Hi Ses
I did mamage an early night was shattered after Saturday. Went to be at 9.30 and slept until 3. Managed to get off til six then. A lot more achy today in my back and legs etc. I think we are due more rain lol! I do manage to do the cooking at home. Now and again my hands go weak when I lift something but hasn't happened for a while now.
I think I have been feeling lot worse this week as I have just had a period. Hormones have a lot to answer for. I am 52 so hopefully not much longer for me now 
When I was ampytripline I was only on the lowest dose of 10mg and managed to wean myself off them but cutting down a little bit each day. So didn't have to many problems that I can remember. We are all different I suppose so what suits one doesn't someone else. I had an epidural with my twins but seemed to be ok with that although painful at the time. My twins weighed 8lb 110z and 7lb 10oz as I went to 39 weeks.
Well hope you get some relief from your pain.
Thinking about you.
Theresa
HI Tess,
The pain in my back is a nightmare again, and I feel so tired today, my Support Group meeting is tomorrow and so I am hoping I have the energy to do the session?
I have had to sleep with a hot water bottle due to the pain as that is all we can do!!!! I have put together a relaxation schedule for my group so I can let you know in August if it has helped them?
I am going to see if I can lie down for 10 mins as little one is sleeping?
I hope you are having a good day xx
TTFN
Hi Ses
Hope you get some relief from your back soon and you are able to have your meeting tomorrow. Theres always something to deal with on a daily basis. Keep smiling though and you will get through .
I have been a lot better today as no headache. Probably early night did do some good. It was going ok until this afternoon when I just bent down and my big toe went funny again. The pain was unbearable and I couldn't walk on it for at least an hour. Was a struggle to go up the stairs. All of a sudden settled down and is ok again now. Don't know what is going on and will have to ask rheum. in October. I couldn't even put a shoe on so was walking round with one flip flop on and a bare foot.
Hope you had a good rest and will talk to you again tomorrow. Will be away from 17th - 21st July and will catch up when I get back.
Have lots of rest.
:choc:
Take care
Tess x x
HI Tess ,
Had my group meeting and I was disappointed as I had put a programme together and not everyone turned up???? I suppose it is due to the condition, I am warn out though!!!!! I am going to phone them later to see if they received their programme as the lasses said they would post them due to them having transport.
Anyway my shoulders are so severe, it was nice talking and one lass is he same as me having severe pain in the hip and having to walk with a crutch, my fingers are having a another attack again?????
I do hope you are having a good day both you and Di ?
Take care and speak to you soon xxxxxxxxx
Hi Ses
Sorry you didn't get as many turn up to the meeting. As long as they went away feeling more positive that is important. I am sure by what you say they would have done. Hope you get some relief in your hips soon :D
Well I am going to pay for it tomorrow I am sure. Have been on the go all day loading up the van with my husband. Try to plan it all out and didn't quite work out.
Only finished about 10 minutes ago. Now need to unwind. Feel quite achy now I have stopped but was to busy to worry about it before. Have been waking up really stiff these last few mornings.
We are hoping to leave about 10 so have to go get some beauty sleep soon. i sure need it :
Will catch up when I am back keep positive.
Hope you are feeling better Di and catch up with you also.
Take care both
Love Theresa x x
Hi, Tess, Di xx
I do hope you have a good break Tess and I do wish I could have a nice holiday somewhere hot would be nice? Chance would be a fine thing!!!!! :oops:
I do hope you are also feeling better Di getting ready for your anniversary celebration? :cheerup: :bubbly: :cracker:
The weather is doom and gloom at the moment and the pain is awful once again!!!!! So not having a good day!
Take care both of you and I hope your having a better days than me xxxxx
Hi Ses and Di
Well back now for a few days then off again on Friday. Pain wasn't too bad while I was away but still having trouble with toe. Couldn't go out walking far but managed all right at the wedding reception. Although as the evening went on my toe got worse and hobbling around. Got to go get it checked out. Have to go back and see doctor in a few weeks. Should be hearing hopefully about appointment for some physio but will still have to wait 6 weeks until seen.
How are you both! Hope not in too much pain :o Better today with the weather being warmer. Missed coming on here to see how you are.
Take care
Love Theresa x x
HI Tess,
I have been in so much pain but it is the opposite direction this time as I have pain in my left hip in the front but lately it is in my left hip and at the back?? so I have been unable to lean forward somehow as the pain is unbearable??? I think it is my discs though as it is a different pain????
