many people have told me there is a cure but professionals like doctors and my rhuematologist have said there is not the trouble is they say they dont actually know what the cause is as everyone is different so how can you cure what you dont know i have been researching into other professionals theories and run them buy my rhuematologist and psychologist and they have said that they dont believe there is a cure yet and i have spoken to a specialist who has been researching fibro for over 40 years now and he said there is not a cure yet i have heard so many comments on this and waqs woundering what others thought on this subject and how many people think its true or false
My specialist told me if he could find a cure, he would get a Nobel Prize. I think there is lot about the way the human body functions that modern medicine is still to unlock.
I say I wish they would get on with it, I want my old life back!!! 😥
Apparently there is no cure suppose the best way to carry on is try to relax have a stress free life andmgo forward well thats what they tell you should do but honestlythey need to come out in the real world cos theres no such thing as a stress freeworld 
My thoughts with lots and lots of research plus specialists views, are there is not a cure..although there is remission..I know people who have been in remission for years..I go in and out of remission too..but only for months and weeks not years-yet anyway...I live in hope..that's all we can hang onto sometimes..Then I get a flare up and know that it's not for too long..I have had Fibro for over 23 years and 10 years before that undiagnosed..I don't know whether the length of time Ive had it or not, has anything to do with it...but there is light at the end of this rotten dark tunnel..I take lots of supplements, I also have Sorjrens Sydndrone-(which has dried up some fluid in my ear making me dizzy and off balance for the last 10 yrs-there's nothing at all I can take for it either..so I'm dizzy/off balance 24/7 but we learn easily enough how to live with that..walking sticks and rollators are excellent) .Osteo Arthritis...Asthma... CFS..that seems to go along with Fibro, they have one common denominator..they are all autoimmune....so I eat Paleo style..(there is an Paleo Auotoimme Protocol too) .soo good for my health and weight, if your over or under corrects itself..worth googling apart from that I take 25 mg Amitriptyline per night ...great for muscle spasms/pain sleep all night....which makes me able to handle anything that comes the next day...Derek being diagnosed with Fibro is not a death sentence..there is always remission..many of us on here cope...the best way we can...so please continue blogging and asking lots if questions...there are years of experience on here,,we learn soo much from eachother...always trying to be empathetic, positive and encouraging..to eachother...be blessed and have a lovely weekend..:-) xx
Hi Derek,
I can't but help thinking, and my thoughts are not based on experience or in any way knowledge, npurely instinct, but that there is some germ in my body that my body is trying to fight and instead is hurting itself. You know sort of like that slap game kids play. My white blood cell count has remained just a little higher than normal over the past few years, as if my body is fighting an infection but no infection can be found.
A lady at gym the other day said her hustband was suffering terrible lower back ache after a car accident ten years ago and it would not go away. He read some article somewhere, that i am still trying to source, that he took to his doctor. This article explained something about some persistent infection that sits in the spinal column that can only be cured by 100 days of antibiotics. His doctor let him try and he has had no pain for a year.
A pipe dream maybe but it kinda fits my theory so trying to find the article or bump into the lady again and ask her to send it to me. I just dont feel like what we are going through is normal and a big part of me refuses to accept this as it for the rest of my life. I think that the medical industry expecting us to is bull. I am trying everything i can and praying to get the doctors on board.
Derek; I DON'T think anyone on this forum has said there is a cure....when/where did you read that? We have only given you Suggestions on how to cope/treat your Symptoms....that is not saying there is a cure............please take in what is being said, and you may help yourself...................Bron
Their is no cure for fibro thats what my gp told me when I last her. you can go into remission which I have done before for a short time. Then it came back with sheer vengence the impact was alot worse, Research is being done on fibro, but until a cure is found we have to grin and bear it just get through each day as best we can. take care
The cured people must be for those who were misdiagnosed, say lymes or thyroid etc. I do believe there is an answer, probably individual to each person as everyone seems to be different to what has helped them.
I'm a firm believer that there is a cause which hasn't yet been figured out by anyone and if there is a cause then there must be a some kind of solution. Or perhaps that's just what I need to tell myself to get through this crap I never expected to take over my life.
