Hello...I am a 46 year old man that lives in the NE USA. I have been suffering for years with an undiagnosable, untreatable, life destroying illness that matches nothing... ANYWHERE. I will start by telling you what my current symptoms are, followed by confirmed health issues and life issues that may have contributed to it. I have purple lesions from my feet to my head (really bad in my legs and rear). They scale over often,scab up, ooze yellow oil and bleed. they have been spreading all over me for the past 3 years. My skin itches on top but stings down deep. There's a continuous shed if what looks like dead skin, but is always triangle shaped and seems to come infinitely out of these lesions. I am losing the ends of my fingers, and areas between my skin and bones everywhere the lesions are. I have lost all my teeth, a lot of my vision, decreased hearing, my hair is patchy everywhere. I am losing weight @ an alarming rate. Blood tests show I am anemic. I am weak, tired, and always in pain (head aches, muscle cramp's, joint pain ). I can't shower because I bleed, large tears in my skin open up, I get really nauseous, & the pain is intolerable. I have been to every kind of specialist, ER's, clinics, etc...no solutions, treatments that work, or hope for a DX. The hospital's won't help me, my doctor's are out of ideas, and I am afraid this will kill me if I dont figure it out. I welcome questions, ideas, or let me know if u r experiencing the same. Thank you...
Hello Zeusdog! I assume you have scoured the internet for treatment or for what your condition might be. Have you looked into Morgellons? I have just recently read that some people who have Covid-19 are showing odd purple lesions on their feet. Look it up and see if they are what you are describing. Have the Drs. you have seen done any stool tests on you? Perhaps you have some type of parastitic infection unknown to American Drs. (like originated from somewhere else?) Have you traveled out of the country prior to all this? Look up some of the history on this site. There are MANY ppl on here who have posted pics of what they are dealing with. Perhaps you have something similiar to what somebody else has. I have been dealing with multiple parasitic infections as well as unconfirmed (by Western Blot) lyme disease. I haven’t had much help from any Drs…I did have 1 round of Ivermectin & Albendazole but had a very odd reaction so i could’nt do the 2nd round. I have done TONS of research on all of this off the Internet for the past 7 yrs. I have some relief (diet, Infrared Sauna, Colonics, Enemas, ) etc but no cures…Keep researching and don’t give up! I believe we are all dealing with the same thing which has taken on different forms and perhaps affects each of us differently. Keep your faith. Cut out dairy, sugar, etc…try alkaline diet. I just keep trying different things and trying to keep my sanity. Keep us posted on what you find. Also try posting some pics. Somebody on here might be able to help you.
It sounds like you have been near a nuclear explosion! I must admit I do not know though. Have any medics any idea or suggestions?
What you need to do it get a copy of your medical records from you GP surgery or a hospital - as for one that goes all the way back too the begging.
- Then ask for a cultures test on your blood - what we want to see are your white blood cells to see if they are above normal, high numbers can indicate (Infection). If you are consuming beer or bad food like junk food you must stop doing that as hard as it is and sugary stuff there is a reason well several.
- Do you take vitamins you should B, C, D, copper, zink, also try and find out what your PH balance is.
- Get an A4 file folder and a4 sketch or writing pad to put in there to keep daily records.
- Put your medical report in there as well when you receive it - i think it cost about 15USD
- The cultures test when you get it - ask about what they have found and a full description of the bacteria or coli-forms-it could be streptococcus, MRSA, e-coli- or other bacterium.
Do you use you tube, the reason because some of the best practising Doctors in the world are on their, specialist the ones you normally have to pay for privately that costs thousands, but not on there you can ask on the chat box - one question or two at the most. If they answer most will help but will also ask for your blood work from pathology and want to analyse it themselves - people are generally kind, it is the industries themselves who want to make money.
Let me know how you get on with the 1-5 and then we will progress ok - Take good care of yourself -
Do you have Odema in your legs.
How far can you walk with the pain and do your legs get tired when taking pain medication.
