OH gosh gals - I have to admit i didn't now what you all meant by fusing for these last months - oh duh... my labia weren't stuck together and I don't have a partner, so... ugh well now I just realized that this "fusing" extends upwards from the perineum - ouch.
dang this LS is a tricky thing - just when you think you've got it handled... hanging head...
So can some of you please retell the tale of how you got the fusing to stop and reverse - natural methods/food/supplements etc... not ready to think surgery. Please and thank you so much.
Hi Nancy, sorry to hear that, it is very upsetting.
No one really knows how or when fusing occurs. My theory is that it is likely to happen when you are sleeping. What I believe happens, is that the LM becomes 'sticky' (that is LS sticky) and that it then adheres to your vagina. To stop this it is a good idea to always apply some kind of oil before bed as this eliminates that from happening.
With regard to unfusing, I think some women have had good results using Borax. If you look at the Borax thread I know it has worked for some.
Personally, I don't worry about fusing anymore, because I think that is the path LS takes, and we will all likely get some fusing at some point, some more than others. But, if you are able to stop it by using a natural remedy then why not try it. I have simply chosen not to go down that path and feel less stressed because of it.
Steroid helped un-fuse me - it was pretty immediate when I started using it. It hasn't reversed it completely but certainly worked in the more recent fusing that had occurred. Also I agree with Guppy that moisturising is extremely important and borax seems to 'calm' things.
Ah hun sending hugs. Steroid cream and also try a dairy and gluten free diet as well as coconut oil or the likes before bed. X
I just found out from doctor and exam yesterday that I am fusing too, I didn't really know what it meant but I have a great natural path doctor and she showed me a exact picture of the female parts on her computer and explained in detail what was fusing where and where to put the steroid cream when I get it.
I have had LS for over a year but didn't realize what to do as my last doctor had me start on estriol cream which i only used once a week with fear of cancer but with new studies out that that is from oral only I am doing every 4 days now. Also old doc had me insert Vit A tabs inside for a week to let naturally melt the oil inside and that did seem to work a bit.
But after my itching got worse I had my new doctor do exam. I found it interesting that the few places she found a white patch is exactly where I was itching the most.
I got prescription for steroid cream but my small pharmacy is not open on weekends so I will pick up Monday.
I heard somewhere else sometimes apple cider vinegar can help, has anyone heard of that?
I agree with Guppy.
At night I use a vitamen e oil capsule. My last gyno visit she said everything was looking pretty good, pink and healthy. I’m not sure I have infused as such but more just trying to keep every a bit balanced.
Good luck x
I want to know that too on how to unfuse in lieu of surgery. I'm going to my gyno on wednesday to see what she thinks. So nervous about it too because the landscape down there has changed since I saw her 6 months ago.
Thank you so much you all. I"ve been using one of several oils everytime I go to the bathroom. castor oil, coconut oil, and liquid vitamin E oil get rotated. But you jsut gave me an idea guppy. I LOVE hot baths and all winter I had one every night with the borax/backing soda. It's been so hot i've stopped doing baths... ha! I better get back to them (thank god for air conditioning!). I"ve never made any of the spray stuff up that some of you talk about I'll give that a try. thanks
ah, i've definitely gone cold turkey on sugar ages ago, and only use small amounts of raw cheese, I was using kefir for it's probiotics benefits but I have just realized that I really can't do that anymore, sauerkraut and kimchi will do the same job.
BUt what do you all think/experience about gluten/wheat? did you ever give that a good college-try? I mean, have any of you actually proven to yourselves that giving up even ORGANIC(non-monsanto poisoned) healthy bread was what cleared up things? thanks for you time to respond you all...
HI Marla.... I don't know anything about apple cider vinegar topically, it might even sting on the opened sore... BUT yes I've been doing apple cider vinegar in water as my morning first drink of the day that is supposed to really help ourdigestion etc. aha.. thanks for the reminder...I need to do it EVERY morning... yep i've been gettgin lax. THANKS!
HI Susan, yeah,I'm so appreciative of all the immediate help/suggestions when we need it. I've got some marching orders out of this lovely wonderful response. I'd also like to suggest to reread guppy's response to me.. it's very helpful to remember to relax, go with the flow etc. life carries on etc. .
Urethral orifice and fusing. On visit to specialist a year ago, I was asked whether I could still urinate as there is some fusing. This year different specialist who didn't enquire; however, nothing has changed. I did do some reading that surgical unfusing doesn't work for the long term as it just returns.
I watched Dr Goldstein’s Webinare last night and today ( over an hour) and he talked about the steroids helping to help “ Unfuse” labia, clitoral hood, etc. he also showed surgery that can be done in severe cases. After surgery steroid is used to prevent refusing. If you have not seen webinare, I highly recommend it.
I"m going to watch it. Has anybody had the unfusing surgery? Sounds like it could be very painful after.
hi Frances,i`ve been dagnosed for about 4 years now and when last saw my gyny(in may) he said the architecture had changed! explained i had trouble wee ing and he did tests,nothing sinister ,because the fusing has caused the hood to cover the clitoris and wee hole,my wee goes up hits the hood then comes down! sorry to be graphic but at least i know its sort of normal.my gyny is great he does a smear test when i see him every 12 months so its reassuring.
Thank you for the reminder.
Thank you Susan, I do spray everywhere; at least it is coming out.
Hi Susan- I’m only 13 days diagnosed and fo not hv a Dr appt until July 24, but this is another thing to discuss with my Dr. My pee seems to “ splatter” so I think there jv been some architectual changes there as well. One thing I hv noticed- since I was diagnosed and hv been going frequently and drinking tons of water and spreading creams, etc. I have not had any stress incontinence? Seems to just be gone? Of course I’m lowering my stress too to control the LS- maybe I’ll just stay at the summer house and NEVER go home to 4 jobs, 3 kids, hubby and dog- hmmmm😜😜🤣🤣🤣🤣🙄🙄🙄🙄
Thanks Nancy, really trying to relax but I wake up not knowing how I am going to look that day. I'm wondering if Emuaid cream is better than castor oil which I use daily.
FYI- But apple cider vinegar to drink is bad if you have reflux- too acidic! I sing professionally and all the diaphragmatic breathing pushes the acid up to my vocal cords, so I try to limit acidic foods and drinks.