Hiya! I’m abbie and I’m 23. I have CFS and fibromyalagia. Aside from the pain and fatigue one of the most frustrating things for me is the brain fog and not being able to concentrate / focus. I’m in my final year of university (I had to defer last year due to having so many surgeries) and it’s so important to me that I graduate. At the moment I cannot for the life of me concentrate enough to do my work. I spoke to my doctor who said I could try and get a specialist to prescribe me Modafinil but I am really quite against it. Has anyone used any medication/ vitamins / nootropics that have really made a difference? Would also love to speak to people a similar age as although I believe to have had CFS for about 2 years I only got diagnosed in the summer so it’s all very new to me! X
I’m 25 and been diagnosed Hun I also suffer with awful brain fog and I don’t take meds for it xxx
Ah okay it’s nice to know someone close in age! What do you do about your brain fog? Xxx
Definetly Hun I don’t do anything about it but most people take magnesium for it and say it helps a lot and bit d and b12 xxx
Thanks so much! Xxx
Anytime Hun I’m very new to this aswell it’s very scary xxx
Hiya
Im 28 and suffered years i used to take magnesium which seemed to help , i had to stop taking them due to some tablets i was on but not iv mentioned this you i’ll be back on them tomorrow :-) brain fog is awful .. isnt it annoying when u constanntly question everything and forget what you did yesterday . Im bad at remembering what happened on whatever iv watched on tv. Or i’ll be at work and someone tells me to do something and if i dont do it that split second im like erm what did you just tell me to do people say oh my god zoe thats 3rd time and i’ll say i no sorry and giggle a little saying i really cant remember things but with me being 28 they roll their eyes as if im thick lol i no what people think but im same with some people haha . Just in our case its way different . Scary illness isnt . My ex at the age of me being 17 .. his sister had M.E i watched him carry her to toilet and lay on her bed and i was like why cant she just get up ... and now being diagnosed with it now i see why. I have a day where i have to go to bed for hours but iv never been so bad as what i read some of you go threw on here and other places i read stories about M.E im lucky i still work i nearly quit 2 months ago but i thought no way untill i CAN NOT get out of my bed im working hope ur feeling ok hun :-) xxx
I completely get how you feel! I have good days and bad days. Horrible to hear about your ex boyfriends sister.... it’s good that you’re still working! That’s really positive. Hope you’re feeling ok too! Will definitely have to give magnesium a go xxx
If you don’t mind me asking - have you tried antidepressants for the CFS at all? Xx
If you don’t mind me asking - have you tried antidepressants for the CFS at all? Xxx
No I haven’t Hun but am going to xxxx
I was on citalopram then sertraline but i stopped them as doc blamed sertraline for how i was feeling so 6 months after when he said its just ur tablets ... i said no it isnt iv come off them so u cant blame them anymore x
I was on citalopram too. Prozac made me loopy. Sertraline I ended up in hospital with xxx
Never tried prozac read to many things.
Oh gosh not only me then that totally made me worse on those things.
I’ll never have anti depressants again xx
I was fine on citalopram. Venlaflaxine made me crazy. Prozac I was on for a while and was ok hen I stopped them went back on them a year after birth and made me crazy. Sertraline the side effects were that bad I ended up in hospital thinking I was dieing never known anything like it xxx
I self medicate with daily B12 Methylcobalamin Injections.
I was first prescribed them by a CFS Specialist and now I source my own.
I have been on them for 7years.
It gives me probably a couple of hours of brain clarity and I can tell when I have
missed one.
That sounds really good. Where do you source these from? Are they pricey? X
Hi Abbie
Oxford Bioscience supply it in powdered form which then needs reconstituting with saline solution...it is the only way it can be bought in the UK
I use BD Posiflush saline sealed syringes easily acquired in UK
I also use standard insulin syringes BD Microfine
If you join the Pernicious Anaemia Forum on here there are some threads on there about people sourcing their own
B12 is a water soluble vitamin and the body excretes what it does not use...it turns urine pink if you have too much... but this has never happened to me.
Some people treat themselves once a week, 2 -3 times per week, all depends on the individual.
Thank you so much! X
You're welcome Abbie
Forgot to say it is B12 Methylcobalamin that I use which does not need converting in the body and goes straight to the cells. Other cheaper forms(hydroxcobalamin/cyanacobalmin) need converting by the body in a usable form. Some people's bodies cannot convert.
So B12 Methycobalamin works the best in a lot of cases.