When walking with pain medication, do your legs tire and then when you stop for a while,
does the pain subside.
Also when you lift your legs onto a bed does the pain subside.
What wound care management system do you have in place.
Do you have layered compression meaning bandaging or dressings.
Yellow or Blue line dressing, do you use Inodie for wound and infection management.
Are you having surgical debridement of the slough the yellow coating of bacteria in the wound removed, so that the good flesh underneath can heal - Do you cover the wounds - What are your medicines -
I need to know all of them - it is alot to ask - but it will help you in the long run i promise you that.
they have dx’d it as every typical skin condition like eczema, ringworm, fungus, dermatitis, etc.. None of the treatment works. it actually gets worse.
I have had many cultures done… nothing…all blood work with in normal range accept I’m anemic & type2 diabetic…I will check out U tube though.
no infection, bacteria, staph, MRSA or signs of anything bad…ACCEPT THE BLEEDING, SPREADING, PAIN, ITCHING, AND NOT HEALING.. lol. my legs used to swell… now they sting and cramp.i have been on antibiotics (cream & pills), steroid cream and pills, anti fungal cream and pills all make things worse..
i have had Lyme, brucellosis, dyverticulitous, and currently have dormant C-diff. stool samples sometimes say possible parasitic infection. I have done Ivermectin several times..
its not morgellans. I am currently in a not so good living situation. There are rodents, water damage, and my f’n septic was backing up into my shower and subfloor for at least a year .
My theory is a skin penetrating nematode…like thread worms. Any time i try to suggest this…im told nothing does this. Then they make it a psych issue…
Obviously something does this. The lesions r real… not in my head. The docs around here don’t know anything about parasites. They won’t do more than look at it. occasionally swab it, 3x biopsy. 1 biopsy came back melanoma. I don’t believe it. biopsy never healed. they used to think the lesions were scars because they never di anything to see that they r holes.Now its obvious they r like large scaly, scabby holes.. . ( .
You mean they don’t really know?
0 effort. Because for a long time it just looked like a rash. when doctors only look, not listen, they dismiss it. I have been trying for several years now to express the seriousness of this. Now with this COVID 19 I am the worst I have been. This month it started spreading exponentially. The doctors offices are closed…ER’s are swamped with Corona virus (it’s to risky to seek, MAYBE, help) I am keft to try abd figure it out on my own. I am afraid that by the time I do it will be to late to fix 
.
I have had many of your symptoms. I haven’t been able to completely cure myself but I am drastically better..may I recommend that u try Hypochlorous Acid. Topical spray
Also, probiotics..the good kind. Each are 30ish dollars. HA is what ur immune system produces to defend you from invading microbes. A genetic defect causes the body to not produce enuf. probiotics will fortify ur immune system so it can defend you properly. I highly recommend you do a liver/kidney cleanse followed by a total body cleanse.
Idk specifically what ails you. without doubt, it’s toxins ur body can’t kill or expel. the cleanses will reduce the toxins a great deal. the HA and probiotics will help immensely. Do you have a -rh factor?? ie: O-, A-… Also don’t buy into the autoimmune retoric. an over population of parasitic microbes is a common cause. that’s all I have for now. if you give me more details I can advise you better. the Drs don’t want to cure you. there’s no profit in it.
antibiotics that end w azole are a class that fight fungal infections. u can get em for fish without a prescription. alternate, don’t take the same one longer than 4 weeks. this will help prevent resistance from forming. personally I found nothing helpful until I ventured into vet sites. human Drs don’t acknowledge what vets routinely treat for. the vet sites explain things in plain English. Also the peeling skin, it’s a good thing. that’s fungi that has been rendered inert by drying it out.
I just typed a long reply that was erases when I added a pic. So simply… what you see on my leg is all over my body. I am in pain, exhausted, and always hungry even though I eat non-stop, and lose body mass daily. I already take an expensive immune boosting probiotic and can’t afford to keep buying things with out answers.
