Please do some research on "NEPHROPTOSIS" aka Floating Kidney ... I went 6.5 Years Singing Your Song and March 12th had the surgery to fix it. Life's NEVER Been Better!!!! My body is now "Rebooting" Since Both Kidneys are functioning right and My Finger Nails - Hair is Growing, My Horrible Skin problems are Fading, I'm Energetic and WAKING UP Is Not a Punishment!
This Condition is Not Rare but Doctors Diagnosis Are!
I hope this helps you,
Amanda
I have been having the exact same problem just on the right side. Sometimes its so excrutiating I scream. Then other times its just like a cramp. I can't put any reason to it!! Having all kinds of tests tomorrow, hopefully getting some kind of answer - blood and urine all normal. I keep telling the doctor there is nothing NORMAL about this kind of pain. What has me curious is why sometimes so severe then tolerable??
Yet another long complex story. l had catheter in after csection, then felt l,d bacterial cystitus, eventually confirmed treated with anti bs, cleared typical cystitus symptoms, but never really well after, severe low back pain,
soreness heat in low stomach, urethra,vagina, tiredness, just off and unfit a lot of time, clear urine samples, but frequent thrush, occassional bout of nausea and lost appetite for a day or so, when pain intense l,d lose pus or passing urine, l did have frquency also, but without pain in passing. After years of tests, d and c, gyny referrrals, hormone pills, phycalogical, l did get pyloenephritus, put on month anti bs, 2 pessaries a nt, passed masses of yellow crystal matter, finally got referral urologist, xray, scan, scope, intersticial cystitus diagnosed, put on amitrip, cimetidine, told l,d acid reflux, it settled slowly, and reasonably well a few year. Research then showed keflalexin daily prevented flare ups, on them, settled, but then started with chronic nausea, loss of appetite, but unlike ic nausea of a day it went on for weeks from waking to bedtime, horrendous debilitating, tired, sleepy, l asked to see urologists, but sent to gastroenterolosigst, scan and scope showed a bit of tum inflammation, given omprazole, hasnt helped much, nausea continues, occassionally settles for short times then as bad, lost weight,
lve felt even more tired and sleepy, feel cold, chills, occassional night sweats wet hair, given a kidney bladder scan, showed small cyst left kidney and 2 ureters on right joining up, but neither considered a problem, then they put off the cystascope date due to bacterial infection and breathlessness, be it mostly due to severa nausea, l see gastro again next week, going to contact urologist again, and l dont know if cystascope will show problem anymore than scan did, me pushing for it due to having simular symptoms of nausea before i.c. diagnosis, but in more recent months, lve also been gettin more pain higher up the back and sides, whereas with i.c it was mostly lower back, hip and urethera pain, pelvic. l also had sciatica few year back, xray showed disc degeneration, that has cleared up, couldnt cope with that also. l read replies and see many with simular symptoms to me, and also going through endless appt,s tests, scans, often getting vague responses from gps, consultants, seems no urgency no matter how much pain, illness, or how badly it affects your lifestyle, for me and others l guess, just about coping with daily essentials, youve got to, more so if on your own, as for social life or travel, l will go to gps tomorrow but presume results from scan show nothing to bother about or l,d have heard, So can just keep emphasising symptoms, and affect on lifestyle. This also plays havoc with mental state, will take it further with trust if no help soon.
l read Amanda,s post and see simularities, but l dont really get worse pain on laying down, sleep often a shor escape, Also read babyjess posts, hers also simular symptoms, but hers a calcified kidney, and both gone through samples, xrays, scans, and no diagnoses for a long time.
l will battle on,as l hope all can and best wishes to all with chronic probs
Hi Amy, just wondering how you got on with the tests and if you still have the pain?
This Sounds like Floating Kidney! Pain Eases when Laying Down? ...If So, Beg for Xrays- Laying Down and Standing Up... That's all it takes to prove the kidney is dropping at least 5cm... š ... Life Will be Awesome if you can get an Accurate Diagnosis ... I Promise!
I will make this as simple as possible. I have also suffered with the exact same thing: The pain in my right kidney and down in the front of my groin, I urinate fine, no fever, no blood in my urine, no stones.
I have found the cure for me and I have discovered what my issue is through trial and error and much reading and knowing my own body and paying careful attention to what I eat.
I have discovered that my issue stems from a sugar allergy. I have noticed now that when I eat heavy sugars I start having dull pain in both kidneys. I combatted this for a while by using olive leaf extract. I would take it and within an hour my symptoms would immediately disappear; until, after months of drinking sweet tea. My pain became unmanageable. My pain would not go away with just simple olive leaf extract. I thought my problem was from my old injured herniated disk for a while, I would sit and my kidney would hurt worse and when I lay down I would not have any pain until it became really bad. I would bind over and pick something up I could really feel it in my groin.
