Most of my life I have suffered from abdominal issues. In my early childhood, I had to consume special products in order be rid of baby colic. Growing up, I had dirreaha frequaently, but it was not of a debalitiating sort.
4-5 months ago, I awoke in the night with stomach pain. It was managable but as time passed it became unbearable. I felt as if I had dirreaha, but I truly did not. Almost like a constipated form of dirreaha. The episode lasted for a week, during this period I was barely able to eat or drink. Sitting and laying made the pain worse, so I stood and paced barely getting any rest. No medicines I took helped and I took many. Common pain relievers all the way to over the counter abdominal medicines (Anti-dirreaha and so on...) None helped. The pain, it was constantly there, this horrible cramping that shot into my stomach making me naseous. The cramping stayed pretty constant like with dirreaha, I felt the sudden cramping had a little bit of rest and another cramp started. The problem was, these cramps, I couldn't bear them. I have never felt such a strong and debalitating pain.
Since, I have had 5-6 of these debalitating episodes. Later on I introduced an anti-spasmatic, which helped prevent the cramping. Instead of struggling for weeks for it to leave, the cramping would go away within a few days.
Over the months my symptoms have changed but they all seem to reoccur eventually. I have had constant dirreaha over the past few months (no change in diet able to help; I cut out allergens, dairy and gluten, and even attempted the FODMAP diet), dizziness, weight loss (over 20 pounds), abdominal spasms on the right side, severe abdominal pain leading to many ER and doctor visits, menstrual problems (symptoms shifting with periods and pain while urinating while menstrauting), excessive belching, abdominal fullness, lack of appetite, pale to multi colored stool, mucus (a tiny bit of blood) and odd white particles appearing in stool (some look stringy almost worm like, others clumped and inbedding in the stool, while even others look like a fungus; if you could picture a white fungus on the stool), pain after eating, pain when I don't eat and leave my stomach empty.
As you can probably tell I have had a wide range of symptoms. I have seen many doctors and known seem to be able to diagnose me. One doctor labeled me with FAPS and sent me on my way, stating to "get over it". I have tried to, I have done many things to become healthy again. I try to exercise consistently when I am able to get out of bed. But my social life and all other aspects have died, I am no longer able to leave the house due to the pain. I have been tested for many things such as common parasties, urinary track infections, pregnancy, and other issues. I have had scopes which have come back clear, other than spotting some bleeding in my stomach which my doctor was not too concerned of. To the medical eye, I seem to be healthy.
Has anyone here had anything similar, if not have you heard of any disorders that fit this description?