I will probably go to the hospital again this week. Hopefully when they see the extreme aggressive ness of this 5hey will put aside there EGOS and help me. Otherwise there won’t be anything left of me soon at the rate its taking over.
hello, im wanting to ask some questions , please bare with me, because i myself have gone from doctor to doctor to be told saboric dermatitis. Believe me if what i have s that, it would be cured by now because if any dr ever had this, they wouldnt give up finding a cure. ok my questions, ill number and if you want to know why i asked thats ok . #1 have you soaked in a bleach bath every other day to soften skin? #2 have you used any repellents? if yes ,does your skin look as though a cat clawed you? a long scratch appears? and itching is intense? #3 have you rubbed vic’s vapor rub on affected areas and itching goes away? but it pulls out black dots out of youre skin? and #4 does it seem like you have developed freckes or moles on your skin that seem to have appeared over night? All of these things have been going on with me, but years ago when i first started noticing strange things with my skin i noticed triangular shaped skin shedding, always triangular shaped, i kept getting stuck on " how could skin shed in the same shape all the time all of a sudden?
ive been really going crazy trying to figure out what I’m dealing with, i believe after hours and hours, day in and day out that its some kinda worm from a fly. i havent found a doctor that has given much concern to what im going through to confirm, but i havent given up hope yet that ill get to the bottom of this, soner because like you i cant live this way .
i have never used the treatment u used but I do have the lines of “scabs” u mentioned as well as periods of extreme itching. i take Benadryl daily and it seems to help. i also have the trianglr shed all over my body now. bad on legs hands, face and head. i can’t shower now because large areas of my skin and everything underneath it wash away. It also causes severe bleading.
there seems to be a layer that looks like skin but washes away only to reveal large areas if missing flesh. I have lost sensation in my finger tips, surface areas on my legs and arms, and inside my mouth.
My clothes get covered in these triangle sheds and i cant get them out. 3 hour wash cycles, 2 hours in the dryer…and still there. when I clean myself a thick yellow oil cover’s me and I get nauseous.
I also remember being bit by a large black fly 5to6 years ago and the bite was painful and took forever to heal.
hi there..your post caught my attention because my dog i put down not so long ago was named zeus…i named him that because he was a rotweiler but was scared and timid of everything.thought it might rub off if i named him something strong. turns out he was very sick and i was only able to have him a couple years. but enough about that. i dont have any advice or information to give you. i just wanted to say that im sorry that you are going through what you are going through. i truly hope you find someone or something that can make it better. atleast some answers. its the absolute craziest thing to me that now, this day, we still dont have more medical answers. we turn to doctors for help when its obvious we cant provide the necessary treatment for our ailments..atleast with me i hate going in there…but usually going in with the thought that well ill atleast ill be better even though this sucks…the thought never crossed my mind that i might not get better…even worse NO ANSWERS…its very scary and ive never felt so alone…ever…so i dont know exactly what you are going through, but i do hope that u get a break soon and that things will get better in any kind of way…take care… (sorry if this post is lame. just felt the urge to say something)
u are the first person on here or anywhere that ive seen write that u think we are all experiencing something of the same thing but differently…ive had a start to an awakening and i have to say…i have lost almost all hope in people…but then every once in a bit it seems somebody catches my eye or i come in contact with them somehow, and they make me realize im not crazy crazy..just a little off…which is perfectly fine for me…thank u for being aware and open to possibilities that arent proven in a book and believing in something that is unknown and unseen to most.
what ive noticed at times whatever we are all experiencing at times give me soft of morgellons symptoms but not to the full extent. im starting to wonder if what we all really have is an invasive fungal infection. like histoplasmosis.but then my sores on my hand looks like granulous or leshmanasis. my doctor sees exactly what im seeing but the tests are negative. i have put endless days into research and i can across something from cdc and zoloft has great response to resistant fungal and parasite infections. we will figure this out together . all of us on here