I have suffered with fibromyalgia for just over 2 years. The most debilitating and therefore depressing factor is the intense fatigue. I can no longer fly, or take a holiday. Even a weekend break can confine me to bed for a week on my return. Does anyone else have this problem? I am 64.
hello Angela I can relate to your sleep although I slept last night I feel as if I have been awake for days I feel very tired. Sorry you are going through this there is no outright solution. If you need to talk please know l am here. I feel sharing your feelings with others who understand helps in a small way.
take care
linda
Hi Angela
The fatigue does affect me but I am not sure if that is because I never sleep very well I could often doze off during the day even if I have slept but I just get tired of the pain and trying to carry on regardless of it I find that I suffer the horrendous Fibro Fog after a really bad nights sleep Do you take any meds at night to help you sleep?
No Wendy, I don't take any sleep meds. Most nights I do get enough sleep. I have just had to modify my life, and not do very much. Thank goodness I'm retired!!
Thanks Linda. I sleep pretty well most nights, it's just daytime activity that wipes me out totally. A few hours of childminding, or playing with a puppy, can leave me whacked out for days after. I have really had to modify my life. I'll get used to it.
Hi Angela, it's 17.35 and I finally succumbed to going to bed. I was fine this morning, did a little housework, then went to the supermarket followed by calling in to see my daughter. While chatting with her I was suddenly tired and have been struggling to do things all afternoon. The dishes are in the sink -and dishwasher- and the house looks untidier than usual but hey! I'm all cosy in bed with the crossword, my iPhone and tv. Sometimes you just need to give in
i find the general ach of fibro bearable not so when its a flare up .that is allmost impoissiable to cope with.
the general tirdeness is bearable , but when it is the crushing type its so depressing
i want to go and see my sister inlaw its a 4hr car journey iv been promisng for months ,but i know excatly what i will be like when i get back a sleep for a week and washed out like a zombie for at least another 2 .
it is the worst part of it i think most sufferers think so your not alone . it puts me of even the simplist shortest trip because i know what is coming .and its crushing .
i feel like i just exist hanging around taking up space . i was always a doer like to be busy now just cleaning the house is a monmentous task . if they medical bods could sort out the fatigue i could cope with the pain .
Thanks for your reply tiswas24537. Like you I once led a very active life, and had a high flying career. The symtoms of my fibromyalgia have become really profound in the last 2 years, but I believe it has quietly sat there for a lot longer. You are describing exactly what I am experiecing. I had to give up the gym last October, and much as I would love to keep a dog, it would exhaust me too much. It's a true devil of a condition.
could you afford a dog walker , iv got 2 dogs but iv got someone to walk them . i couldnt live with a cuddle and snuggle without my 2 fluffy friends .
i think it starts with little symptoms that you dont think anything of then as the stress builds thru life it than hits you like a brick wall .its only with hinesight that you look back and see fibro markers . .hope you have a good night nite .