Anyway tha pain has eased slightly today as it has been warmer than it has been for ages so fingers crossed we can get a slight relief if the weather picks up ?????
I have had pain in my toe before Tess, sorry the wedding didn't really go smoothly xxxxxxx the pain can move around unfortunately so we have to just put up with this awful condition, well done for coping xx !!!!!
I do hope you both are having a good day due to the rise in temperature xxxx
Take care xxxx 8)
Hi Ses
Sorry to hear you are still in so much pain with your hips. The warmer weather does seem to make it a bit better. I don't know what happened to me overnight but woke up this morning with lots of different aches.
My shoulder, top of thighs and back aching at the moment. Not sure if it is due to hormones again as getting near to another period i think. Always seem worse then and feel like I ache all over.
Was getting worried as hadn't heard from you. Good to know you are ok apart from all the aches and pain lol.
Getting ready to go away again this weekend for our Anniversary next Monday 29 years!
Keep going. One day at a time thats what I tell myself but doesn't always help!
Hi Everyone else hope pain not too bad for you!
Take care
Tess x x
Hi there Tess
I do hope the weather continues with the warm spell so that your anniversaries you and Di are in less pain........ or better still no pain for those celebrating days :gift: :love: :bubbly:
Still having a bad time but not as painful as it has been.......I couldnt sleep last night due to pain and so I stayed up late, don't feel too bad though considering as I would have thought I would have started feeling fatigued after tea but it has been warm today so maybe it is due to this????
I do hope your day has been a good one and at least you have a lovely cruise to look forward to keeping your spirits up xxxxx
Take care both of you xxxxxx
Hi Ses
Thanks will catch up with you when I am back on Tues 29th July. I hope you get a better nights sleep than you had last night. I have really bad pains in my knees and above tonight. My ankles have been really hurting as well today. Feel like we have rain on the way!
Time to go to bed now and try and get some sleep with knees playing up. Try take my mind of it.
Take care
Love Tess x x
hi there all u lovely people
period time kill me.. its not the period pain its seems to flair everything else up.. thats what i find hard to understand about this illness...example//
woke up this morning in agony..got up tried to move but the pain was so severe i wais crying... got all the painkillers im allowed to take went back to bed pain eventually eased off.. why is this?
i get pain in my left big to and all different parts of my body.. got a new pain..the top of my left arm when i stretch it or sit and relax it..
got my new glasses today never worn glasses before so hope i can see better..
im sitting here actualy at this moment and not in any pain.. so im thinking..got lots to do but do i just sit and enjoy being pain free for a bit?
hope ur not in bad pain today..
luv di x
Hi everyone xx
I am in so much agony now I cannot even have dignity going to the loo due to my hip n back pain ....... it is driving me crazy..........doesn't help tho when you get death threats at 2.30 am from your ex husband neither..... Police are charging him.... and so the stress from this has raised my pain levels :twisted:
I do hope you are having a good time Tess while your away...... and Di nice to hear from you as I have thought about how you are doing? and I hope you are celebrating with ease with your wedding anniversary coming up? The warm weather does improve most of the pain...... but it is unfortunate of me to have this chronic back pain :oops:....... I have this which relates to this nasty illness..........
Imagine never feeling good, when you know of no reason not to feel good.
Imagine feeling pain in multiple areas of your body for no apparent reason.
Imagine feeling like your verbal and motor skills are impaired when they were fine a minute ago.
Imagine feeling like you have missed sleep for a week when you have just gotten out of bed.
Imagine something going wrong with your body everyday, when you have done nothing out of the ordinary.
Imagine having uncontrollable shakes and tremors and shocks of pain run through you, and disappear as quickly as they came; leaving you awaiting their return.
Imaging having to live a \"normal\" life in society, yet knowing your abnormalities will mess that up for you anytime of any day.
Imagine striving to be the best Mother and Wife you could be and being left to feel useless many times over awaiting to feel normal again.
You have now imagined what it is like to be me. I live with Fibromyalgia.
I do hope you both have a lovely wedding annniversary :choc: :bubbly: :cracker: :cheerup: :rose: I am just praying I have no further hastles as I cannot take it due to the pain!