I thought maybe I had kidney stones at first, but when I took 1 ounce of olive oil and one ounce of lemon juice together and drank unsweetened 100% pure cranberry juice the symptoms went away within two days, I knew it was something different than kidney stones. I did these three times a day. Stones do not go away that quick I thought. What I believe happened is my kidneys became inflamed from my sugar allergy, the ureter tube gets inflamed and parts of the kidneys as well, which can cause much pain without it affecting your flow of urine.
Olive oil is an anti-inflammatory. The lemon sends plenty of vitamin C and if there are any stones it will dissolve them when mixed.
So, what someone would be wise in doing if they were to combat this issue is remove all tea, coffees, sugars from their diet, take 1 ounce of olive oil with one ounce of lemon juice, three or more times a day. Be careful because it can be ruff on the stomach. Just take what you can at first. I have an iron stomach and it causes me a little issue. But, I do it on an empty stomach. Drink some pure 100% cranberry juice with no sugar. It is sour, so have fun.
I am also having the same thing happening to me right now I am a 24 year old female that isn't for nand I am out of shape but for the most part I eat really good. I have been in pain a week now and it started with what I thought was the flu then from there I had to pee every 2 minutes I bad to go 18 times in one night, the pain is so bad even on high meds I still feel it, first trip to the ER it was labeled a UTI, went home started my antibiotics the pain never stopped it got worse I haven't eaten in 5 days I haven't had sleep, yesterday the pain was so bad I went back in th y took tests and a ct both coming back negative for everything no kidney stones found, no UTI even yet my side hurts so bad its like I am being punched withna fist full of sharrded glass. I was sent home again being told they have no clue.what is wrong with me ever time they can't figure it out but when the wave bits me I am like almost screaming out in pain I was sent home this time with a pain killer Indomethacin it helps but its only covering the pain not fixing it, I also have been having severe back pain, nauseated all the time head aches, what is wrong I am so scared I have had Ovarian Cyst Cancer before back then they didn't call it a cancer now they do depending on the case. Ovarian cysts are so painful they are the closets thing to child birth pains
So I am in bed again wondering why I am in so much pain for no reason, there has to be a reason pain can't exist without a cause of it, so why can't anyone fond me answers and help me get ride of this pain? Why? :'(
You know you might have something there I know what you say works I have seen it works hwck lemons saved my life from Ovarian cyst Cancer. If its a sugar allery how can you be tested for that? And if so what does a person eat I mean everything out there as some type of sugar in it?
That is what I thought it was but they refuse to check it out at ER the onyl.wanted to check for stones or infection. But I have been in pain for 5 days no relief at all on a pain med and still feel the pain its the bad my back hurts very very bad also, and my side spasms and hits me in waves of pain so bad I what to scream.
Oh and everyone the pain is in my right side and flank not my left.
Hey so I would suggest trying lemon water a glass in the morning and when ever you want through out your day, I hope you find answers soon this isn't fair to be in that much pain and yet have everyone say there isn't na reason. I'll pray for you, my pain is even now as I type this severe and I am on indomethacin for pain and its not tocuhing it! But its in my right side was in the ER for 5 hours screaming in pain almost blew my blood pressure and went into cardiact arrest it hurts worse and worse with each wave and its been attacking my back my spine also.
That is how people have treated me they all act like I am making it up thatnits in my head but I for one have a low low pain tolerance and I can't handle any pain and this pain is constantly there in my right side and back yet nothing can be found there is no answer to.what is causing it, and some people.say its my fault causeni am in bed all.the time, but I am.in bed cause I am hurting so bad I can't move with out pain.so.bad itnhurts to breathe.
The idea is not to remove all sugar from your diet. Even someone with a sugar allergy can process certain amounts. The idea is to not eat heavy amounts of sugar. You never want to get off of all sugars, because then the body will reject it even worse. You want your body to be able to build up its system against the allergy. I control my allergy with olive leaf extract. I will take it after I have eaten heavy sugars. I cannot eat heavy sugars before I go to bed or I really wake up with sore kidneys. Sometimes when I drink alcohol I will get some weird burning in my chest and through my body. Alcohol is the strongest of sugars and I have to really watch. Sometimes my body does real well with it, but other days not so. I still take my olive leaf extract. Olive leaf extract is known for its natural antibiotic qualities. This stuff is so potent against viruses, bacteria, worms, candida yeast, etc. It is the only thing I know that kills candida yeast within minutes of consumption. Sometimes detox headaches come very soon after. It is so strong my sister had hepatitis "C" and was cured of it by taking olive leaf extract. Now she carries the antibody. It is recorded by her doctor. My wife uses it every time she gets any yeast infections or bladder infection. It is gone usually with the first day of taking it. It is freeken amazing stuff. As for detecting a sugar allergy, only a handful of doctors will admit it is a sugar allergy or can detect it. Look it up online and do some studying. Sugar allergies can cause any organ in your body to become inflamed. It is usually the kidneys it attacks the worse. I keep mine under control with olive leaf extract by taking two capsules twice a day if I have heavy sugars. Good signs are pain in the kidneys after drinking alcohol or eating heavy sugars, burning in the chest or upper abdomen drinking alcohol or eating heavy sugars, and sometimes headaches soon after. Candida yeast is very high in people who have kidney problems. Once this is gone out of the body the body can heal as long as heavy sugars are not used.
