on top will make things a 100x worse. the stress certainly wont. be helping really feel for you thinking of you here for you gentle hugs take care xx
I would check on the meds your taking to see if it mentions hair loss gentle hugs take care
I have had Fibro fo 20 years, not on any strong medication,as I get side effects.
In the last three months been losing my hair ,more on one side of my head than the other.....didn;t think it was Fibro,so surprised to see others losing hair.
Hey kaz, my hair is also quite thin, was never super thick to start with but I have noticed more falling out when washing in the past few months, I have tried that plantur 39 caffeine shampoo which I think has helped a little, but I don't think its effect was proportional to its price to be honest,
Has anyone else tried anything that has helped?
xxx
it came as quite a shock to feel and see that my hair had gone thinner and that I was loosing quite a bit of it hope it soon starts growing back soon.
hi alys 1 of our ladies is applying Nizoral twice a week on her hair.. I havnt tried anthing as yet. I have been googling to see what I can find out and apparently it can happen with fibro but the chair should start to grow again unfortunatly for us fibro affects every part of our body. Im jst hopeing preying that our hair loss will grow back and soon gentle hugs take care
also some meds can cause it to happen so check up on your meds and see what it says what the side affects can be take care gentle hugs
Yes there are many reasons some AI diseases an endocrine one plus some medicine can course this I would discuss with your GP!
Hi Kaz, I have had two bouts of alopecia in the past 3yrs. Both before my diagnosis but during the time my symptoms had taken a hold. Both times left me with general thinning but also40-50% of complete loss around the back and right side of my head. Both occasions took around 6 -8 months to grow back and when it did it was as thick and healthy as before.
The first time devastated me, I would wake up with it all over my pillow and in my mouth. It would clog up the shower drain and hairbrush. I also resorted to shaving my head the first time because I looked ridiculous with halve my hair long and the other halve completely bald.
Heres the thing though, I very, very quickly realised the more I worried and stressed out about it, the more my hair fell out. I know it's easy to say but stressing certainly wasn't making it grow back. In fact it really was making it worse. Instead of all the negative things about it, (and there sure was a few), I made a list of the benefits.
1. I saved a fortune on shampoos etc
2. I didn't need 4wkly visits to the hairdresser
3. I took the opportunity to try different hairstyles by wearing wigs
4. No more getting up early to wash and blow dry my hair in the mornings
5. An extra half hr in bed
6. No more bad hair days, just grab a wig ang go
Simply put, there is nothing you can do about it really. Make sure it's not your meds or that nothing shows up in bloods to explain it. The more you stress about it, the worse it tends to be. Lastly for hair that is thinning all over thickening products can help to disguise it and a change in the way you wear it could also help the way it looks. Speak to a good hairdresser who could suggest a new style that maybe you hadn't thought of but could give the illusion of thicker, fuller hair.
Good luck with it and remember it almost always grows back xx
Hi All; I have been reading all inputs, and wondering if any of you have had your Thyroid functions tested, especially the T3T4 uptakes, as suggested by another lady who has been on this and the ME sites.....although the results may come back "withing normal range", I agree that our Thyroid has alot to do with our bodies in these conditions........even if you research Thyroidites/Hashimotos Disease, one of the Main symptoms, is Loss of Hair.......don't know if this is a causitive factor, or a symtom of Fibro....but would be interested if a few more of us trialed Thyroxin, and find if we improve...I have started on Thyroxin (been on it for 3 weeks @100mcgs)....and am awaiting to see how I go??? Bron
Hi lisa thank you for the info, Im not on meds as cant take them as had extreme side affects. so I thought it must be down to the fibro. I am seeing my hairdresser soon so will have a chat to her Im glad Im not alone in this it seems quite common. as you say stressing worrying wount help will see how things go it just came as quite a shock as my hair has always been quite thick. I was shocked by the differance in how it had gone quite thin and the ammount it was falling out. hopefully it will start to grow back gentle hugs take care
Hi bronwyn I have hashimotos Im on a thyroid tablet have been for a few years now. I take 100micro grammes. Im due a thyroid blood test so will see what that comes back like.have you noticed a differance yet since taking yours on saying that you may not notice a differance for a few weeks yet, as I didnt. take care gentle hugs
Hi Kaz, I zoned straight in on your comment about hair loss! Mine started a few years back and initially was thought to be a nasty side effect of citalopram. I stopped taking it and the hair loss eased off. But over the past 2 or 3 years it is much much thinner and every now and then it starts shedding again. My forehead hair line is really receded now and my hair was always very very thick and healthy. the front and crown area are now very 'see through'. Various doctors have shaken their heads, the same old same old, 'its your age' yada yada. Its NOT my age, I didnt lose my hair through or after menopause and I have friends older than me with fine heads of hair. I am now more determined than ever to beat this vile fibro!!!