Fibromyalgia i belive is just Latin for muscle pain which to me is A symptom of something rather than a name of an illness, as we all know on this board there is much more to the whole process than just muscle pain so Drs, studies etc need to move away from just this pain symptom and look at things collectively, find out why our other symptoms happen and how they all connect to pain and exhaustion
Here here wouldnt it be great to get our old lives back? 1 day hopefully gentle hugs take care x
fibro is short for a part of the brain and myalgia proberbly means my pain but dont take my word for it and yes there is a cause find the cause cure the problem but is it realy that simple?
wise words from a wise person there are a lot of theories into solving fibro but dont believe they work as they are not proven otherwise they would not be theories at all they would be refered to as a cure
well just people who think they know but dont just people who think theres nought wrong and stop and look at you as i need to use a stick and when you tell them what you have and what it does they say well thats not that bad theres a cure for that there just ignorant and nasty and it kind of annoys me that some people could be like that and give false info and thats why this discussion was started to obtain facts not fiction for people who have just been diagnosed and also for people who have had it for years to help and advise others where this subject is concearned plus
they need true facts not fiction and thats what you get on here is helpfull advise and facts so keep up the good advise ladies its helped me x
well put i know its a great place here for support and with years of experience what more support could we ask for keep up the good support ladies x
there not but at least there is this forum and it does help to take some stress away x
At present their is no cure for fibro, people that say their is are just plain ignorant. Their are people who have had fibro for many many years if their was a cure then every one with fibro would of been cured. I did have it said to me a few weeks ago by my mother in law who said she knew of 2 people that were cured
. she said why arnt you working and doing this that the other oooooooooooooh I was so flaming mad. These people she was on about either were in remission, or fibro has varying levels we are all diferent to how it affects us. so perhaps as i dont know these ladies the fibro could possibly be at alower level.doesnt matter how you try to explain to people. people just dont seem to understand. no one understands fibro the only people that do is the people that have the condition. we live in hope that one day a cure will happen. take care
thanks kaz for making my point for me i have had this for many years and my rhuematologist said it seems to have been with me from back when i was a child as he went through my medical records with a fine tooth comb and i had all the symptoms back then there will 1 day be a cure when i dont know but i live in hope just like we you all do but till then we have eachother and that means the world to me and this discussion has made a very good point there are theories but they say they work well if they do then why are they still theories then shorly they would be called a cure but there not so how can people say i can cure you with a theory cause its only a theory not a cure and people should not give people false hope and false promisses the facts on the subject speak for themself there is no cure as yet and thats the truth of it but untill there is we all have eachother x
Thanks Kaz, many gentle hugs for you too. 🐼
me to and i hate it i feel like a 90 odd year old cant walk cant speak properly cant hardly move but as much as we want our old life back its not going to happen we are not even a shadow of our former selves and it sucks all we can do is be there for eachother and im there for you and its taken me a long time to come to terms with it and this discussion has done what i set out for it to do and thats prove my point if there was a cure it would be called a cure and not a theory so just keep hoping and dont give up hope as its what helps to make us strong and thats a place we all need to be not in a depressing place keep on fighting and never give up dont let fibro win x
Just checked, fibro means fibrous tissue. We can't give up hope that there is or will be a cure, new study mentioned on here says they have found some link to the blood vessels and nerves in hands and feet in fibro patients. It's doesn't seem to give any info on how this may indicate what treatment might be needed but the more people who group together like this forum and the more people that are diagnosed means hopefully the higher powers as such will have to really focus on finding the root cause or why our systems behave this way. I'm sure arthritis or other disease were once at this no mans land but over time they have figured out what biologically happens and have some treatments in place.
If u ask me the Drs don't have the right tests, there will be without a doubt a marker somewhere in our blood, muscles, brain, saliva etc, they just aren't looking in the right places or it hasn't been created yet.
Pharmaceutical companies fund trials on fibro with the sole purpose of their product helping so studies are to a degree biased, the more independent studies seem to be small. They say they see differences in brain signals but I bet no one on this forum has had that scan. If they believed that why aren't they scanning all of us to prove that theory without a shadow of doubt. If we all had strange brain patterns then that's the problem and they have a starting point to fix it. You have to ask yourself why the suspected fibro peeps aren't asked to be scanned to really add to statistical data.
there should be a standard questionnaire all fibro patients should complete that details every single thing, previous trauma, viruses, family history, childbirth, delivery type, dieting, tooth extractions etc etc etc. I'm sure if we all completed that, the thousands of fibro sufferers there would be some link through the majority, the others perhaps would have thyroid or hormone or metabolic disorders.