Thank you I will for sure getnon this as soon as I can buy some
Doctors are not so wise when it comes to candida yeast. You have an overgrowth it sounds like to me. The sure way to fixing your issue is cut out heavy sugars, take olive leaf extract 2 capsules of 500mg in the morning and at night. Drink 1 ounce of olive oil with 1 ounce of pure lemon juice with no sugar two to three times a day. Be careful because it can be a lilttle ruff on the stomach, because you will not be use to it. Eating crackers will help. To counteract any issues you can take baking soda water mix. I can guarantee you will start seeing a major turn around within 24 hours. You may get some headaches at first, because you will be going through major detox. Drink plenty of water to flush your body. I may even take 48 hours since you are in very bad shape. By the way the antibiotics are cause you to be worse. Antibiotics kill all the good bacteria in your body and leaves you very vunerable and makes things worse. I would get some probiotics too, because your good bacteria in your body is destroyed by the antibiotics. These are so important to fighting any disease and can lead to more serious issues over time if you do not counteract the antibiotics.
i am hoping I can help at least a few of you on this blog. I am the mother of a 14 year old boy. The nightmare started last october when he began to complain of blood in his urine. And I mean lots of blood at times. We were referred to a urologist and they found that his ureter (the tube that carries urine from kidney to bladder) was narrowed which was causing him to have the blood and pain in his left flank area. In Novemeber he had a 8 hour laparoscopic major surgery to cut out the narrowed area of his ureter and reconnect with a stent to keep the ureter open. He went back in January and had the stent removed in a short same day procedure. He felt good a bout a week later for i would say about a week. Then the real nightmare began:
He began to have severe left sided flank pain along with left sided abominal pain. We assumed it had to do with his kidney/ureter. WE went to the urologist 2 or 3 more times. Nothing, I was getting so upset as the Urologist kept telling us his kidneys were fine. He was not fine. He was in severe pain from mid January to Mid April, he had gained approx 20-30# in this time, looked bloated, was nauseous, headaches, body aches and the continued left flank and left abominal pain which were the main issues. We went from ER to ER and heard the same story time after time. There is nothing wrong with your son. He had missed pretty much the entire 2nd semester of his 8th grade year. He had no energy, he cried and it broke my heart when we would leave an ER and he would ask me, "why won't anyone help us mom?" That was the worst part. I am a nurse and I did not know what to do to help my son. Finally, he he was so sick, he looked like death one morning. We loaded him up and went to the ER - they did labs and CT Scans, told us he had Strep Throat and Mono and was dehydrated. and were going to send us home. He was in pain he was very sick! I told them I wanted him admitted. This doctor was finally willing to help us. He was admitted and the next day a pediatrician came in and again, couldn't find anything wrong and didn't think it was the mono and the strep that was causuing his pain to flank and abdomin. We were that morning sent on to Sanford's Children Hospital in Sioux Falls, SD. We had a team of doctors and they ran every test in the book. We were warned that they may not be able to find the cause of the pain. For started they found out he was severely constipated even though he had been having watery bowel move 4-5 x day everyday for the past 2-3 months. So they began treating that. We were there for I think 3 days when one of the doctors came in and told us they had found "A Problem" they didn't know if it was "THE Problem" but it was a start. Keep in mind his pain had never been below a level of 8/10 for the past 3 months. Nothing helped, Not even narcotics (in reality they probably worsened the problem). Anyways, they told us they were certain he had Celiac Disease (Gluten Intolerance), and scheduled him for a Scope the next morning to verify this... they were going to take a biopsy of his intestine to see if this is what he had. The next morning before the procedure the doctor came in and told us that his labs were so so high that he was pretty much positive he had Celiac Disease and unless we wanted to put him through the procedure they didn't feel it was necessary. We opted out. So the Gluten Free Diet began the night before we were discharged. By the next morning, his pain was down to a 7. I had to clue was Gluten Allergy or Celiac Disease was. By the way Celiac Disease is worse than Gluten Allergy.
