Hello all you fellow sufferers out there. I developed this most awful affliction in January this year. It was confirmed at my appointment with the neurosurgeon at our local hospital. It began with what I can only describe as a million electric shocks from the left side of my head and feeling like I had been punched from the back of my eye. I was in absolute agony thinking I was going blind.
Anyway, since then my wonderful friend has done loads of research (in fact he had diagnosed it well before I even saw the consultant) I was admitted into hospital and prescribed carbamazapine twice daily, this helped tremendously but still left me experiencing less severe electric shocks. This went on for three or four weeks until my GP said to take an extra 2oo mg . This has been great except that I am tired all the time and still get days when I am 'good for nothing' although mostly pain free (fingers crossed)
So, I would like to ask if everyone would mind answering a few questions regarding diet, it's not a survey, just something I would like to use to satisfy my curiosity.
I await your reply, meanwhile my sympathy to those of you that are still suffering and enduring this dreadful illness