Take care and best wishes to you bothx
hi ses and everyone
im so sorry to hear u are having trouble...men huh!!
im away on cruise tom 9th for a week... but cancelled all other party plans..started to think how much work is involved and cant cope with it..anyway i cant believe i have woke this morning very early and im not in pain like i usually am.. but u know..it can hit u again at anytime.
i am at the moment not in control of things.. depression is hitting hard.. hubby struggling so of course it affects the whole family... but i feel its all my fault so feeling really down...
i do hope to get on line while im away so i will read how everyone is.. but until next week..take care try and relax and hope ur not in pain xx
di xx
Hello Di and everyone,
Sorry you had to cancel your party plans, but do try and enjoy cruise. Been to visit husbands brother, and am so.... stiff from travelling. My depression is really bad at the moment too, I feel that its my fault that I am like this and I should just be able to get on with things, deep down I know that not the case, but depression makes you think funny things. Going to see GP next week, maybe a change of medication is needed. Did you ever get your hospital appointment? Maybe when you do that might make you feel a bit better. Well take care all, going to try and get some rest now. Talk again soon
Linda
HI everyone,
I couldnt sleep last night and so I have found the pain unbearable once again..... in my hips tho due to the osteo, warmer weather has helped the fibro but I am on edge thinking if my ex is going to go through the threats as he tried once before....... I was 6 months pregnant last time and so this is the last straw!!!!
I have been forcing myself somehow move one foot forward today as it has been so difficulty and an effort to walk I went to the local shop with my son in his pushchair for support but it was so much effort I am exhausted :evil:
I feel the meds that I am on Linda are of no use really as we get used to meds they never take the full pain away anyway I am going back to pain specialist soon as Gabapentine I have found out it helps you gain weight...... no wonder I had put weight on however thank goodness I am taking Orlistat as I have lost nearly a stone...... something that has cheered me up a little, but I have had no meds that have took away the pain totally! I found out that I have 18/18 tender points too I do not know if this has got something to do with why the meds do not work properly?
Anyway folks I do hope we all have a better time tomorrow gentle hugs to everyone............ So glad to hear you have felt a bit better Di but when we have stress us fibroites then we feel it deep within like a lead weight :roll:
Take care everyone and take it easy xxxxx :smooch:
Hi Ses, Di, Linda and everyone
I am back now from weekend away. Not too much pain apart from my toe hurting again yesterday and stopping me doing lots of walking.
Really need my bed now as had a very busy day with getting up early and trying to catch up at home.
Ses sorry to hear you are still in a lot of pain. No wonder with 18 out of 18 pressure points. Hope your new medicine works for you. Hope your other problem gets sorted you don't need that added stress.
Hope everyone else is in not too muh pain and will catch up tomorrow.
Lots of hugs to you all :lol:
Love Tess/Jane x x
HI there Tess / everyone,
Yes I am in so much pain and the back of my leg has gone numb somehow???? don't know if it is linked to my disc problems too....... I found the info from my report for my DLA, have Osteo arthritis in hip also which my doctor has not really addressed in the past just said the pain in my hip was either the fibro or my disc problems, referred pain????? so now I know the truth!!!!!!
Anyway folks I hope you all are having a better pain free time than me? I am not looking forward to my appeal as I think it is so crap you have to sit in front of people in pain and disability and you have to prove your status, absolutely annoying!!!!! anyway I am going to go and lie down as it is driving me nuts!!!!
Take care everyone xxxxxx
Hi Ses and everyone
Hope your appeal goes ok. :o Still having trouble with my toe found it difficult to walk about yesterday. Because I daren't put pressure on my toe because of pain. Now made the underneath part of my foot hurt too with not walking correctly. Really must go see my gp about it. Still trying to sort out after being away. That is what is bothering more at the moment than my other aches and pains.
Can walk better if I wear trainers but don't look very good with a skirt in this week lol. :shock:
Hope everyone else is coping ok and not in too much pain. Think it is going to be another hot day! :o
Take care
Love Tess/Jane
xx
hi Tess,
I am definitely getting worse as I am having more mobility problems my right hip is so painful, having difficulty even bending forward....... must be the osteo, makes me sick as I was so depressed at one stage the doc didn't highlight the fact my pains are not just with fibro because I was so emotional at my appointments but now I have the report I know now why?
I think the pain maybe also due to the stress waiting for the appeal?
I have pain in the back of my bottom of my leg and so I am unable to get around, even worse than I have been ever also, it seems as though it is numb???
Take care everyone lots of gentle hugs xxxx