For somewhat of a happy ending but not so much - lol... his pain went away after being on the diet for about a month. Which was pretty hard on him as he was a ramon noodle and breaded food eater.
Now the pain comes when he cheats on his diet, which btw he has strict orders to NOT EVER cheat no matter how good he is feeling. His chance of getting Colon Cancer increases every time he eats gluten.
Gluten intolerance is becoming more and more of a problem these past few years and many doctors dont do testing for it or don't know to do testing for it. Many doctors we saw afterwards, like our family doctor were not familiar with the disease. It makes life tough but we did find the reason for the pain and with proper diet - it is relieved. !!
Please let me know if i was able to help anyone... I hope and pray that I am.
keep me updated... please! Good LUck and God Bless
I forgot to mention.. they said that someone in our immediate family has to have the same Gluten Intolerance as it usually is genetic. To our knowledge noone does. I was actually the only was tested tho.
But Celiac Disease is brought on my surgery or a stressful event in your life. Which they figure his surgery is what stirred it up. Go figure.
It has so many symptoms... pain, nausea, loose stools, frequent stools, eat and it goes right thru you because you intestines are not functioning properly. Joint pain (which he began to get the last month), weight loss is the major symptom but he actually had weight gain, brain fog, unable to function properly because your body isn't absorbing all the nutrients and vitamins thru the intestine that they should be! Also, his enamel on his teeth which i had noticed the past few months before being diagnosed was deteriorating. Wasn't till after being diagnosed and researching did I put it together that that was a major symptom!
Anyways, just wanted to add that addt'l tidbit of info !
You sometimes wonder at what you go through to get a diagnoses and treatment to improve, for me it was intersticial cystitus that took an age to get diagnosis for, started following surgery, as happens for some.
Through it l met an old lady with same condition, support group. She,s a coeliac, so lve learnt a bit from her, and know she,s quite strict, if she went out for a meal she,d take her own gravy or sauce for chef to use. She uses a lot of genius products, gluten free range, quite expensive, even for a small loaf or biscuits bars, dont tase too bad. She does occassionally forget or tempted and pays for it with pain and rest. Glad you did finaly get a diagnosis, its horrendous watching your kids suffer, to the extent of being in and out of hospital, my sons are in their 30s and l still worry, of course, if theyre ill, my eldest with diabetes, another condition where they can break the rules on diet, being young and healthy most of time, and it all adds to damage for later. Anyway good to hear he,s well again, big relief for you.
thank you
Hi. I have had sevre right flank pain for over a year and a half. It's just under my ribs, tender to press in that area, goes around to my back and down to my groin area sometimes. The pain is so bad I can not walk long or stand or sit. I can't do much of anything. Pain is much worse with activity. Sometimes lying down with a heating pad will help. Only sometimes. I have pain meds but they are of no help most the time. I do have a history of kidney stones. I have been passing them since 1999. This past year and a half, I have been constantly with stones in both kidneys. I presently have a 10 mm in my left and a 4 mm or 8 mm in my right depending on what ER I go too...lol. My right side pain is dull but goes into these intense wave like spasms or cramp like pains. It's like someone is squeezing my kidney as hard as they can. It's the worse pain ever and I can take some pain. Everytime I go to the ER, I am told it's renal colic from my kidney stones. My question is why is it just on the right then? I have a 10 mm stone in my left and have passed just as many on that side. Why would my right kidney be in a state of constant renal colic and not my left? My left hurts sometimes but it's my normal stone pain if that makes since. It's not constant over there. I can't even sleep on my left side anymore because when I do it feels like someone pulling on my right kidney. It causes pain to sleep that way now. I have been urinating a lot more. Sometimes I go and it feels like I really had to go but not much and sometimes it's normal amounts. My last ER visit showed blood microscopicly in my urine. It usually does. I have noticed lately sometimes there is a trace of protein, sometimes not. My most concerning thing is that my eGFR non African American has dropped from 82 to 60 in the past month and my creatinine has gone from always being around 0.7/8 to 1.10. We have no urologist in our area that take our insurance and its been a battle but finally the insurance company has added the best urologist in town to our insurance since there is no one. So, hopefully once the paperwork is faxed, I can get in asap! This pain is really taking it's toll on me and I am getting worried my kidney function isn't so great on the right side. Does anyone know how they tell if one kidney isn't working as well as the other? I know if one is blocked or bad the other kidney will work for both and you can urinate normally. Oh, I have had CT's which just shows kidney stones. Nothing else. Any suggestions or answers?